Hello Sarah, so sorry to hear about your situation it is just so cruel! I spoke with the children yesterday and was as honest as I could be and have informed the schools, who have said they will keep an eye on them for me. I know it may sound like a silly question but I’m really worried about having to give up work to care for him as we don’t have much support but I have looked into financial help and don’t think we would manage. Is there any care you are entitled to so I could stay in work a couple of days still? Thank you so much for replying and here if you ever want to talk xxHi my husband is 50. He was diagnosed at 48 with Frontotemporal dementia. This was after a lot of arguing with the gp who initially treated him for depression and stress. We have 2 children age 7 and 11.
I was honest from the start with them and they know that lots of things aren’t daddy but his dementia. I told school straight away and they have provided wonderful support.
I got power of attorney immediately snd it was the best thing I did. Along with wills. My husband has deteriorated rapidly and we are now looking at residential care and without power of attorney it would have been horrendous.
He had to stop working when he was diagnosed, he had struggled for months before anyway so getting PIP applied for, universal credit in our case (I have had to reduce my days in work to 2 only now to meet all the needs of the children and him) these were essential.
Basically all the practical stuff asap and in my case, for my children, honest answers and information from the start.
It’s very hard. But forums like this are so helpful.