Say hello and introduce yourself

[Bevhar]

Yes we have a local dementia group which meets every month at the moment. First time we went, my husband was soooo against it. So when we go there we were separated, me with the carers and him with the others. I was so worried about him that I left my group to see if he wanted to leave and blow me down, "I'm not ready to go yet!"! he says. You could have knocked me down with a feather. So we try to go monthly at least it gets me out of the house and able to have conversations with others which I cannot do with him.

That’s good we are lucky we have weekly meetings Also my husband goes to a group on his own for the day once a week
I’m enquiring about other groups as I’ve read it’s important to socialise Do you mind me asking how old your husband is mines 68 I’ve found the carers groups very helpful Hope you find this forum useful I don’t know what I’d do without it

 

[BeverleyA]

That’s good we are lucky we have weekly meetings Also my husband goes to a group on his own for the day once a week
I’m enquiring about other groups as I’ve read it’s important to socialise Do you mind me asking how old your husband is mines 68 I’ve found the carers groups very helpful Hope you find this forum useful I don’t know what I’d do without it

Hi, @Bevhar my husband is 71. And yes It is important to socialise. Especially for me as I would never have a conversation with anyone then. I am also deaf and rely a lot on texting but I need to use my voice.

 

[Bevhar]

Hi, @Bevhar my husband is 71. And yes It is important to socialise. Especially for me as I would never have a conversation with anyone then. I am also deaf and rely a lot on texting but I need to use my voice.

Absolutely I think it’s so tough being a carer I find it hard as people always ask how my husband is & forget me I broke my hand 6 weeks ago & couldn’t drive & found it awful not seeing anyone Have you got any children I feel a burden to our girls as I’m not really very mobile as I have arthritis in my leg & hip I’ve already had a knee replacement in my left leg Keep posting there’s a lot of support on this forum

 

[BeverleyA]

Absolutely I think it’s so tough being a carer I find it hard as people always ask how my husband is & forget me I broke my hand 6 weeks ago & couldn’t drive & found it awful not seeing anyone Have you got any children I feel a burden to our girls as I’m not really very mobile as I have arthritis in my leg & hip I’ve already had a knee replacement in my left leg Keep posting there’s a lot of support on this forum

@Bevhar sorry to hear about your health problems, I hope you're managing ok. Yes I have 3 boys, but none near me here in London 😞😞 but they visit when they can. The support & into is good on here, much appreciated. My only problem is finding the right carer as my first enquiry, they couldn't guarantee the same person will turn up each time.

 

[Bevhar]

@Bevhar sorry to hear about your health problems, I hope you're managing ok. Yes I have 3 boys, but none near me here in London 😞😞 but they visit when they can. The support & into is good on here, much appreciated. My only problem is finding the right carer as my first enquiry, they couldn't guarantee the same person will turn up each time.

It’s very hard getting a carer such a tough decision I can leave my husband at the moment Our Alzheimers advisor said there are people that can come & take my husband out or sit with him when I need it I haven’t looked into it yet Just feel sad it’s so tough but I’ve got to accept it

 

[BeverleyA]

It’s very hard getting a carer such a tough decision I can leave my husband at the moment Our Alzheimers advisor said there are people that can come & take my husband out or sit with him when I need it I haven’t looked into it yet Just feel sad it’s so tough but I’ve got to accept it

@Bevhar I know what you mean. What a life we are living, it's no life at all. We had great plans for when we retired, all gone out the window. But it's good to know there is someone if needed.

 

[Ms. Lonely]

Hi, my husband has Alzheimer’s and I feel like I’m dying. Sorry.

 

[Izzy]

Welcome to the forum @Ms. Lonely.

I’m so sorry to read about your husband’s diagnosis and that you feel so bad.

Perhaps you’d like to start a thread of your own in the I Have A Partner With Dementia area of the forum. You could use it to tell us a bit more about yourself and your husband -

I Have A Partner With Dementia

I’m sure you will find understanding and support on this form and hopefully you’ll feel a little less lonely.

 

[BeverleyA]

Hi, my husband has Alzheimer’s and I feel like I’m dying. Sorry.

