A life in the day of.........................
- Thread starter Grannie G
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Hi Sylvia,
I hope Dhiran is a little less confused this morning. You must be tired out ...I found the interupted sleep one of the most difficult things to deal with....I hope you can get some rest today.
Love
Judith
I hope Dhiran is a little less confused this morning. You must be tired out ...I found the interupted sleep one of the most difficult things to deal with....I hope you can get some rest today.
Love
Judith
Sylvia my love.
We all try to live by Norman's "Day by day" maxim.
In your case, with Dhiren, it seems more like "hour by hour"
Do sincerly hope today is less stressful for you both than last evening was. Love
We all try to live by Norman's "Day by day" maxim.
In your case, with Dhiren, it seems more like "hour by hour"
Do sincerly hope today is less stressful for you both than last evening was. Love
We went for a walk along the cliff tops. I could have done without it, I was tired and felt heavy and lethargic, but he wanted to go and was beginning to be restless.
So before we went, I finished the ironing and part prepared tonight`s meal, just in case I was too tired when we got home. He sat and waited...............
had a little doze and woke refreshed.
We had a lovely walk, the fresh air and exercise woke me up and I was glad I`d gone. He enjoyed it too and said it was the best place in the world, quiet, peaceful, clean and flat, easy to walk, wonderful.
We arrived home tired, but he said it was `good` tiredness. We would go again tomorrow.
And then.............
D `What am I doing here?`
D `I`ve got to get away.`
D `I need to see a doctor.`
D ` Where does Paul live? I want to ask his advice. I`m getting worse every day. I want to see a specialist. `
S `He`s at work.`
D `What time does he get home?`
S `Please don`t mither him when he gets home from work. He`ll be tired.`
D `I need to see him. You won`t help me. You only think of yourself.`
S `You`ve seen a specialist and he is doing everthing to help you.`
D `Who did I see?`
S `Dr. ****.`
D `He`s no good. he Hasn`t helped me. I want Paul`s advice to see someone better. I`m going there now.`
S `I`ve told you he is at work.`
D `I`ll go when he comes home. Where does he live?`
S `Oh do what you want, I`ve had enough of this.`
D `It`s me, me, me with you, isn`t it? You only think about yourself.`
You are right Connie, it is hour by hour.
So before we went, I finished the ironing and part prepared tonight`s meal, just in case I was too tired when we got home. He sat and waited...............
had a little doze and woke refreshed.
We had a lovely walk, the fresh air and exercise woke me up and I was glad I`d gone. He enjoyed it too and said it was the best place in the world, quiet, peaceful, clean and flat, easy to walk, wonderful.
We arrived home tired, but he said it was `good` tiredness. We would go again tomorrow.
And then.............
D `What am I doing here?`
D `I`ve got to get away.`
D `I need to see a doctor.`
D ` Where does Paul live? I want to ask his advice. I`m getting worse every day. I want to see a specialist. `
S `He`s at work.`
D `What time does he get home?`
S `Please don`t mither him when he gets home from work. He`ll be tired.`
D `I need to see him. You won`t help me. You only think of yourself.`
S `You`ve seen a specialist and he is doing everthing to help you.`
D `Who did I see?`
S `Dr. ****.`
D `He`s no good. he Hasn`t helped me. I want Paul`s advice to see someone better. I`m going there now.`
S `I`ve told you he is at work.`
D `I`ll go when he comes home. Where does he live?`
S `Oh do what you want, I`ve had enough of this.`
D `It`s me, me, me with you, isn`t it? You only think about yourself.`
You are right Connie, it is hour by hour.
Sylvia, I feel so very sorry for you both
Can only hope that the next few hours are restful for you both. Love,
Sylvia, your patience must almost be exhausted. Dhiren, well I would not like to have his troubled mind.
Can only hope that the next few hours are restful for you both. Love,
Thank you Connie.
It`s the only thing that stops me screaming, the thought of his troubled mind. If I were in his position, I don`t know where I`d be or what I`d be doing.
He is now looking in drawers, for what, I`ve no idea, and has just told me this house is like a concentration camp. I suppose as a concentration camp is the worst thing imaginable, so Alzheimers is the worst condition imaginable.
Love xx
It`s the only thing that stops me screaming, the thought of his troubled mind. If I were in his position, I don`t know where I`d be or what I`d be doing.
He is now looking in drawers, for what, I`ve no idea, and has just told me this house is like a concentration camp. I suppose as a concentration camp is the worst thing imaginable, so Alzheimers is the worst condition imaginable.
Love xx
Sending you a big [[[ hug ]]]].
I remember dad saying to me he wished he had had children, he would have liked children, it came as such a shock, so i said i am your daughter, we both sat there crying. He must have felt so upset he had forgoten me as i felt of being forgotten. Look after yoursef too, it must be so difficult sometimes to be strong for the two of you. [Hugs] Jan.
