Lewy Body Dementia support

RoseCottageDorothy

New member
Jun 16, 2024
1
0
Hi
my husband has Parkinson’s and Lewy Body Dementia
I moved him from hospital ( he was an inpatient for three months) to a care home.
he is hyper anxious
very scared to do anything wrong and his imagination and delusions are troubling
any ideas to try to settle him?
he has limited mobility too
 

SeaSwallow

Volunteer Moderator
Oct 28, 2019
6,968
0
Hello @RoseCottageDorothy and welcome to the Dementia Support Forum. I am so sorry to read about your husband's Lewy Body Dementia, and the delusions that he is suffering from. These are so difficult to deal with as the person does believe that they are true and nothing you say will convince them other wise.
It is very hard to settle someone in these circumstances. My husband also has LBD and I try to go along with what he says as trying to contradict him only leads to him being distressed and angry. It might be useful to ask his GP if there is any medication that might help.

You might find the attached link about communicating with the memory impaired useful but it is hard to follow it at all times.

I have also attached some information from the Alzheimer's Society's website on delusions and also Lewy Body Dementia.


 

LewyDementiaCarer

Registered User
Mar 5, 2024
87
0
Just be yourself, try and bring a calm, gentle energy into the room when you go to see him.
It's generally better to listen to the imaginings & delusions with an open heart and try to empathize with how they are feeling, I share the attached video often because I find this technique helps a lot personally.

With hallucinations, we've found that clearing the room of clutter and patterned fabrics help a lot, as well as ensuring bright light during the day and dark at night (except perhaps a baby nightlight for sleeping (to avoid shadows).

On top of this, if you are very worried, it's good to speak with the care-home and Dr about medications that may help, eg. anti-anxiety meds can help reduce some symptoms in some people.