So bizarre !

Delphie

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Dec 14, 2011
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You've reminded me of the days my mum was still at home and blurring TV with reality, usually with me in the starring role in whatever was going on in the world. Unfortunately it tended to be the bad stuff. Not for me marrying prince William. No, instead I was rioting and looting in London and being evicted from a farm. :(
 

Ann Mac

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Oct 17, 2013
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Isn't the 'I'm going to bed' maddening, at times, Tin? :( She asks/says she is off, I explain that she has to wait for meds, she listens, and then says ' Sorry - I forgot - anyway, I'm going to bed now, OK?' . 10 or later, at most (usually) I might find her a bit lost on the landing once or twice through the night, not sure where her room is - but she settles quickly. If she goes before 10pm, sometime between 2 and 4 a.m., out bedroom light will go on, and she will be asking for breakfast/to go home/do we know where her husband or mother is?. So we have to stick to it - though some nights the temptation to just let her go is sooooooo strong!

You've reminded me of the days my mum was still at home and blurring TV with reality, usually with me in the starring role in whatever was going on in the world. Unfortunately it tended to be the bad stuff. Not for me marrying prince William. No, instead I was rioting and looting in London and being evicted from a farm. :(


Its horrible when these false realities are about 'bad things' - especially when you get cast as the baddie:( This morning we had a bit of a mix - she was saying that her ears had fionally stopped ringing, after the 'explosion' this morning (?), and I also got a detailed, confabulated account all about the mini bus driver, the 'ladies' and bingo in the town centre?

And the lipstick loop again - though thankfully, the driver turned up early so it didn't go on and on like yesterday!
 

Ann Mac

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Oct 17, 2013
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Multipacks of Lipstick ! The perfect Christmas pressie!

You know what - thats actually a really good idea :D. Now and again, she puts the lippy somewhere else, and so far one has ended up in the washing machine (that was fun - NOT) and a lot have just vanished! I've spent a fair bt of time, frantically searching for them whilst Mil gets increasingly worked up and refusing to go out without her 'lippy'. She is down to one tube now - so thats a cracking idea for a little stocking filler for her :)

Horrible, horrible time here, yesterday :( Spent the morning typing up the pretty much 'essential' info that you need whenever she see's anyone 'new' at a hospital appointment - Mil will answer the questions they always ask, seemingly very articulate and believable, but is never accurate about medication or symptoms or ailments - or anything outside of that, either. And I add the issues caused by the dementia, and how to avoid them, stressing about the negative impact on Mil unless they are discrete and tactful. I was pretty worried about this appointment - at the continence clinic - as this is an area where Mil generally flatly denies that she has any issues at all - yet increasingly, she is having problems, they are getting worse, and I really need some advice on how best to deal with it all, without (hopefully) compromising her dignity too much. I explained all this in the 'letter' too!

Off to collect her from day care, 3 hours earlier than usual - and find her in tears and clearly worked up. She can barely be civil to the staff - who seem puzzled, telling me she was fine till about an hour before. She won't/can't tell me or OH what's gone on, but already she is getting quite verbally aggressive and confrontational. At the hospital, she suddenly shows me her left hand - the little finger is swollen and so badly bruised that the underside of it is literally black!. She starts by saying she 'fell over' at 'that place', then it goes to she 'fell over and no one came to help' and then to 'one of the young ones there pushed her over'. None of the staff said anything about her falling when we picked her up, so I have no idea about whats gone on. Then Mil asks why we are there - I play it down, but given that she is going to have a bladder scan, possibly be checked for a prolapse and despite the letter, possibly asked some questions she'll find offensive, I have to tell her something. Straight into indignation and she has absolutely NO problems and how dare I bring her here and show her up?