I remember dad saying to me he wished he had had children, he would have liked children, it came as such a shock, so i said i am your daughter, we both sat there crying. He must have felt so upset he had forgoten me as i felt of being forgotten. Look after yoursef too, it must be so difficult sometimes to be strong for the two of you. [Hugs] Jan.
Dear Sylvia, I'm so sorry to read about your painful day today. It seems almost doubly cruel when you have shared some good things together like the walk, only to find that D reverts back so soon into that 'other' self. If only one knew what triggered the 'back slide'. If only one could predict or avoid or forestall. So heartrending to read this. I'm really sorry, and hope that tomorrow brings a more restful day for you both. Love Deborah xx
ee
Dear Sylvia,
Am sitting Here with tears in my eyes.
Thought I'd read your post before..........
Have just hit the wall with Dee who is totally convinced something is right - but it's so so wrong but I cannot change her mind - after several hours of repeating the same facts
Haven't faced this before and understand exactly how you must be feeling
Very nearly lost my temper - then I thought of you talking to Dhiren.
So grateful for TP and all of you
With love
Dear Sylvia,
Am sitting Here with tears in my eyes.
Thought I'd read your post before..........
Have just hit the wall with Dee who is totally convinced something is right - but it's so so wrong but I cannot change her mind - after several hours of repeating the same facts
Haven't faced this before and understand exactly how you must be feeling
Very nearly lost my temper - then I thought of you talking to Dhiren.
So grateful for TP and all of you
With love
Hi Sylvia,God bless you and dihren.You are amongst one of the most amazing carers on this site that i have never met.Your tolerance,stamina and fellings for others is outstanding even when you are having it tough.i bow down to you and other site members who have to live with this day in day out.I hope tomorrow is a better day for you both and i also hope you lot are around when the disease progresses with my dad.love and thoughts to all of you who are dedicated carers to say the least.love elainex
Dear Cliff, I am so grateful that Sylvia's experiences are helping you.
Goodnight, God bless.
One of the most positive reasons to post on TP. Relieves your stress, and can help others.
Think that is engraved on my heart.
Goodnight, God bless.
Dear Connie,
Apologies to Sylvia for using her thread, but after a really difficult day - the worst I've had - tucked Dee into bed and she was her normal loving self.
And I was feeling better for posting here.
Love to you and Sylvia and Dhiren
Apologies to Sylvia for using her thread, but after a really difficult day - the worst I've had - tucked Dee into bed and she was her normal loving self.
And I was feeling better for posting here.
Love to you and Sylvia and Dhiren
Thank you Sylvia.
Not sure what is happening but Dee is now on an uprated dosage of Reminyl. There is greater clarity in her words but imagined situations are much more intense. We'll see as the days go by.
Am so grateful to you for expressing your thoughts and conversations here on TP - it's been so helpful for keeping my emotions under control.
Love to you and Dhiren - do hope he finds some quiet peace in his mind for both of you.
Not sure what is happening but Dee is now on an uprated dosage of Reminyl. There is greater clarity in her words but imagined situations are much more intense. We'll see as the days go by.
Am so grateful to you for expressing your thoughts and conversations here on TP - it's been so helpful for keeping my emotions under control.
Love to you and Dhiren - do hope he finds some quiet peace in his mind for both of you.
Thank you Cliff.
There is no peace in Dhiren`s mind at this moment. He is deeply concerned about his state of mind and very troubled.
He has lost interest in TV and the papers he continues to buy every day are left unread.
He sits with his head in his hands and pretends to sleep, so I do not disturb him. Or he grows restless and wants to keep going out.
He thinks his days are numbered.
But tomorrow may be different.
There is no peace in Dhiren`s mind at this moment. He is deeply concerned about his state of mind and very troubled.
He has lost interest in TV and the papers he continues to buy every day are left unread.
He sits with his head in his hands and pretends to sleep, so I do not disturb him. Or he grows restless and wants to keep going out.
He thinks his days are numbered.
But tomorrow may be different.
Hi,
I read your messages on this thread, I simply cannot respond because I am just not in your situation, and anything I say would be trite. Just to say that there must be lots of people like me out on this website who read your histories, and feel for you so much, but don't post any replies because we are just not in your league. Nothing we can say will help.
But we are still with you all of the way.
And we learn a lot from what you say, for the time when we need your experience to draw upon for ourselves.
There are some very brave people on this site. I am proud to be involved with it.
Love to you all
Margaret
I read your messages on this thread, I simply cannot respond because I am just not in your situation, and anything I say would be trite. Just to say that there must be lots of people like me out on this website who read your histories, and feel for you so much, but don't post any replies because we are just not in your league. Nothing we can say will help.
But we are still with you all of the way.
