My husband has Lewy Body with Parksinsons and hardly leaves his bed. In the last few days he has changed (no ITU) and it is quite worrying but don't know who to ask about it. We have been dismissed from Memory Clinic, OT etc have stopped coming and doctors is mostly on the phone as I can't get him to the surgery.
What has happened (Monday) is he was sat on the commode in the bedroom and when I went into the ensuite he got up off the commode to get the men in the corner, fell over his breakfast table onto the floor and has a bruise and grazes on his forehead, no cut. He was fine all day but all night he was shouting, thrashing and talking and I got no sleep. All day Tuesday he slept or lay gazing at the ceiling. I slept in next bedroom as I was so tired and at 2 am he is outside the door shouting for his grandmother. He has rails up at the bed but he shuffled to the bottom and climbed over the commode and walked down the hallway to my bedroom.
I have no idea how he did this but know he did as the commode lid was missing and the material straps broken. I managed to get him back to bed but he never slept, breakfast he wouldn't eat and has been gazing up at the ceiling or sleeping for most of the day, he was lucid for a while and doesn't remember anything and when he speaks I can't understand what he is saying.
Is this a normal progression and should I ring the Doc or is it just how it goes. Not understanding him and the gazing has been going on a while but is getting worse.
Thank you.
What has happened (Monday) is he was sat on the commode in the bedroom and when I went into the ensuite he got up off the commode to get the men in the corner, fell over his breakfast table onto the floor and has a bruise and grazes on his forehead, no cut. He was fine all day but all night he was shouting, thrashing and talking and I got no sleep. All day Tuesday he slept or lay gazing at the ceiling. I slept in next bedroom as I was so tired and at 2 am he is outside the door shouting for his grandmother. He has rails up at the bed but he shuffled to the bottom and climbed over the commode and walked down the hallway to my bedroom.
I have no idea how he did this but know he did as the commode lid was missing and the material straps broken. I managed to get him back to bed but he never slept, breakfast he wouldn't eat and has been gazing up at the ceiling or sleeping for most of the day, he was lucid for a while and doesn't remember anything and when he speaks I can't understand what he is saying.
Is this a normal progression and should I ring the Doc or is it just how it goes. Not understanding him and the gazing has been going on a while but is getting worse.
Thank you.