Expert Q&A: Rare dementias - Tues 3 March, 3-4pm
Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.
You can either post your question >here< or email them to us at email@example.com and we'll be happy to ask them on your behalf.
Hi @papilion and welcome to the forum. I'm sorry that your mum has had this diagnosis but I'm glad you've found Talking Point. You will find lots of help and support here.my mum has recently been diagnosed with vascular demetia
Hello Maya Frances and welcome and this is a very tough call for you. Say more when you can, no pressure, and tell us what worries and situations we can help you with. I have found this forum a lifesaver. Kindred.Hello, I have joined this site as both my parents have dementia.
Please see if the hospital has any social workers who can help you find the right care home. Ask for help as it is such a difficult area and we are left to our own resources. Warmest, Kindred.Hi, I have been reading this site for about 14 Months. I don't use social network so I have never posted anything. Please forgive me for any mistakes I make now or in the future!!! My Mum was diagnosed with moderate dementia 14 months ago. The whole thing has been a nightmare. I have felt responsible for my Mum and her many medical issues for 35 years but this dementia thing is a whole new ballgame!!!! I'm tired, drained, confused and finding help is really hard to find. I guess, right now, we are at crisis point and a care home is the only option. She has been living alone with carer visits three times a day. At the moment she is in hospital until I, along with some of my family, can find a care home suitable for her. This is one of the hardest things I've ever had to deal with. Unfortunately my family is not very forthcoming with help. Most of it is left for me to deal with. I have pretty much stumbled along trying to sort things but finding there is no guidance by authorities. They seem to assume you know exactly what to do.