Lost my Mum to Vascular Dementia some years ago and now my husband has been diagnosed with Lewy Body. The Neurologist isn’t sure if it’s Vascular or Parkinson’s Lewy Body. His mobility has been an issue for last 6 years with feeling of unbalance and his memory seems quite good but having visual hallucinations quite often. Today he saw our two grown up children and little ones playing in the garden. (Usually he sees strangers or animals) My husband also has dysphasia and gerd which in turn causes chest infections which I believe food or fluids are getting on his lungs. This is worse than his Lewy Body symptoms however, today he said he feels the Lewy Body is coming on thick and fast. He also has seizures when he’s coughing and syncope. I’m concerned as to what and how to deal with this and wondered if anyone else is going through this. I feel anxious and not sure what to expect. Think I need to speak to someone who can give me some straight talking for me to understand as not knowing is causing me anxiety. Any advice would be much appreciated.
