thanks for this however I have regular contact with a stoma nurse and the one nearby in Chadderton Oldham seems to have fallen by the wayside@ged626red , hello, I don't have personal experience but have you tried looking for a stoma support group near you, or on line? I'm sure there will be people there who will have dealt with stoma and dementia who can give you support and advice..
Have you asked your GP or the soma nurse if there's support groups?
I've become a big fan of support groups. Meeting and talking with people who are experiencing the same trials and getting advice has been my lifeline.
Have to say, such groups and coffee clubs wouldn't have been my idea of a social event before but life's different and having friends who understand is worth it's weight in gold!
Hi Nitram@ged626red
How do you get your stoma supplies?
If it's by request from the clinic next time ask for appointment with the stoma nurse.
If it's from a pharmacy as we are both in the NCA, me Bury, you Oldham, you should be able to use the system I use.
I have two 'not in use' boxes, when I need to break into them I email the clinic requesting two boxes which arrive in a day or two from the wholesaler in Rochdale complete with complementary disposal bags and patient wipes.
When I was trialing various products they happily took back any surplus for distribution in third world countries.
Hi Nitram
thank you for both replies - perhaps I have as normal not given sufficient information here - I see our stoma nurse in Royton regularly - it is more to do with the dementia side when it gets much worse and my wife does not want me to change the bag which I do every five days as per instructions and as she screams now what will it be like later on!! in terms of the progression of the disease - Brunlea supply and I ring them when needed and they are very efficient however it is this issue above which is the problem - I was really looking for someone who has gone through this aspect for any advice