How on earth do we cope with such situations when there is no end in sight?
Hi Dancer, there are two ways I cope. One way is to let it pass rather than dwell on it and the other is to see it as a sign that something needs to change. My feelings and behaviour are like a thermometer which tell me what is acceptable and what is not.
ALAN HAS JUST ABOUT FULLY RECOVERED ALL HIS LOST ABILITIES
This morning Alan got up, washed, shaved, dressed himself in clean pyjamas, ate his breakfast, came downstairs on his own and has been out of bed all day
He is now continent again. The only new thing is that he was showing pain where the problem is in his lung and so I rang the GP. She was astounded at this sudden turn and pleased. She said he could take ibuprofen for a few days. He is having an x-ray tomorrow morning.
The Community Psychiatric Nurse (CPN) came and took a whole loads of jobs off me. She said she will do the ringing round and sort out assessments
She said I could call her if I was ever stuck and needed a prescription or something important
The Social Worker rang me because the CPN had contacted her and she will arrange for someone to bath Alan once a week
The District Nurse came and that was good and she told me I could call her if ever the need arose in the future.
I had a brainwave last night
I thought about future respite and meeting Alan's particular needs. I thought I would make an appointment to speak to the Manager of the care home and ask whether she would be willing for Alan to have respite there but with his own Crossroads sitters during the daytime hours!! He needs one to one care in order for him to be assisted to do the things that he can and without this assistance he cannot function. I really do feel that he has a right to have his needs met. I asked the Social Worker whether my thinking was off the planet and she said "no I think it is a good idea because Alan has a right to have his needs met". So when I get some space and time I will talk to the Manager of the care home, then I will talk to Crossroads and then I will get back to the Social Worker and put a case together.
This means that should I feel on the verge of collapse something is pre-organised to meet Alan's particular needs rather than him being placed somewhere inadequate for him. Please keep your fingers crossed.
Love