Tonight I actually snapped

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Chuggalug

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Mar 24, 2014
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I wonder if you have read this thread.

None of us can adhere to it 24 hours a day, 7 days a week but it helps to understand that we are dealing with a progressive brain disease and not a person who chooses this way of life.

Hope this helps.

http://forum.alzheimers.org.uk/show...ionate-Communication-with-the-Memory-Impaired

Gernuft, that's exactly what I was going to say. You know, we are all left in a situation where someone with a brain sickness is suffering.

Someone, please tell me what people's reactions would be if we were with a person suffering from a tumour? I think we all agree that responses from everyone would be different. But because it isn't, we just keep getting the runaround. That's not right. Our people are ILL and they need HELP just as much as someone would, for instance with a broken leg!

There might not be a cure for dementia, but it cannot be right for our sick parent or spouse to go without medical help whatsoever, and this is what you are trying to fight, Dave. It's what I've been trying to fight. I'm sitting here with my heart in my mouth reading yours and everyone else's responses. It's not just a memory fault we're dealing with. This is something that's probably going to take over their whole bodies. And that's what we need to prepare for. That's what I tried desperately to do research on. And I hope you still have enough strength and courage to keep fighting. Time to hold your head up high in an impossible situation none of us are trained to live with, but live with, we must. Sorry for banging on, but I've lived a lot of this as well. I'm going to read that link.
 

Dave K

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Apr 14, 2014
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SS. What a laugh

She, came asked her what her name was, her date of birth, how many kids she got and how is the prime minister now

Well, she got them all right so she actually said that wife does NOT have a memory problem so could do nothing

I asked here to close the door on her way out
 

Rageddy Anne

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Feb 21, 2013
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Oh no! So SS' have got their tick in their box, and all's right in their world. Well, we've read in the papers about mistakes by some SSs that have been disastrous!

Others, with more experience than me, will have suggestions, but THIS CANT BE RIGHT!

My first thought is for you to find out how to get a Carers Assessment ASAP.

Hug Zeuss and go for a walk with him if work permits. I think you need some fresh air.
 

Onlyme

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Apr 5, 2010
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.????

Where did she get her medical qualification from to be able to make a statement like that?:mad::mad:

I can only suggest you go to your Dr and get yourself declared not able to look after her due to carer breakdown.
 

jellyfish

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Apr 30, 2014
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Dave, demand to speak to the manager of social services plus speak you your councillor particularly one that is a cabinet member for adult social services. Maybe they can intervene in your behalf. You have to keep fighting if you can for recognition and help xxxx
 

di65

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Feb 28, 2013
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new zealand
SS. What a laugh

She, came asked her what her name was, her date of birth, how many kids she got and how is the prime minister now

Well, she got them all right so she actually said that wife does NOT have a memory problem so could do nothing

I asked here to close the door on her way out

Words fail me:eek::eek::eek:

How DARE she spend such a short time and make such a statement. There is SO much more to this disease than remembering when you were born.

PLEASE follow this up with her superiors and also other agencies.

It is a wonder you can't hear me fuming all the way across the oceans
 

Sheepteach

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Sep 4, 2011
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Somerset
.????

Where did she get her medical qualification from to be able to make a statement like that?:mad::mad:

I can only suggest you go to your Dr and get yourself declared not able to look after her due to carer breakdown.

Totally agree with Onlyme.

Dave, I have been lurking on this thread for some time now not knowing what to say and sometimes reading it with my heart in my mouth.

Nearly20 years ago after the birth of my first son a very lovely and wise health visitor reminded me that I had to look after myself first so that I was able to look after my new family.

I now have 4 teenagers one of whom is suffering from depression and he has/is experiencing some of the very same feelings that you have expressed.

I think that now it is time for YOU - your feelings are raw and real. Please see your GP ASAP and you will be doing the best for BOTH of you. Best wishes, Sheepteach.
 
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AlsoConfused

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Sep 17, 2010
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I'm so sorry the SS worker was so badly briefed, Dave. She hasn't been of any use at all and she's left you feeling gutted.

We know you're exhausted - but please ask SS for the email addresses and telephone numbers of the SS Manager and Duty Officer and send them immediately copies of the whole of this thread. You can't care any longer without a break because you're having suicidal thoughts - you'll leave your wife to their care today as the least worst option.

