When I have suggested something similar to my husband he just says, are you medically trained. 🤣 Very frustrating.
So, what’s my Pauline been up to today?
- Thread starter Agzy
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I used to have a tussle at night to get her to take meds and wear the wrist worn alarm button but once I put it as reminder via Alexa she does it immediately 😂
She loves it and although she stumbles now and again she can say, “Alexa, play Boom Light.” Then we sit back and chill or sing along as the mood takes 🧡
Have you tried a memory foam cushion for her sitting on - lots of different types/shapes on Amazon. Having said which having got one for OH he prefers sitting on a feather pillow.
This morning, as it is wet and cold and no group/activity until this afternoon, she was clearly getting agitated and bored so I dug out an old iPad that has been on charge forever and has the old style charging cable which is sort of welded into the iPad Now. On it is the photo memories I did for her when first diagnosed but she rarely shows interest in them now but, arising from a suggestion elsewhere I downloaded a free Majong App and now she sits happily poking away at the tiles and matching them. The occasional tech issue and background music a nuisance but overall a great success 😝
You might be able to turn the background music off by turning the volume down completely on the I pad. That’s what I do on both my I phone and the I pad.
Cheers @Knitandpurl I did that eventually and she then lost interest totally in the game and says no when I try it again; we just can’t win can we ? 😜
We sure can’t…. maybe the sound was part of it for her. Trying to keep our PWD occupied is a bit of a challenge.
I sometimes consider myself to be the entertainment officer. As well as chef, cleaner, supplies, maintenance, safety,.chauffeur, PE...... Or carer for.short!
Yes, and you didn't add in chief bottle washer!
However, there are now jobs I no longer have, but I wish I still had them, and I miss that terribly.
I'm no longer someone for my OH to talk to, to share views or experiences with, or to debate and argue with. I'm no longer a holiday goer, nor a dancing partner, nor a theatre companion, nor a friend or confidante, nor a harmonising voice, nor a lover............................
Carer may be vital, but where's the fun in life anymore.
However, there are now jobs I no longer have, but I wish I still had them, and I miss that terribly.
I'm no longer someone for my OH to talk to, to share views or experiences with, or to debate and argue with. I'm no longer a holiday goer, nor a dancing partner, nor a theatre companion, nor a friend or confidante, nor a harmonising voice, nor a lover............................
Carer may be vital, but where's the fun in life anymore.
We have a really nice weekend together including an afternoon at a Memory Cafe with activities along with our local Dementia Together group and of course my visitors with cards for Father’s Day. The only clouds were caused by my breathing struggles which have been particularly bad. Given this we have spent this morning quite literally sitting and dozing in our respective chairs with the central heating turned on and up as it is so cold. Having said that and having read your recent comments the caring duties have continued of course but I do struggle with hanging laundry (today it is towels and the like) on the airers, and carrying them upstairs from the kitchen has me gasping like a fish out of water. I’m see a respiratory consultant tomorrow when I think he want to discuss spinal surgery to free the trapped Physic nerve causing the problem.
i hope they can do something about the breathing. it could bre the weather as well.is there a different way of doing the washing to make it easier. ive had to adapt some of my methods of doing things
Daycare day.
And so it starts, and from the moment she came down stairs this morning - pure venom!
It somehow feels as though the air is crackling with tension and even hate and to say all attempts to make conversation are met with foul language, hate and really hurtful comments is no exaggeration at all.
I put up with it but there is no reward or benefit that I can see except that it ruins what we have and just depresses me terribly. My family tell me to stand firm and at present I intend to but I just wish there was an alternative.
And so it starts, and from the moment she came down stairs this morning - pure venom!
It somehow feels as though the air is crackling with tension and even hate and to say all attempts to make conversation are met with foul language, hate and really hurtful comments is no exaggeration at all.
I put up with it but there is no reward or benefit that I can see except that it ruins what we have and just depresses me terribly. My family tell me to stand firm and at present I intend to but I just wish there was an alternative.
just keep it up. pauline is giving you the guilt treatment. they say she enjoys it there just has to have a protest a bit like my kids when they went to school. its difficult but you need that time for a break.
I'm sorry daycare is so hard.
It does give you a break and just as importantly it means Pauline is used to doing things without you.
It does give you a break and just as importantly it means Pauline is used to doing things without you.
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