And we learn a lot from what you say, for the time when we need your experience to draw upon for ourselves.
There are some very brave people on this site. I am proud to be involved with it.
Love to you all
Margaret
Just to say that I agree with Margaret. She has expressed my own feelings very well. Here's wishing you and Dhiren both a very peaceful day today. Love Deborah xx
Thank you Margaret and Deborah.
I just write it as it happens, to put it in perspective for myself really, so when things get tough I can focus on the illness and the person, and how he is suffering. In some way it makes it easier to bear, I don`t understand why.
This morning on waking............
D `How long will we stay here?`
S `We live here.`
D `So we are here permanently?`
S `Yes.`
D `Who owns this house?`
S` We do.`
D `How could we afford it?`
S `We sold our old house to pay for it.`
D `What income do we have?`
S `We have our pensions.`
D `Is it enough to live on?`
S `Quite enough.`
D `Sometimes you have to be lucky in this life.`
Later............still in bed..........
D `This is B********** isn`t it.`
S `Yes.`
D` We came here from Bury?`
S `That`s right.`
D `How long have we been here?`
S `5 years.`
D `So long? I can`t believe it. And we live here permanenetly?`
S `Yes.`
D `And this is our house?`
S `Yes.`
D `How do we pay the mortgage?`
S `We haven`t got a mortgage. It`s all paid for. Lock, Stock and Barrel.`
D laughing, `Good. It`s a nice place, quiet and peaceful. I`m glad we came.`
S `You will never know how much pleasure it gives me to hear you say that.`
D `Have we got a mortgage?`
S `No. Everything`s paid for. We owe nothing to anyone.`
D `Does Paul live here?`
S `No he lives in his own house.`
D `Where`s that?`
S `Just down the road, a few minutes walk away.`
D `He`s married isn`t he?`
S `Yes. He has 3 children.
D `I remember now...........What`s the plan for today?`
S `I thought we`d get the jobs done and go to the West Cliffs for a walk.`
D `I`ll get up and go for the papers first.`
I just write it as it happens, to put it in perspective for myself really, so when things get tough I can focus on the illness and the person, and how he is suffering. In some way it makes it easier to bear, I don`t understand why.
This morning on waking............
D `How long will we stay here?`
S `We live here.`
D `So we are here permanently?`
S `Yes.`
D `Who owns this house?`
S` We do.`
D `How could we afford it?`
S `We sold our old house to pay for it.`
D `What income do we have?`
S `We have our pensions.`
D `Is it enough to live on?`
S `Quite enough.`
D `Sometimes you have to be lucky in this life.`
Later............still in bed..........
D `This is B********** isn`t it.`
S `Yes.`
D` We came here from Bury?`
S `That`s right.`
D `How long have we been here?`
S `5 years.`
D `So long? I can`t believe it. And we live here permanenetly?`
S `Yes.`
D `And this is our house?`
S `Yes.`
D `How do we pay the mortgage?`
S `We haven`t got a mortgage. It`s all paid for. Lock, Stock and Barrel.`
D laughing, `Good. It`s a nice place, quiet and peaceful. I`m glad we came.`
S `You will never know how much pleasure it gives me to hear you say that.`
D `Have we got a mortgage?`
S `No. Everything`s paid for. We owe nothing to anyone.`
D `Does Paul live here?`
S `No he lives in his own house.`
D `Where`s that?`
S `Just down the road, a few minutes walk away.`
D `He`s married isn`t he?`
S `Yes. He has 3 children.
D `I remember now...........What`s the plan for today?`
S `I thought we`d get the jobs done and go to the West Cliffs for a walk.`
D `I`ll get up and go for the papers first.`
Such a strange thing......memory.
Yesterday we took our repeat prescriptions to our regular Pharmacy to be made up. En route, we noticed a new `bigger and better` pharmacy has just opened.
We had a short discussion about our regular Pharmacy possibly being concerned about such threatening competition.
This morning I said that after we`d walked, we should go tp pick up our medication from the Pharmacy.
` They must be worried now, with competition fron the new one that`s opened, `said Dhiren.
How did he remember that, when he doesn`t remember what he said 2 minutes ago?
Yesterday we took our repeat prescriptions to our regular Pharmacy to be made up. En route, we noticed a new `bigger and better` pharmacy has just opened.
We had a short discussion about our regular Pharmacy possibly being concerned about such threatening competition.
This morning I said that after we`d walked, we should go tp pick up our medication from the Pharmacy.
` They must be worried now, with competition fron the new one that`s opened, `said Dhiren.
How did he remember that, when he doesn`t remember what he said 2 minutes ago?
I really don't know Sylvia, but I DO know that the most unlikely things are remembered. Not the most important things, not the things that should be close to the heart, just random stuff. Very confusing for everyone, not least the auditor.
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