• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

Welcome to Talking Point - introduce yourself here

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Lindmand

New member
Oct 4, 2018
3
Thank you for your input karaokePete.
I think the care home left her when she was volatile considering the state we
often found her in .
But yes she may be embarrassed so I do try and talk and coax and distract ...
 

ali.norfolk

New member
Oct 5, 2018
1
My parents live with me, my husband and son. They recently moved in with us which was their decision as they are in their 80s and needed help. My father has been very forgetful for a while but the shock of moving and leaving his home seems to have exacerbated everything. We are awaiting an appointment to visit the Memory Clinic. He is very paranoid, short term memory not good, as soon as he goes to bed is in tears and is very angry and aggressive verbally with my mother. He wakes in the early hours and gets my mother up and shouts for several hours every night. He tells us we are terrible for taking him to the doctors to try to prove he is "insane." Everything seems to be twisted. Am really struggling, I love my father so much. I dont know how to help/support him and my mum who is bearing the brunt of his behaviour. The doctor put dad on anti depressants as he was so depressed (this has helped his mood during the day) and he said there is no more he can do unless his depression gets worse he tested his memory which he has concerns about and referred us to the memory clinic which could take two months or so.

Am sorry this seems like I am rambling just feeling desperate today
 

Grannie G

Volunteer Moderator
Apr 3, 2006
70,405
Kent
Hello @ali.norfolk. Welcome to Talking Point. I hope you will feel you've come to the right place.

When I read your post, you could have been talking about my husband. We relocated from the north west to the south east to live near our son and the move caused so much disorientation for my husband he reacted in exactly the same way your father has. This was in spite of termly visits over a period of ten years to see out grandchildren, my husband being familiar with the area and really wanting to move.

He was also treated for depression for a year before a brain scan resulted in a diagnosis of Alzheimers.

I do hope you get some answers soon. We also had to wait for appointments and if your concern increases I would just give the memory clinic a gentle nudge to let them know your concerns are increasing.

Please start your own Thread in the sub forum Memory concerns and seeking a diagnosis

https://forum.alzheimers.org.uk/forums/memory-concerns-and-seeking-a-diagnosis.26/

All replies to your concerns will be under one heading and so much easier for you to find.
 

Cakelady

Registered User
Jan 30, 2017
3
Hello. I care for my 71 year old mum who was diagnosed with Alzheimer’s March 2017 although she has shown more symptoms of vascular dementia than Alzheimer’s.
She relies on me for so much and I do struggle with fitting everything in as I work.
Last year I took her to Italy as she really wanted to see the Cinque Terre. It was hard work but we both had a wonderful time. Roll on one year and Mum has deteriorated quite a bit but still insists there is nothing wrong with her. She keeps asking me when are we going to Germany. She used to love organising trips to the Christmas markets in Germany and I said to her earlier in the year that I would take her but I’m not sure where to start to even find somewhere that would be ok with having someone with Alzheimer’s stay especially as she is becoming incontinent (mostly at night). Any help would be very much appreciated as I feel this would be the last holiday I could give my mum so want to make it special. X
 

canary

Registered User
Feb 25, 2014
11,384
South coast
Hi @Cakelady and welcome to Talking Point.

Im glad that you and your mum are doing things together while you can and going on holiday is a lovely idea. Im afraid this question is not one of the usual ones and I think that you would be better off posting it under the "I care for someone with dementia" section as more people will see it there and you are more likely to find people who can offer advice.
Heres a link to that section
https://forum.alzheimers.org.uk/forums/i-care-for-a-person-with-dementia.70/
 

Breezer1

New member
Oct 6, 2018
2
Hello. I’m Ros and I’m new to the forum. My Dad, aged 73, was diagnosed with mild vascular dementia in February, although in hindsight the symptoms were evident long before that. I joined the forum because I have lots of questions about how we should be interacting with him so that he and Mum can live as well as is possible. At the moment, in the morning he spends a long time, sometimes over an hour, going in and out of the bathroom instead of having an hour. As far as I can tell he’s unaware of this and I don’t know if we should point it out to him. In fact, should we be pointing out any strange behaviour or just letting it go? He’s also stopped helping out around the house - do we just accept that certain habits disappear should we coach him to continue? Any advice gratefully received.
 

karaokePete

Registered User
Jul 23, 2017
5,120
N Ireland
Hello @Ros Clarke, you are welcome here and I hope you find the forum to be a friendly and supportive place.