I am sorry to hear this, But I know where you are coming from. It's hard work, lonely as you may have no one to talk to and no help!

Today I am tired due to antics in the night. Hang on in there & try to get help where needed.

 

[Gosling]

Hi, my husband has Alzheimer’s and I feel like I’m dying. Sorry.

Welcome to this friendly and supportive forum from me also.
I am sorry to read about your husband. This is a great place for understanding and support. People here will know what you are going through, so please let us help if we can. You are never alone here.

 

[BettyBoo222]

HI. My dad has recently been diagnosed with vascular dementia, after symptoms developing following a stroke. He was discharged from hospital into a care home, but I don't feel like he's being properly cared for. He is bed -bound and does not receive any stimulation during the day apart from being given his food, meds, and having incontinence pads changed. I haven't wanted to cause him more upheaval after the devastation of the stroke on his life, but I'm sure he deserves better care than this. I'm worried that I'll go through the hassle of moving him and another place with be just as bad.

 

[Ioan]

Hi, my husband has Alzheimer’s and I feel like I’m dying. Sorry.

No need to say sorry, we all have good days and bad days. The support here can help you have more good days.

 

[Izzy]

Welcome to the forum @BettyBoo222.

I’m sorry to read about your dad. It must be heartbreaking. Have you had a meeting with the management of the home regarding your dad’s care? I haven’t had a loved one in a care home so I’m not best placed to advise. I’m sure others will share their experiences with you.

I’m glad you’ve found this forum. You’ll get understanding and support here.

 

[Bevhar]

Hi, my husband has Alzheimer’s and I feel like I’m dying. Sorry.

Hi my husband has been diagnosed it is heartbreaking Life changes so much This forum is my lifeline Hope you have friends & family for support I’ve joined various groups for my husband & I together He also goes to a group all day on a Tues & I go to carers groups When I have a bad day I get on here and have a rant I find it helps

 

[Lupat]

Hello, I'm new to the community and mostly trying to find some mix of support, useful information, and feeling less lonely in this struggle. My dad was diagnosed 3 years ago with Mild Cognitive Impairment which is not yet understood whether it's Alzheimer, Parkinson, both, something else (he is followed by good doctors, but I am told it is not always easy to distinguish when there is a mix like he seems to have). In any case, he's getting much worst real quick, I know every person has a different rhythm of deterioration, but this is certainly one of the many difficult-to accept, heart-breaking aspects. It's also difficult to balance hope and realism, and each time enter in the new phase without completely despairing. Seeing him suffering is simply too painful. I do a mix of gratitude exercises, I profit from every good second we have, I read all what I can and try to learn all what I can as fast as I can, but then I also simply feel desperate and powerless.

 

[Kevinl]

Well hello and welcome from me Lupat, I can only say that the first 10 years are the hardest, that and thank you for all you're doing, it isn't easy, thank you. K

 

[Izzy]

Welcome to the forum @Lupat.

I’m sorry to hear about your dad. I’m glad you’ve found this forum and I hope being a member will help you feel less lonely. You can come here to ask questions and share your concerns. You’ll always find someone ready to listen.

 

[Arvandor]

Hello. I'm a 47 year old man looking after my mother who has both Alzheimers and Vascular Dementia. Me and my brother are looking after her together. It's just the three of us, there's nobody else. And we are starting to struggle.

 

[Grannie G]

Welcome to the forum @Arvandor

Do you know you are entitled to help and support?

There may be no one else in the family but the social services will enable you and your brother to get some help and support. Have you had a carers assessment?

Carer's assessments - Social care and support guide

See if you can get support from your council, such as extra money or a break from caring.

www.nhs.uk

 

[easywanderer]

Hi, my husband has Alzheimer’s and I feel like I’m dying. Sorry.

Hello I am a very new member looking after my wife we go to a couple of meeting which helps
a lot of people including Professional t become friends wit a lady looking after partner to meet up for coffee and chat to help each other if living near in east Hampshire a chance of ocassional days out
If not already d evitbtry a group if it’s. It what you want try,others until you find one you like