We're called through, and it turns out the nurse specialist we see is someone I know - one of the parents from my older two's school days - and she is great with Mil. but still, there are some unavoidable questions asked, and some bits of complete misinformation given by Mil in response, that I have to try and tactfully put right, and I am getting absolute daggers, although Mil remained fairly (though haughtily) civil with me. We're there for over an hour and a half (including time spent getting her finger checked out - not broken, thankfully), and 10 minutes after we get in the car to come home, Mil can't remember where we have been - but knows she is annoyed with me for something :rolleyes:

We get back, and I phone day care - and she did have a fall - though by now, its that the 'youngsters were chasing her to tickle her, and pushed her over and they all laughed at her', according to Mil, and that belief is adding to the head of steam she is building. A bit ticked off that we weren't told when we picked her up, but no time to worry about it as within an hour, Mil wants to go home. And OH is HER husband - and never mind the unholy trinity of the little one, the little girl and the babby - its now become a fearsome foursome, with the introduction of the (now missing) 'little lad', who - it seems - belongs to OH, but not me or Mil. And then we start the 'I'm going to bed', and she's up the stairs and having to be brought back down multiple times. OH ends up sitting on a footstool by the door to stop her. Daughter goes in the bath, and despite having been to the loo just before, Mil wants the toilet within a few minutes, and refuses to use the commode. She comes out with some awful accusations about daughter, her language to OH is foul, we get all the childish behaviour like the smirking, threats to give us 'no peace', and the 'lalalala-ing' so that the TV or conversation can't be heard, we get the insults, and the nastiness, and just general disruption that goes on till 10pm - when, having had her tablets, she informed us that No - she wasn't tired at all, she was going to stay downstairs and give us 'grief'. Both OH and I were at the end of our tether, and again, I ended up engaging in pointless arguments with her, and telling her what I think of her - which at that stage, wasn't anything nice. Being 100% honest, I was absolutely seething with resentment - everything I did yesterday was either for her, or about her care. I had guenuinely knocked myself out to try and make things easier for her - and I was wondering why the hell I had bothered.

This morning, I can't say I'm proud of myself - but the guilt monster isn't having much of an impact either - I did my best, and I still feel 'for what?'.

OH was told that she is all his today - the usual 'basics', I'll see to, but I'm not running her round to visit friends, or take her shopping for clothes - I'm going to play catch up with all the stuff I've neglected, doing things for her this last week, then at least I will have accomplished something that makes me feel like I'm not wasting my time and energy. I've also said forget introducing the 5 days at day care 'gradually' - from next week, she can go the full 5 days - usually one or two days are cut short for her endless appointments anyway, plus being nice, trying hard, makes no difference to how she behaves and responds, so I may as well try and get as much free time as I can.

Not in a happy place today, at all :(
 

Hair Twiddler

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Aug 14, 2012
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Middle England
Oh Ann.

The five days will be better. Mil, lets be honest, is not happy wherever she is and is not comfortable or settled when at home, the centre staff are well placed to give her the attention and care she needs (there are lots of them) so the day centre will (hopefully) work out fine.
You need these five days too.... as if you need anyone to point this out.
Think of all the ......


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you will be able to do.

Keep smiling.
Why not go out and buy some pressies? Lippy for Mil, nail poilish for daughter, gin for you & hubby.
Thinking of you.
 

RedLou

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Jul 30, 2014
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Ann - as she's behaving like a brat of a toddler, would it work to treat her like one? IE Ignore her tantrums completely - talk among yourselves happily; let her go up and down the stairs; you two walk out the room and chat in the kitchen etc??
You may, of course, have already tried all this and apologies if I'm merely suggesting tactics you already know. But something's got to give and it should not be you! So I hope you don't mind my responding to your post. I have so much respect for you and how you cope.
 

Grace L

Registered User
Jun 14, 2014
647
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NW UK
Sorry you are having combative behaviour, I'm having episodes with MiL too, but she does not live with me.

Already dealt years of this stage/ behaviour with my husband when he had VaD.
I know all about trying not to upset .... say the wrong thing, keep quiet, ignore , placate.....
even do and say things you would not normally do... just to keep the peace.

Husbands Psychologist told me I was talking too much !!
I had to try and not reply to conversation, ignore comments, walk away, busy myself, excuse myself from the room, pretend my phone had rung, do anything to remove myself from the room, especially when violence was threatened...

It's so bloomin difficult not responding, as answering someone is automatic...
I developed a few second filter before I decided if I was going to answer or respond the tirade of comments.
After all, whatever you say will be the wrong thing.....

Lipsticks...
If MiL does not have over sensitive skin or allergies .... the £ shop sells lipsticks.
Lots to chose from, pinks, reds, and the teenage darker tones too.
I've no idea what the quality is like, but it might be worth picking up one to test it out.
Very expensive to keep losing lipsticks, I wonder where they are?

