Oh and last week I was concerned my dad wouldn't agree to no more hospitals, but the GP asked him when I wasn't there if he'd want mum sent to hospital or keep her at the home and he said, no, keep her at the home,
Thank you and I’m sorry to hear about your mum. I didn’t know if it’s good or bad when it happens quickly, I suppose it must be good if it means less suffering. It’s just selfish reasons really that you always want a little more time.Thinking of you @Missodell18. I knew my mum was at end of life but thought she'd rally a bit. I had a phone call with the doctor about end of life medication and from what she said I thought we had a week or two more. Twenty minutes later the home rang to say mum had passed away.
Hopefully your dad will be able to be there before he goes into hospital for his operation.
Oh my I’m so sorry to read your update. It seems that this journey is one thing after another for us all.We're still here, but things still very up and down.
The CHC funding assessment was supposed to be today, however the nurse at the home requested fast track as she believes my mum is now deteriorating quickly. This was done BUT on the wrong form! (You couldn't make it up, could you?!) so we were sat on the meeting (online) waiting to find out if Fast track would be granted or if we'd have to do the assessment. They decided after a while they would cancel the assessment and it's assumed Fast Track will be granted now, until the end of March (at which point we may have to do the assessment if Mum is stable-ish). Doesn't everything to do with this stuff seem so needlessly complicated?
My mum is eating/drinking very little now. My dad has some success, the nursing home staff say she's not swallowing, just holding food in her mouth. Same with medication, although again my dad can get her to take pills okay.
Tomorrow my dad will be going to hospital for a lung operation on Friday. He'll have to be in hospital at least 3 days but could be up to 7 or maybe longer depending on how he recovers. I'm dreading something happening to mum while he's in hospital.
I’m so sorry to hear what’s happened. It really is an awful roller coaster. As soon as you think you might be out of the woods with something, another thing happens. I wish your mum a speedy recovery and hope you have some more peaceful and settled time with her.Oh my I’m so sorry to read your update. It seems that this journey is one thing after another for us all.
I hope that your Dad will be ok and that your mum holds on until he is out of hospital. Thinking of you.
My update is also a rollercoaster. Mum had about 5 good days in the Nursing Home and celebrated her bday. She’s eating 3 good meals a day ( puréed) but has an appetite and asks for more.
Then on Friday and Saturday she seemed different and unwell. Diagnosed with neck cellulitis and blue lighted to hospital. Returned after a drip antibiotic to Nursing Home and told it wasn’t as bad as they thought. Next day she was amazing and chatty and happy … following day I went and she was in pain and upset. Turns out catheter had blocked and she had a UTI! Now on super strong antibiotics making her throw up! Oramorph prescribed but not being used as pain under control. No idea how close we are to the end or if this is just another blip in the road. She was given an estimate of max of 3 months a month ago… I’m so drained and confused
Oh @Missodell18 I am sorry to read this. I'm afraid I cannot offer any advice. Are you able to stay and shower at the home if you're worried about going home? I hope it's not too distressing for you and your dad. I'm sorry I can't be more help or supportive. Take care - you will make the right decision for you xxIt’s looking like the end of the road is near for us. I’m wondering if I dare go home for a little while and come back early in the morning. I don’t know what to do for the best really. My mum is similar to how she was before but we’ve made the decision not to send to hospital again now. She’s breathing very rapidly - she did this before. I feel quite helpless