Hello to everyone and hope you are all doing okay.
Just an update. My husband spent 11 nights in hospital and then a Dr. called me to discuss things. I asked about his mobility and he reckoned he was managing to get about with his zimmer with supervision, which seemed to indicate he was back to his baseline. In view of the Coronavirus situation and the fact I had cared for him for thirty years, I decided I would never forgive myself if he were to develop the virus whilst in respite/care home. So I decided it would be best to try him at home first, as he’d already called me 42 times that day and was thinking he was on a ship and was pleading to come home. So I gave him the good news he was waiting for.
I later had a call from another Dr. stating that a “bests interest meeting” would be advisable, as my husband has complex care needs. This would have to be done remotely and in a safe manner. After a long discussion, I decided in view of the virus, I had to bring him home, even though I was advised against it, until a type of meeting had been arranged. I had to give the hospital sight of the Health & Welfare LPA.
He came home, I noticed his leg bag had very dark urine and I kept an eye on it. Through the night he was in pain and no urine output, so the community nurses had to come out to change the indwelling catheter. The old one looked fine. Seems to need a new one every two weeks just lately.
The other night I cooked a lovely roast dinner and asked him three times if he wanted a coffee. He retorted, “Do you ever listen to me? I said no.”
So I made myself one. With that, he got very angry in the face and banged his zimmer all the way to the kitchen. I went after him to ask whatever is the matter? He shouted that “he should bl••dy hit me.”
I told him if he did that, then the police would be carting him off. He disappeared into the lounge and I brought him a coffee.
Despite agreeing to use his zimmer in a correct manner, as I have told him for many years and so have physios and 0.T.’s, he is now leaving it behind his chair and pulling on chair in a right angled position, to get to his seat. He will not take it to the front of the chair to assist him. Doing the same thing in hospital.
4am yesterday morning he was calling out in agony ; no urine output in his leg bag/night bag, so we needed the nurse again. Again, the old two week one was all clean, so his indwelling must have moved inside him. Anyone else have these issues please?
1.51am this morning he’s making loud choking noises, like there’s a load of liquid in his throat area. Told him to put it into the tissue, but he insisted in dragging his night bag to the bathroom. It took him ages to get out the bed. Once back, he’s unable to move the covers and get back into bed, shouted that I’m useless and I never give him any assistance. I literally lift his legs into bed and spend all day and night waiting on him. He cannot do anything for himself. Even the TV remote is beyond his capabilities now.
I can’t sleep, as he’s snoring again.
Hopefully, in the future months ahead I can get him into respite again and as his mobility decreases with his MS and his dementia behaviour gets worse, then the care home decision will have to be made. He is getting so confused all the time now.
Sorry for the long rant, but it “helps to talk.”
Just an update. My husband spent 11 nights in hospital and then a Dr. called me to discuss things. I asked about his mobility and he reckoned he was managing to get about with his zimmer with supervision, which seemed to indicate he was back to his baseline. In view of the Coronavirus situation and the fact I had cared for him for thirty years, I decided I would never forgive myself if he were to develop the virus whilst in respite/care home. So I decided it would be best to try him at home first, as he’d already called me 42 times that day and was thinking he was on a ship and was pleading to come home. So I gave him the good news he was waiting for.
I later had a call from another Dr. stating that a “bests interest meeting” would be advisable, as my husband has complex care needs. This would have to be done remotely and in a safe manner. After a long discussion, I decided in view of the virus, I had to bring him home, even though I was advised against it, until a type of meeting had been arranged. I had to give the hospital sight of the Health & Welfare LPA.
He came home, I noticed his leg bag had very dark urine and I kept an eye on it. Through the night he was in pain and no urine output, so the community nurses had to come out to change the indwelling catheter. The old one looked fine. Seems to need a new one every two weeks just lately.
The other night I cooked a lovely roast dinner and asked him three times if he wanted a coffee. He retorted, “Do you ever listen to me? I said no.”
So I made myself one. With that, he got very angry in the face and banged his zimmer all the way to the kitchen. I went after him to ask whatever is the matter? He shouted that “he should bl••dy hit me.”
I told him if he did that, then the police would be carting him off. He disappeared into the lounge and I brought him a coffee.
Despite agreeing to use his zimmer in a correct manner, as I have told him for many years and so have physios and 0.T.’s, he is now leaving it behind his chair and pulling on chair in a right angled position, to get to his seat. He will not take it to the front of the chair to assist him. Doing the same thing in hospital.
4am yesterday morning he was calling out in agony ; no urine output in his leg bag/night bag, so we needed the nurse again. Again, the old two week one was all clean, so his indwelling must have moved inside him. Anyone else have these issues please?
1.51am this morning he’s making loud choking noises, like there’s a load of liquid in his throat area. Told him to put it into the tissue, but he insisted in dragging his night bag to the bathroom. It took him ages to get out the bed. Once back, he’s unable to move the covers and get back into bed, shouted that I’m useless and I never give him any assistance. I literally lift his legs into bed and spend all day and night waiting on him. He cannot do anything for himself. Even the TV remote is beyond his capabilities now.
I can’t sleep, as he’s snoring again.
Hopefully, in the future months ahead I can get him into respite again and as his mobility decreases with his MS and his dementia behaviour gets worse, then the care home decision will have to be made. He is getting so confused all the time now.
Sorry for the long rant, but it “helps to talk.”