Take care
 

RedLou

Registered User
Jul 30, 2014
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MUA (Superdrug) does £1 lipsticks also. Don't last long once applied but good colours and consistency.
 

Tin

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May 18, 2014
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Bad times Ann, not been on my Oh Brother thread, because things have been ok here. When I think stuff is about to hit the pan, it just stops short, and I don't know why, because I am doing nothing different. Other things have been happening though she has become over obsessed with her little dog, always taking it out into the garden and the afternoon wandering in and out is ongoing, but mum seems happy, so hope this continues because the 'other side' is an absolute nightmare with me not knowing what the hell to do. Take care and enjoy your day.
 

Ann Mac

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Oct 17, 2013
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Hair Twiddler - bless you, thank you for the pics :) x

Tin - I@m glad that you've had a peaceful(ish) few days hun - you were more than due xxx

Redlou and Grace - thank you - both for the advice, and tips on the lippy x

I've taken the advice - as much as is possible! She got up as I was heading upstairs, and before I said a word she said 'Whats wrong with your face' - quite aggressive, certainly rude - I completely ignored, walked away. She then came downstairs and asked could she have breakfast. I made it, set out her meds and she started asking me if I 'had a problem' with 'what happened last night?' - I don't know how she remembered it, or even what she remembered, but again, the tone wasn't nice, so I simply said 'I'm sorry - I am not discusing that' - and walked away.

And I've kept it up - I've kept busy (ironing and washing done, windows cleaned, furniture pulled out to hoover and mop :D) - and she has tried several times to start a conversation, always about how SHE wants to talk about 'last night'. Same response every time - 'I'm sorry, I'm busy, I don't want to discus it', and if she has kept on, I've completely ignored. The only time she has spoken to me in a reasonable way has been to ask for food - which I've provided, without comment - and she is now sulking in her room. Fine by me!!!!! We've had several 'If your going to be like that, I'm going home' type comments, also ignored. OH is taking the same stance, as he spends yet another day off working on the bathroom, so she has had no joy there either. She is definitely still in a foul mood, no doubt her head has played its usual tricks and there are all sorts of bizarre and inaccurate reasons for her being like this, but I am just refusing to fuel them in any way, shape or form.

Not very comfortable atmosphere, but suspect it would be worse if we tried to just be normal and talk to her, because its still the looking for confrontation mood, and I honestly think she will find something to kick off about :(
 

Ann Mac

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Oct 17, 2013
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From the bizarrly horrible, to the bizarrly hysterical, here at the moment.

Mil is currently trying to work out how she got to this house - from the jungle! (Guess what we've been watching the last couple of weeks). Nothing will sway her conviction - she knows she was in the jungle, because - she said, pointing dramatically - she brought 'that wooden chair' back with her (I could have sworn we bought that chair from a well known furniture supplier, part of the dining room set, but apparently, I'm wrong). You only find that sort of chair in the jungle, she assures me, though she doesn't remember buying it, so she thinks it was a present from the other people 'in the jungle'. She asked where OH was and I said in work - wrong again!!! He is still in the jungle, according to Mil.

And isn't it funny - this house is very like the one she has been living in, in the jungle too. And a girl that looks very like that 'daughter of yours, Ann' lived there too - but apparently the jungle one was a nice kid!

I have tried to explain, but she is well away with the fairies tonight, so I'm just listening for now, and trying to say as little as possible :rolleyes:
 

Tin

Registered User
May 18, 2014
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UK
I'll see your jungle and show you the Moon, I'm watching Apollo 13, asked mum if she would like to watch it with me, she said no, already been there!! I know, I know she really meant already seen it!!!!!
 

Ann Mac

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Oct 17, 2013
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I'll see your jungle and show you the Moon, I'm watching Apollo 13, asked mum if she would like to watch it with me, she said no, already been there!! I know, I know she really meant already seen it!!!!!

Lol - are you sure that's what she meant? :D And Yep, OK - your Mum's moon trip beats Mils jungle jaunts :)

She has told me that there were no dogs in the jungle because the monsters eat them - but then - really oddly - said to me that she was surprised they (whoever 'they' are?) wanted her to go, because they 'only usually like to have clever people on the telly' - so not just that she was living in the jungle, but that she was part of the TV show, too!
 

