dementia with lewy bodies

  1. D

    Hello my name is Carole

    My mum has just been diagnosed with lewy bodies dementia and unfortunately will need to go into a care home. This will be so difficult when I drop her off any tips for best handover into her new care home please.
  2. A

    Welcome some advice.

    My husband has Lewy Body Dementia, I've been grieving every day for the past 3 years and some days I find it unbearable, as I long for for him to be as he was but I know this will never happen. I visit every weekend and have to fight back the tears as I don't want him to see. Please help me...
  3. C

    Dad talks to strangers differently

    My dad has Lewy Body Dementia. I have noticed, and find it quite upsetting, that my dad will be 'off' with me - not looking at me when I talk to him; talking as if he's annoyed with me; non responsive in conversations (unless we talk about his childhood or something that interests him)...
  4. N

    Need help

    Hi my husband is in care home now has lewy body dementia and Parkinson's it's been a very hard struggle with quilt from my side he is starting to settle now and I have good and bad days but I am struggling financially bank not letting access. To his bank account just wanted to know if anyone...
  5. A

    Breathing Difficulties

    Hello everyone; I am new to this site but I have learned quite a bit and can relate to many of the scenarios that have been presented. My Dad was diagnosed with Parkinson's Disease about eight years ago. About two years later, his diagnosis was changed to Lewy Body Dementia. He has been...
  6. B

    Lewy bodies dementia

    Does anyone else have a loved one with Lewybodies? My husband has been diagnosed with this following a very sudden incident on holiday in France in June. He regularly doesn’t recognise me,only me, knows our friends, family, locals…. So far I’ve made a memories book of photos of our life...
  7. R

    Act of kindness

    Hello, I wanted to share an act of kindness whilst collecting a new car My OH has ‘very advanced dementia’ (LBD). He is an obliging 79 year old who has been unable to speak more than a couple of words for several years. He enjoys company & readily smiles. He cannot be left alone so off we went...
  8. M


    Hi, just joined this forum as I am increasingly needing to talk to others who may be experiencing the same issues caring for someone with dementia such as lack of sleep, being worried about my partner not knowing where he is, especially at night, and having lots of hallucinations plus restless...
  9. L

    Live-in/Waking Night Carers Requesting Sedative

    Greetings all. Myself & my husband care for a late-stage lewy-body dementia patient in her home around the clock 24/7. She is bedridden (can not walk or even bear her own weight, and has not the strength, balance nor coordination to even stand). We have her in a fairly stable routine (as much as...
  10. M

    Hello My name is Maggie.

    Hello My husband has Lewy body/Parkinsons
  11. C

    Lewy Body Dementia diagnosis query

    My dad was diagnosed with Lewy Body Dementia by a Consultant Psychiatrist in early 2020. He was then seen by a Consultant Neurologist a couple of weeks later who said that he thought Dad was Parkinsonian and that he agreed with the diagnosis of Dementia with Lewy bodies. The Lewy Body...
  12. B


    Hi. I was wondering whether anyone might able to advise on any issues or things to be aware of in this scenario. I should add that we are about to consult a solicitor but just wanted a heads up on anything. My mother in law has Lewey Bodies dementia and has been resident in a nursing home for...
  13. 6

    What to do now.

    My husband has Lewy Body with Parksinsons and hardly leaves his bed. In the last few days he has changed (no ITU) and it is quite worrying but don't know who to ask about it. We have been dismissed from Memory Clinic, OT etc have stopped coming and doctors is mostly on the phone as I can't get...
  14. 6

    Want to ask about Sundowning please.

    My husband has Lewy Body dementia with Parkinsons and spends most of his time in bed, his mobility is not good. Sundowning has been going on for a long time but usually at tea time and he spends lots of the night talking to himself, scratching, clapping and shouting out, so much so that I am...
  15. E

    Sudden change in eating habits

    My husband is 80 and has LBD. He is a big man and always has had a big appetite. We have recently moved to a new bungalow, in a new area, to be near family. Bryan has adjusted amazingly well and has orientated himself brilliantly. However, 2 weeks before the move and since the move, he has...
  16. T

    My husband has been diagnosed with Lewy Body Dementia.

    My husbandry is not accepting the diagnosis of Lewy Body Dementia. Instead, he is obsessed with transferring a large sum of money to a personal trainer that has already conned him out of money. I had a lawyer warn her off in October. Still, my husband begs me every day to let him wire a very...
  17. A

    New today. My Dads diagnosis came and I’m reaching out to those of you who know what that feels like.

    No amount of expectation can prepare you for the words dementia with Lewy bodies, when all you want to hear really is, there’s absolutely nothing to worry about because you’ve imagined all the symptoms. Today, My 77-year-old dad was told that he has Lewy bodies dementia. I have just had a...
  18. SeaGirl

    Hello, to a bunch of fellow travellers.

    Hi, I am relatively new to this business of being a full-time carer, and joined you lovely chaps and chapesses as I have been finding things a tad tough of late. My husband has Lewy Body Dementia, and this is proving quite the challenge for us both. It'll be great to speak to others, whether...
  19. P

    When the truth hits

    My husband was diagnosed with Lewy Body Dementia in 2016. Recently his symptoms have got worse especially his cognitive impairment. Until yesterday he thought his only problem was memory loss. Last night it took nearly 2 hours to explain the first and third Monday of the month. He is obsessed...
  20. S

    New member

    My sister is 68 and has been diagnosed with LBD. She is now in a nursing home as of yesterday. My niece, (it’s her Mum ] is feeling very guilty as my sister has told her ….she hates the place. My sister requires nursing care and my niece has young children. How do I support my sister and niece...