Do take a good look around the site as it is a goldmine for information. When I first joined I read old threads for information but then found the AS Publications list and the page where a post code search can be done to check for support services in ones own area. If you are interested in these, clicking the following links will take you there

https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

https://www.alzheimers.org.uk/find-support-near-you

You will see that there are Factsheets that will help with things like getting care needs assessments, deciding the level of care required and sorting out useful things like Wills, Power of Attorney etc.
With regard to the new behaviours I have found it best to leave well alone as long as no harm/damage is being done.

As to tasks around the house, I think it's often a case that the tasks have become too complex and the routine timetable has been lost. I perform the more complex tasks around the house but let my wife contribute where she can - an example would be that I use the laundry equipment but let my wife hang/put away the laundered/dried clothing etc.
 

HEE

New member
Oct 7, 2018
1
Hi my Mum was diagnosed about 5 years ago with Alzheimer's and we have noticed a rapid decline in her short term memory. Poor Dad is at his wits end as the love of his life has become argumentative and nasty tempered. She knows we treat her differently and constantly argued with him about long forgotten (by him) differences and imagined ( by her) new slights she tells us off constantly for treating her like a parcel and not letting her have a car. I joined to get advice should we explain every time that she is not just getting older but has a memory problem that means we have to watch her and can't let her drive . It's so sad my lovely mum is becoming a stranger. Anyone who has been through this and had any advice please reply we don't know what to do
 

Cat27

Volunteer Moderator
Feb 27, 2015
10,668
Merseyside
Hi my Mum was diagnosed about 5 years ago with Alzheimer's and we have noticed a rapid decline in her short term memory. Poor Dad is at his wits end as the love of his life has become argumentative and nasty tempered. She knows we treat her differently and constantly argued with him about long forgotten (by him) differences and imagined ( by her) new slights she tells us off constantly for treating her like a parcel and not letting her have a car. I joined to get advice should we explain every time that she is not just getting older but has a memory problem that means we have to watch her and can't let her drive . It's so sad my lovely mum is becoming a stranger. Anyone who has been through this and had any advice please reply we don't know what to do
Welcome to TP @HEE

You may find this thread helpful https://forum.alzheimers.org.uk/threads/compassionate-communication-with-the-memory-impaired.30801/
 

nellbelles

Volunteer Host
Nov 6, 2008
8,562
leicester
Hello @HEE a warm welcome from me as well.

Could you tell your Mum her driving license has run out and she will have to take another test? It might take the pressure of blame away from you.
 

CelticGhirl53

New member
Oct 9, 2018
1
Hi,I was diagnosed with mixed dementia(vascular and Alzheimer’s) a few months ago.of course it was a shock,but it explained so many things when on occasion I thought I was going mad.im just taking it one day at a time now,it’s so difficult though,if I had a broken arm or leg,people could see you have something wrong with you,but when it’s a mental problem,it’s not so easy.im not the same outgoing person I used to be,which is hard to deal with.but I’m lucky I have wonderful support from lots of areas,so hugs to all carers and especially to everyone with dementia.
 

Sheebee

New member
Oct 9, 2018
1
Hi there,
I have joined this forum as my sister has vascular dementia and I saw all your wonderful questions and answers
Sheebee
 

nellbelles

Volunteer Host
Nov 6, 2008
8,562
leicester
Hi @Sheebee welcome to TP
It is a very supportive forum and I hope now you have found us you will continue to post so you can get the support that you may need in the future
 

karaokePete

Registered User
Jul 23, 2017
5,120
N Ireland
Hello @Sheebee, welcome to the forum from me too.

I see you've had a good look around the threads for questions and answers . When I first joined I read old threads for information but then found the AS Publications list and the page where a post code search can be done to check for support services in ones own area. If you are interested in these, clicking the following links will take you there

https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

https://www.alzheimers.org.uk/find-support-near-you

You will see that there are Factsheets that will help with things like getting care needs assessments, deciding the level of care required and sorting out useful things like Wills, Power of Attorney etc.

I look forward to seeing you on the forum.
 

Sue_PCB

New member
Oct 10, 2018
1
Hi - thank you for accepting me. My husband aged 60 has just been diagnosed with fontotemporal dementia. At the moment I am broken hearted, angry and frightened. I have no specific questions at the moment but I know the road ahead if going to be tough and lonely. I just wanted to find people who understand and can perhaps help with advice in the future.Thank you
 

kindred

Registered User
Apr 8, 2018
2,344
thanks ever so much for the WELCOME. I have a very pressing question that has haunted me for some time now and that is, how easy can someone with early to mild dementia (alcohol related) be manipulated into doing something that they ordinarily wouldn't do?
They could, especially if they wanted to please the person, get their approval. A kind of host mode.
warmest, Kindred.
 
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