Ann Mac

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Oct 17, 2013
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She's going on about what time is OH back from the jungle, so I texted him to ask - he replied -

"Tell her after I've done the trial with the cockroaches"

So I told her and she said 'Oh good - he won't be long then'

I don't know how I am keeping a straight face at the moment!
 

Sue J

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Dec 9, 2009
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she's going on about what time is oh back from the jungle, so i texted him to ask - he replied -

"tell her after i've done the trial with the cockroaches"

so i told her and she said 'oh good - he won't be long then'

i don't know how i am keeping a straight face at the moment!

lol
 
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Grace L

Registered User
Jun 14, 2014
647
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NW UK
Hello Ann, hope things are a little calmer now.

I got myself into a lot of trouble with the SW for not correcting my husbands delusions.
SW did not agree with going along with them, and informed me I had to correct him.
Really? I mean really ? Are SW living in the real world?

Attempting to correct delusion when in a loop of confusion was likely to cause violent behaviour.
Sooo, I smiled and said OK to SW, but back in the real world, did my own thing.

I tried to limit TV to a few channels (he still had control of the remote), but generally he watched car programmes, as well as detective programmes..... and the news.
He did get rather involved in the 'chase of criminals' and 'harbouring fugitives' ....

Eventually he lost the ability to use the TV remote (long stages in between), which was another hurdle I had to cross, as it was all my fault of course.

TV definitely had an effect on confusing reality with what had been seen a day or so before.
 

Ann Mac

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Oct 17, 2013
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Hi Grace,

Thankfully, our main point of contact is the CPN - and she is very down to earth, and her priority is quality of life for Mil - which means any and everything that keeps her from getting stressed and miserable, or scared and angry, is fine - and if that means LWLs and going along with delusions, no problem :) An SW like you describe would be, I would imagine, about as much use as a chocolate teapot!

Its becomming - I think - more and more common for the TV to be the jump off point for the delusions, for Mil. Things were a lot calmer yesterday, but we did have a lovely confused jumble last night, where Mil was convinced she was entering a singing competition on TV, the next day - she had to phone in to arrange to sing, and then she would be on the telly - and did we think she would do well? There was also something about her having been to 'some relatives house in Manchester' (only relative she has in Manchester is my oldest, who is at uni there) for a big Christmas party - now, she spent an hour or so on Sunday watching a run of old sit com 'Christmas Specials', on one of the Sky channels, whilst I did the ironing, so am assuming that one sprang from one of the shows she watched?

Its hard to decide whether or not to limit the TV programmes she watches - we just don't know, most of the time, what may or may not spark some sort of delusion - or even if the delusion will upset her ! Just because something appears fairly innocuous to us, doesn't mean that her poor head won't twist or interpret it into something that will upset her :( She is getting more and more flummoxed by the remote control - but its variable, the odd day she can manage to change channels, most days she struggles to even put the telly on, so mostly, I pull up the menu and read out shows that I think she will like, and that won't (hopefully) get mixed up in a bad way, with reality. She does love the dectective/crime/murder-mystery series - everything from Miss Marple to CSI - and will always opt for them over anything else, but the potential for them to scare/upset her is I suppose quite high, so I try to steer her towards things like re-runs of sit coms. The difficulty can be of an evening, when there are others in the house who are also now finding their viewing dictated by whether or not something will upset Mil!
 

MrsTerryN

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Dec 17, 2012
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Mum is set off by the TV and the newspaper. The TV is now rarely on as I think most days She is unable to work out how the remote works. She also worries about the other 'people getting jealous of her things'
 

Grace L

Registered User
Jun 14, 2014
647
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NW UK
Ann,
My husbands SW had some strange ideas on how to deal with situations.
I'm not sure who advised them to always correct delusions.
They also told me I was not to lock (or have the door on chain) the front door...
having gone through the recent panic of calling the police because my husband had gone missing.


One of my husbands delusions he thought he had money in X bank, nothing would convince him otherwise.
SW told me to make an appointment for husband and them to attend the bank and 'get to the bottom of this'.

I suggested they ring the bank themselves (or one of the SW/ SS managers do) and they will tell you he / I do not have money in that bank.
SW said this was not acceptable, they wanted to have a meeting at the bank.
CPN told SW this was futile, as anything said at the bank would not be believed by my husband.
Such a waste of times and resources.... I've never forgiven them for this.