Also 'phone the police and tell them the same thing (send them the thread too). Say you'll be leaving the house by a particular time this afternoon, won't be coming back any time soon and please could they keep an eye out to make sure SS come for your wife (who is vulnerable and can't be left on her own)?

I'm afraid the lack of help you've received so far means you're being pushed to the brink ... which is why those who should be helping you have to realise you're not going to be pushed over it and they'll have to take over or face the consequences. This is all deeply unfair on your wife but it will not help her if you're finally pushed beyond your ability to cope.
 

Chuggalug

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Mar 24, 2014
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SS. What a laugh

She, came asked her what her name was, her date of birth, how many kids she got and how is the prime minister now

Well, she got them all right so she actually said that wife does NOT have a memory problem so could do nothing

I asked here to close the door on her way out

Dave, been there, done that, I forget how many times. How on earth can ANYONE see the illness from that set of questions? It's stupid.

I was told blood tests might reveal the situation. Could you ask your GP to run some tests?
 

di65

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Feb 28, 2013
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new zealand
I'm off to bed now (11.10pm NZ time). I hope that when I check in in the morning things have improved for you Dave

:):):)HUGS:):):)
 

Rageddy Anne

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Feb 21, 2013
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Cotswolds
If you run your business from home I'm not sure if you can just walk out of the house, and anyway, wouldn't that leave your son with the problem of your wife?

Is your GP the sort that would help? Suppose you rang the surgery and shout that you are feeling close to suicidal, and maybe he/ she will have some suggestion.

Oh Dave!
 

bilslin

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Jan 17, 2014
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Hi Dave things are not getting any better for you mate. HOPE you get some joy from the GP. Keep posting Hun, you need some help lets hope the GP steps in for you and your wifes sake. blimey ss got it well wrong. Thinking of you Dave your one of the TP fam. lindax
 

flowerpot

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Jul 27, 2010
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Oh Dave I can't believe it :( Well I can actually as anyone not knowing my MiL wouldn't think she had dementia either as she presents so well :( She knows her date of birth and that she has two children not sure if she'd know anything about the PM though ;)
Seriously though you need someone else to do an assessment and this person needs reporting for incompetence :what:
Thinking of you x

Sent from my XT1032 using Talking Point mobile app
 

Dave K

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Apr 14, 2014
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Barnsley (UK)
Thanks everyone

I am going to give up looking for help

I am not going to suffer in silence though as I have a great big set of headphones so |I am going to listen to music all day long

Incompetence is a too a mild a word to what I witnessed this morning from SS

I am furious, my Son is bemused and his girlfriend is saying nothing (bless her) she must feel awkward

Wife is out on her bus trips to the shops probably telling everyone that she has been told that she does not have a memory problem and Dave (me ) was wrong all along. I bet she does not forget this :D

Now I am messing about with her phone to take me and my Son's (his choice) contact details out of her phone so there will only be 3 contacts she can call (her 3 kids)

Like my Son has just said to me, if she wants to keep calling them then let her, at least when she is doing that she is leaving you alone

Good one Son :)
 

Grace L

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Jun 14, 2014
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NW UK
I can't not comment, I am SO cross for you !!!

SS giving your wife what sounds like a mini MMSE is not acceptable.
And deciding for herself that she does not have a memory problem !!!
I'll call her a Madam... to be polite.

Even in the mid- stages, if you asked my husband his date of birth, he could say it 'in numbers',
as in 12. 34. 56 but not, actually his date of birth '27th June 2014', or convert this information
into how old we was.


And when asked who the Prime Minister was, he swore and said yes, that t****r B**** !!
How with VaD did he manage to get that right ?, not the name calling, but the Minister.

He still knew his brothers names, but not mine, his wife, carer, and used to call me his PA, if the Doctor asked.

Just because your wife was able to answer a few random questions, does not mean this is over.

Take care
 

Beate

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May 21, 2014
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London
How is a social worker medically qualified to assess dementia? A GP has to do that so if your wife has no official diagnosis yet get her one as a matter or urgency. Ask your GP for a referral to a specialist/memory clinic, whatever it is in your area. But in the meantime badger SS again, go to the head and say your treatment has been unacceptable.
 

