1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

  1. LadyA

    LadyA Registered User

    Oct 19, 2009
    13,517
    Ireland
    It's different over here. The help either comes from Community Care, (the local care services office, which covers phn, OT, continence supplies, and aids & equipment) or you can pay privately. The care agencies charge over €25 per hour, and they won't bill for less than an hour, although if the help needed takes less than an hour, they could be in, done and gone in 20 minutes. Even though Community Care have no help available, there would be no help with the cost of private carers.
     
  2. DesperateofDevon

    DesperateofDevon Registered User

    Jul 7, 2019
    1,129
    How desperately frustrating, every area has different processes & it just adds to more confusion at a time when clarity & simplicity is required.
    I hope things get easier for you, but it just sometimes gets too much in all of this. Especially for those who have had one difficult path after another.
    The sunshine is just breaking through the clouds here in Devon & the warmth of the rays bring hope of a better day. Sending you wishes of sun rays & (((( Hugs )))) to a truly remarkable & inspirational lady.
    xx
     
  3. LadyA

    LadyA Registered User

    Oct 19, 2009
    13,517
    Ireland
    Thank you. Things are actually looking very much on the up. Mum is fully back to herself, she's looking forward to getting home and back in her routine, she is now flagged in the system, and hopefully, will be able to go back to living more or less independently. She will need help, as she always did, with getting out and about, as she never drove. But, fingers crossed! I have discovered that she's been put on a tablet to control "over active bladder", so that may be why her continence has improved so much.But she's been warned she has to drink LOTS of fluids too, as one of the side effects can be UTIs!
     
  4. DesperateofDevon

    DesperateofDevon Registered User

    Jul 7, 2019
    1,129
    My Mum is on a prophylactic dose of antibiotics & her incontinence has improved- thus her own confidence. After continuous repeat UTIs it’s finally nice to see her improving in one area at least! But wow what a battle to get those prophylactics!!!
    Life shouldn’t be this hard me thinks... but then we wouldn’t be on this forum & have met all these lovely peeps via it! Every cloud has a silver lining!
    Xxx
    Take care of yourself, today the weather is more autumnal. Crows & rooms being noisy & the squirrels madly collecting the last of the hazelnuts!
    Meanwhile my senior citizen dog - aka dementia dog - was Sadie the wonderdog; but she spends more time now wondering where she is & who we are -.... is digging a large pit in the garden! It’s an ongoing project over the past 3 months.. impressively deep now!
     
  5. LadyA

    LadyA Registered User

    Oct 19, 2009
    13,517
    Ireland
    Mum was due home on Friday last. Thursday, I went, after working all morning, and cleaned her house, and made a few "adustments" as suggested by the OT. I removed the bedside locker that had been my dad's and shifted the bed about 18 inches closer to the window, to give mum plenty of room to manoeuvre from bed to commode etc. with her walking frame. She was given two frames: A standard size one and a narrow one for using upstairs. I hurt my back (ongoing damage, but flares up into a spasm now and then) shifting the furniture. But at least it was done, and I vacuumed everywhere.

    On the way home on Thursday evening, I thought I'd drop in for a quick visit with mum. And there she was, bags packed, coat on. "Where are you off to?" I asked. "Home!" she says. "They said I can go home today." "But", I said "I was told you would be discharged tomorrow! I'm only on my way home now, and was going to collect you in the morning and take you home!" "Well, they told me I am going home today!" So, off I go in search of the staff nurse, and sad "Um, mum says she's going home? Today, and not tomorrow, as I'd been told?" The nurse looked at me, and said "You're ****'s daughter, aren't you? Yes, she was supposed to go home tomorrow, but she told us that you were coming to collect her this afternoon, to take her home." :rolleyes::rolleyes: So, it seems mum decided she was going on Thursday. Told the staff that I had said I was coming to collect her, and told me that the staff said she was being discharged! :D:D

    Anyway, it worked out fine. She's home, and she's good! (so far!). Stair lift is working very well for her, and she is being good about using her frames. I've had her on a couple of outings, which she really enjoyed, even though for one, we used the wheelchair.

    Meanwhile, I've been busily helping dau too, as her pregnancy reaches the home stretch. Over the weekend, I have dehydrated buckets of apple slices, which to my little grandson, are better than any sweeties! And back last Spring, she had enthusiastically sown a lot of beetroot, but now, was not able to deal with them! So, I've bottled them for her in a sweet/sour spiced vinegar syrup.

    Looks like life is returning to somewhat resembling normal. The only thing is, mum can't carry the bowl of her commode to the loo to empty it in the mornings, so I now have to go in every day, at least briefly, to do that. And she can't manage her vacuum cleaner either (a cordless one), so I run around with that. Still, it's a small price to pay for seeing her so happy to be home! :)
     
  6. LynneMcV

    LynneMcV Volunteer Moderator

    May 9, 2012
    3,544
    south-east London
    That's great news. I am glad things are returning to some kind of normality again - even if the timetable was tampered with a little :D
     
  7. DesperateofDevon

    DesperateofDevon Registered User

    Jul 7, 2019
    1,129
    I hope life becomes easier for you & you are able to spend time with daughter & bump & your grandson!
    Xx
     

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