Morning everyone x
Managed to have a read and a bit of a catch up - Red, fab that you are getting back to the OU
I hope you enjoy every minute of it. I'm not able to take on many weddings at all now - mainly Mil, but also partly the issues with my stupid back, a 12 hour day lugging my gear round leaves me in a lot of pain for several days now - so I'm playing with the idea of doing some sort of course/study, just to give me some 'dementia free' time. Hadn't thought of the OU, but may have a bit of a nosy and see whats on offer. That was a lovely account of your OH and him being able to give that lady a break - I can imagine how much she must have appreciated that xxx
RAnne - I'm glad you've had a little bit of a break, hun, but so sorry you are having such a tough time at the moment. At least I can sometimes get respite - my heart breaks knowing that at the moment all you can get is that one day a week (and sometimes not even that!). The respite situation for so many is just completey unacceptable
xxxxxx
Slugsta, its sounds like you are on the mend, but hopoe you continue to take it easy until you are full recovered xxxx
JM, I am heeding what you are saying about taking it easy and about how long this lurgy can linger, and I am trying to follow the advice. Even without Mil, though, you know how hard it is for Mum's to 'take it easy'! I had a 'mini-melt down' at the zoo with my gang, partly because there was a certain attitude that Mil being absent was all the break I needed, and that with her not being here for those few days, I was quite OK to carry on and do everything else. My girls are NOT the tidiest of creatures, and after picking up after them for several days and not having any of them do so much as offer to do the dishes (without being asked) let alone offering to help with anything else, them moaning about me stopping to take photographs really got my back up and I let fly. The message got through, but I was so annoyed that I had to actually point out to them that a little more help would be appreciated whilst I've been so poorly!
We love taking off for a drive here, stopping as and when we want and exploring new places. I loath motorway driving myself, and don't even particularly enjoy travelling on them as a passenger - not enough chances to stop if something catches your eye, and everything gone in a blur. And I love camping - finding out of the way places and exploring, as long as I can grab a morning shower and the tent/camper van doesn't leak, then not even bad weather bothers me
And I love being away from the TV and phone - the rest of the family pull a face if there is no signal and no wifi, but as long as I have my camera and a couple of books, its my idea of bliss! Old Red is ideal for just 'taking off' in, I think - even for just a day out.
Mil did her usual trick of waking about 9.30-ish and wanting food, then returning to her bed for a couple of hours yesterday. I was 'Mum' and OH was her brother, when she first got up and she several times asked me if I lived 'here' now - not sure what was going through her head, tbh. When she got up for the second time at about midday, we had 'Little Miss Demanding'. I made her a cuppa (as she requested) but then she wanted toast 'right now' - as I've said before, at a weekend I use her wanting food as a lever to persuade her to at least have a wash and change her pull ups, and yesterday in particular, I wanted to get her into the bathroom. Her hair was pretty matted (I'm assuming from the state of it that they had't been able to get her to have it washed whilst she was away), she didn't smell at all fresh and her breath (which we had noticed the night before) was bad enough to bowl you over. But Mil initially refused to wash - no point, she said, she was going back to bed and didn't want to and nothing I could say would sway her. I tried dangling her regular visit to Shirls - she told me she wasn't going - because she hadn't 'crawled in to bed' until after 2a.m. the previous night as she 'and the girls' had stayed late at the dance - and anyway, Mil insisted, Shirl had had a 'skinful' the night before and Mil doubted that she would be up because she probably had a 'right head' on her ! I managed to stop her kicking off, but stuck to my guns of 'lunch only AFTER washing', so in the end, she flounced off back to bed for another hour and a half.
When she came down for the 3rd time, she was in a really snappy mood, quite rude and still with the 'Fetch me, give me NOW' tone about her. OH and I had to join forces to get her to agree to washing - honestly, you couldn't get within 3 feet of her before her breath made you feel like choking. Very reluctantly, she eventually agreed and up to the bathroom we went. The night before I'd also clocked that there had been a dressing applied to the area on her leg where she had had the bad skin tear in October, but she had been so tired I hadn't pushed her to let me look properly. I took the opportunity to now have a proper check over of it - her leg was a mess
Skin around it red and very dry and quite hot to the touch, it looked as though she was on the point of cellulitus again. I bathed the leg and applied aqueous cream, and I honestly don't think that although I'd sent a small tub in with her to respite, that any had been applied whilst she was away
I think she must have picked at or knocked the leg again (hence the dressing) and I was quite concerned that it might be starting with an infection.
She really struggled with following instructions to wash herself, poor thing didn't have a clue and needed a lot of help. Her buttocks had quite angry red patches on them, which she kept trying to scratch at and under her boobs were pretty red and sore looking too.
The she took her teeth out to clean them - and cast-iron stomach or not, even I was on the point of heaving. The underside of the plate was thick with the most disgusting 'sludge', absolutely stinking
I've had periods of up to 2 days where Mil has resisted cleaning her gnashers, but even then, I've never seen her dentures in that state before.
She (reluctantly) agreed to have her hair washed, and then decided to get dressed, so after helping her into clean pull ups and her bra, I headed downstairs to sort her egg on toast for her lunch. While she was eating, I finally got around to emptying the small case she had taken to respite. She'd 'lost' shower gel and the tub of cream I'd sent in, and gained a pair of slippers, two flannels and a bottle of perfume! More worryingly, I'd sent in enough pull ups for a twice a day change, plus 2 pairs as spares in case of accident. There were still 5 pairs in the case, meaning that not even they had been changed as regularly as they should have been - which may explain the red patches on her bottom
OK - I know that few residential/respite places are perfect, I know that getting someone with dementia to take care of personal hygiene can be hard, and I know Mil can be 'difficult' - but, what if she had been there for 2 weeks? What state would she have come home in then? I don't mean her hair - a bit of grease won't hurt her - but changing pulls ups, using the aqueaous cream and not getting ehr teeth clean are all issues which could compromise her health and cause her discomfort at the least. And isn't it awful that I know I'm not going to say anything because I just can't risk alienating the home when we are so reliant on them for getting not only respite breaks, but DC too. For our sake and Mil's, I need to keep a good relationship going with them, which means I really feel like I have to just 'accept' that they are not going to be as meticulous as I feel that they should be. And I keep being told by CPN and the odd social worker, and even care staff I know from other establishments, that the home(s) where Mil goes for DC and respite are 'the best' in the area in terms of care and reputation - which, given the state she has come home in, in very bloody scary
Mils mood deteriorated as the day went on. We didn't get any out and out explosions, but there were snappish comments and huffs and sighs. A good long bout of the kitchen loop, more irritating than intense and lots of 'prodding' remarks about 'home'. She was a bit obsessed with what my relationship is to her and to OH - and none to sure about where OH figured in her family tree, either! Our explanations didn't seem to make much sense to her - explaining that I was her daughter in law, she listened intently and then said 'So that means that you are married to my Father?'. 'Home' intensified after tea, so at 7.30-ish when she huffily announced she was going to her room, we just let her go. At 9, I went up and got her to change her pull ups, and applied more cream to her legs and buttocks - the leg was much better, no heat and the redness very much lessened - then got her to come down for her porridge and meds. She went back up afterwards, and not a peep since.
No plans today - will try and sort a few of the latest zoo snaps to post if I get chance - and other than that its just pootling and the Sunday lunch to sort
Hope you all have good day xxxx