Hi, following my first Covid jab in late February 2021, I quickly developed several medical problems, including "brain fog" and short term memory issues. I am 65, llive with my wife, but I have no relatives living near me and over the past two and a half years have become less mobile (due in part to joint issues and balance/vertigo problems) and more reclusive.
Say hello and introduce yourself
- Thread starter HarrietD
- Start date
- Status
Hello, my name is Kara, I am 61 working two jobs from home while caring for my mother who is Deaf, has low vision and mobility concerns. Mom is 90-year-old and diagnosed with dementia last year. She is in the later stages, we had concerns about her memory for years but no one listened to us. When my dad suddenly passed, everything became clear and hit head on. This has been the most challenging and heartbreaking experience ever! Mom is rapidly declining.
I was searching for answers to some questions I had and found this online group. A relief to be able to chat with others for much needed support, learning and sharing. Glad to be here. Just wish it was different.
I was searching for answers to some questions I had and found this online group. A relief to be able to chat with others for much needed support, learning and sharing. Glad to be here. Just wish it was different.
Hello Kara @Coda<3 and welcome to this friendly and supportive forum from me also. There is a lot of shared experience of dementia to be found here, so I am glad you have found us.
I am sorry to read about your Mom. I hope you will find this forum useful for information, and any particular advice if you need it, do just ask, as members here really do want to help.
It's also good for letting off a bit of steam when you need to!
I am sorry to read about your Mom. I hope you will find this forum useful for information, and any particular advice if you need it, do just ask, as members here really do want to help.
It's also good for letting off a bit of steam when you need to!
Hello @oldtiredcyclist and welcome to the Dementia Support Forum. I am sorry to read about your memory issues. Have you discussed these with your doctor, if not it might be an idea to do so. In the meantime if you have any questions or queries please let us know. You will find lots of help and advice here.
Hi @Bichonjan
Yes, if there is a crisis is just when Adult Social Services should be helping. You 'll have to keep pestering them until they get their act into gear. Re-chase GP for help with referral again.
Speak with the Alzheimer's Society help line 0333 150 3456 - Opening hours: Mon to Weds: 9am – 8pm, Thurs and Fri: 9am – 5pm, Sat and Sun: 10am – 4pm
Best wishes
Thank you! I know this is the place for me. As we all share stories, experiences, ups, downs and more.
Hi my husband has young onset dementia (he is 63) he can’t be alone as his anxiety is really bad never previously suffered from anxiety so this was a red flag for us . If I’m calm and happy so is my husband it’s a 24/7 job and my heart goes out to everyone who is going through these tough times
Welcome @Christine62
It`s always even more painful to hear of younger people with dementia and I hope you will find the DSF helpful and supportive.
It`s always even more painful to hear of younger people with dementia and I hope you will find the DSF helpful and supportive.
A warm welcome from me too @Christine62 - my late husband also had young onset dementia. I totally understand how alarming previously unseen levels of anxiety can be. You are right, being able to keep calm and happy helps enormously, as our loved ones can be very sensitive and responsive to the general emotions and atmosphere around them.
Having said that, staying calm and happy at all times is not always possible - we are but human after all. I found this forum to be a fantastic source of support and understanding throughout the good and bad times - and I am sure you will too.
Having said that, staying calm and happy at all times is not always possible - we are but human after all. I found this forum to be a fantastic source of support and understanding throughout the good and bad times - and I am sure you will too.
Welcome to the forum it’s a friendly place to share experiences and find support
Hello @Spottydog and welcome to the Dementia Support Forum. You will find lots of help and support here from our members who have experience of many aspects of dementia. We have a number of members who like you have experience of caring from a distance. You might find it useful to start a thread in the area - I care for a person with dementia - there you can ask for advice or just talk about how you feel. I have attached a link for you.
forum.alzheimers.org.uk
I care for a person with dementia
This forum is for people who are involved in the care of a person with dementia.
forum.alzheimers.org.uk
My neighbour has dementia and is very sweet but completely lost. She lives alone, her daughter comes in the evening and she has cares who come for a short while in the morning and at lunchtime. She knocks on my door lost and frightened dozens of times a day and when I answer she can’t remember where she lives so I direct her back m and listen to her. For a while. if I’m working and try to ignore it then she will wander off and get people passing by to knock loudly and often they demand to know what I’m thinking leaving an old woman out in the cold. Her daughter is exhausted and just tells me to ignore the knocking, s now started at night 10,30pm with her being very frightened and low. I answered the first few times, contacted her daughter who told me to ignore it - but I feel terrible leaving someone out in the cold alone and afraid. Social services, the police and her Dr are all aware of her situation It no one seems to do anything. It’s been going on for 9 months and is effecting my work. What can I do to help this situation?
HI, my husband is 75 yrs old and he has Alziemers. I am 67 yrs old and I retired earlier this year. He was diagnosed about 2 yrs ago now but we noticed a couple of years before that that he had memory problems and was getting lost when out driving. Its not easy sometimes living with a person so changed.
Welcome @Carwalk I hope you will find help and support here.
It`s really hard when our plans for retirement are cancelled by this awful disease and all we can do is try to make the best of good days.
I know the personality changes are the biggest challenges. It doesn’t happen to everyone. My husband’s personality changed while my mothers stayed pretty much the same.
It`s really hard when our plans for retirement are cancelled by this awful disease and all we can do is try to make the best of good days.
I know the personality changes are the biggest challenges. It doesn’t happen to everyone. My husband’s personality changed while my mothers stayed pretty much the same.
- Status
Similar threads
