dementia with lewy bodies

Hi, my husband has Dementia with Lewy bodies - his behaviour and symptoms are more complicated/extreme than I experienced with my Mother. No one gave advise as to what to expect and how to cope - all my information has been found on the internet. Who do you get information and support from?

Hello everyone. My husband has recently been diagnosed with Lewy Bodies Dementia and early stage Parkinsons. My sons and I had noticed changes that he was unaware of and he doesn’t feel any different, so he’s not really accepted anything is wrong. He’s only 69. Other than having to surrender his...

Hi I'm new here I'm a carer for mum 24/7 who has dimentia with Lewy bodies also has hearing problems won't leave hearing aids in very difficult to comucate with her

My mum has just been diagnosed with lewy bodies dementia and unfortunately will need to go into a care home. This will be so difficult when I drop her off any tips for best handover into her new care home please.

My husband has Lewy Body Dementia, I've been grieving every day for the past 3 years and some days I find it unbearable, as I long for for him to be as he was but I know this will never happen. I visit every weekend and have to fight back the tears as I don't want him to see. Please help me...

My dad has Lewy Body Dementia. I have noticed, and find it quite upsetting, that my dad will be 'off' with me - not looking at me when I talk to him; talking as if he's annoyed with me; non responsive in conversations (unless we talk about his childhood or something that interests him)...

Hi my husband is in care home now has lewy body dementia and Parkinson's it's been a very hard struggle with quilt from my side he is starting to settle now and I have good and bad days but I am struggling financially bank not letting access. To his bank account just wanted to know if anyone...

Hello everyone; I am new to this site but I have learned quite a bit and can relate to many of the scenarios that have been presented. My Dad was diagnosed with Parkinson's Disease about eight years ago. About two years later, his diagnosis was changed to Lewy Body Dementia. He has been...

Does anyone else have a loved one with Lewybodies? My husband has been diagnosed with this following a very sudden incident on holiday in France in June. He regularly doesn’t recognise me,only me, knows our friends, family, locals…. So far I’ve made a memories book of photos of our life...

Hello, I wanted to share an act of kindness whilst collecting a new car My OH has ‘very advanced dementia’ (LBD). He is an obliging 79 year old who has been unable to speak more than a couple of words for several years. He enjoys company & readily smiles. He cannot be left alone so off we went...

Hi, just joined this forum as I am increasingly needing to talk to others who may be experiencing the same issues caring for someone with dementia such as lack of sleep, being worried about my partner not knowing where he is, especially at night, and having lots of hallucinations plus restless...

Greetings all. Myself & my husband care for a late-stage lewy-body dementia patient in her home around the clock 24/7. She is bedridden (can not walk or even bear her own weight, and has not the strength, balance nor coordination to even stand). We have her in a fairly stable routine (as much as...

Hello My husband has Lewy body/Parkinsons

My dad was diagnosed with Lewy Body Dementia by a Consultant Psychiatrist in early 2020. He was then seen by a Consultant Neurologist a couple of weeks later who said that he thought Dad was Parkinsonian and that he agreed with the diagnosis of Dementia with Lewy bodies. The Lewy Body...

Hi. I was wondering whether anyone might able to advise on any issues or things to be aware of in this scenario. I should add that we are about to consult a solicitor but just wanted a heads up on anything. My mother in law has Lewey Bodies dementia and has been resident in a nursing home for...

My husband has Lewy Body with Parksinsons and hardly leaves his bed. In the last few days he has changed (no ITU) and it is quite worrying but don't know who to ask about it. We have been dismissed from Memory Clinic, OT etc have stopped coming and doctors is mostly on the phone as I can't get...

My husband has Lewy Body dementia with Parkinsons and spends most of his time in bed, his mobility is not good. Sundowning has been going on for a long time but usually at tea time and he spends lots of the night talking to himself, scratching, clapping and shouting out, so much so that I am...

My husband is 80 and has LBD. He is a big man and always has had a big appetite. We have recently moved to a new bungalow, in a new area, to be near family. Bryan has adjusted amazingly well and has orientated himself brilliantly. However, 2 weeks before the move and since the move, he has...

My husbandry is not accepting the diagnosis of Lewy Body Dementia. Instead, he is obsessed with transferring a large sum of money to a personal trainer that has already conned him out of money. I had a lawyer warn her off in October. Still, my husband begs me every day to let him wire a very...

No amount of expectation can prepare you for the words dementia with Lewy bodies, when all you want to hear really is, there’s absolutely nothing to worry about because you’ve imagined all the symptoms. Today, My 77-year-old dad was told that he has Lewy bodies dementia. I have just had a...