HI, I'm new to this group, and really struggling at the moment. My dad has Parkinsons with Lewy Body Dementia and lived at home until a bout of Pneumonia sent him to the hospital. Care in the hospital and enablement unit were so poor, dad has gone from being fully mobile and continent, to bed bound and incontinent. We made the traumatic decision to put him into a care home, and he fell twice within 4 days of being there, breaking his hip and going back to hospital. The care home admitted fault and self-reported to the CQC. We were told dad would be unlikely to survive the operation, but he is a fighter and has made it through that and several other infections due to aspiration, and is currently undergoing treatment for C-DIFF. He is currently isolated due to the infection, and when I visited this evening (with PPE) he was very agitated and wanted to get up, but he is being kept in bed for most of the time with the bed rails up. He is at very high risk of falls and I know the care home are trying to keep him safe, but it is devastating to see him so desperate to get up, and not be able to take him home. No two days are the same, and some days he looks so close to the end, while others he is wide awake and laughing. The care home are kind and supportive, but it's impossible to know when the end is near, and I have a constant fear and guilt that I won't be there when he needs me, but also aware that I am struggling with a family and full time job at the same time. Does anyone else feel that they can't think about anything else? When I look at dad I also see myself and it's the strangest feeling (we look alike). Work is also very overwhelming and I am in constant fight or flight mode, worrying about what will happen next, and whether he is suffering. Other people I know who are going through something similar seem to be coping so much better, and I don't know why i can't just pull myself together. Hoping this group will give me some peace x