SoyHJ

Registered User
Mar 16, 2013
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Dave, I daren't put into words on here what I think of that person who came to you. Please don't give up, it seems to be a case of 'luck of the draw' as to whether the person you see is helpful or not. My OH is nowhere near the stage of your wife and when he was asked those sort of questions he happily replied correctly, possibly better than I would have done myself. I thought, that's it, forget it, he's coming over just fine. Same with chatting to neurologists and neuropsych people. They saw through it, Dave. I wasn't asking for help as you are but needed a confirmed diagnosis. His responses didn't pull the wool over their eyes probably because they were not some supposedly qualified and trained social worker who hasn't a clue.

I just want to tell you this to remind you that there ARE people out there who can help and you need to keep trying till you finally get someone who understands. Sorry if this doesn't help much but I really am thinking about you.
 

Karjo

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Jan 11, 2012
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My heart goes out to you as I think what will happen now is you will be in the situation of waiting for a crisis to happen, without any clue as to what the crisis will be and what the repercussions will be. Things will change but for now without help , you need to look at protecting both of you. For instance, take a cold and calculated look at your finances, how you can survive when the crisis comes as it no doubt will, how will care be financed as the way your wife is it will come to it. Take a look at your emotions that will also be running riot, try and forgive the other family or else the anger and unfairness of it all will eat away at you. If your wife is driving you demented then walk away for a while though I am sure you do this already.

I don't know your circumstances but if she is still deemed to have capacity (and sounds like she is after the SS visit) then now is the time to get power of attorney, wills, mortgage, house etc sorted. Look at carers allowance and attendance allowance if you haven't already got them. Look at how you can pay for help to keep your job going. It may sound ruthless but you have to keep the money coming in to survive thereby keeping options open for you both. It's a lot to think about and I know the situation keeps changing, emotions are raw and we just don't know what is coming next, and the person who used to be our ally and support now seems to be the enemy. Just spend a little time on these things as otherwise it will seem to enormous to even start. I always used the phrase "how do you eat an elephant" to keep me going, the answer being "bit by bit", and several years later I am still chewing.
You will need to probably pander to your wife's every whim to make sure you can get some of this in place, you may feel a bit of a traitor as there is an ulterior motive, but I have been in a similar situation, still am actually. In the long run to face and sort the mess is in both your interests, Try and get some lists done of what you now personally need to achieve and how it could be achieved, so you are prepared as best you can for whatever happens.
Your wife sounds like a wanderer and while she has capacity you can't stop her-use your imagination to think of different scenarios that may occur and how you could cope. No doubt whatever you imagine will not occur, something else you didn't think of will bite you on the bum! But at least you will have tried. Hide the passports, matches, lighters, power tools, keep a check on bank cards, cash withdrawals, keys, anything of value, paperwork, your work stuff-all are at risk. Keep up to date photo of her, warn the police, make sure the house has smoke detector, switch off anything you need to if you leave her on her own. You will never get to the end of the list and she will no doubt still "outwit" you but you need to think damage limitation.

Unfortunately your wife is in that terrible in between stage. They can still remember things and use things, find their way around, know date of birth etc and for that reason they are deemed to have capacity to make their own decisions. In one way you can understand the reluctance of those in authority as until there is proof that the person is a danger to themselves or others they are deemed to be able to make decisions for themselves, even if unwise decisions.
My mum was very clever passing MMSE's and still is clever/manipulative in some respects, but in the end she couldn't keep it up. Having to take her car from her "tipped" her over the edge, the crisis we were told would happen happened, and events took with her being sectioned. That was over two years ago and its still bad as really she wasn't ready to be "locked up", so I can understand why SS are so reluctant about human rights, but unfortunately our rights seem to be lost in all this, yet we have all the responsibility.
I am really sorry if this doesn't mAke sense as i haven't got the time(that is a problem for all of us i am sure) to make sure I get this right, and i sincerely hope I have not offended or scared anyone and caused further distress at the thought of where this might lead, but I wish I had been better informed when similar happened to me.
best wishes.

Sent from my iPad
 

Chuggalug

Registered User
Mar 24, 2014
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Norfolk
Karjo, I won't repost your response, but please allow me to tell you, you've done everyone a big fat favour in these lists of reminders. This thread belongs to Dave so I won't say more, just that I appreciate what you've said.
 
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