parkinson's disease

Hi all, just wondered if there’s anyone caring for someone with Parkinson’s Dementia?

My dad has been diagnosed with parkinson’s and mixed dementia (parkinson’s dementia and alzheimers) as well as a benign brain tumour. Mum died a year ago and with the help of a care company we have kept dad at home. This has become unmanageable and increasingly unsafe. We have made the decision...

Hi, is anyone else a carer fro a partner with Parkinson’s Dementia? My husband was diagnosed 5 years ago, aged 56 with Parkinson’s and 3 years ago with dementia. He doesn’t speak any longer, maybe a few words but rarely makes any sense, he hums sometimes during the night and thankfully his...

Hi my husband is in care home now has lewy body dementia and Parkinson's it's been a very hard struggle with quilt from my side he is starting to settle now and I have good and bad days but I am struggling financially bank not letting access. To his bank account just wanted to know if anyone...

Hi, just joined this forum as I am increasingly needing to talk to others who may be experiencing the same issues caring for someone with dementia such as lack of sleep, being worried about my partner not knowing where he is, especially at night, and having lots of hallucinations plus restless...

He was also diagnosed with Parkinson's Disease in 2022. I find it difficult to distinguish between which disease and symptoms sometimes.

Hello My husband has Lewy body/Parkinsons

Hi, my wife has mixed dementia and Parkinsons. After some time, the 24x7 caring effort has got too much so she is now in a very nice nursing home and seems content and well. However the home has recommended I buy her hip protectors. Now they are effective but only if worn consistently and she...

My husband has moderate Parkinson's dementia. I have been dealing with mood changes, behavioural issues, and executive dysfunction for eight years, not to mention his memory deficits. He is now having delusions and the odd hallucination. And he is falling regularly. I am home 24/7 and I am...

My mum is disabled and pretty much housebound. She suffers from parkinsons along with other medical conditions and her mobility has gradually declined over the years. She has not had a formal diagnosis of dementia yet although investigations are ongoing. She lives with my dad in a terraced house...

Hi Im new to this forum, and will try and keep it as brief as possible. My brother sadly passed away last week. He had severe learning disabilities and was in care most of his life. That aside, as a family we were very much involved in my brothers life and care and visted regularly. Sadly...

Hi, I'm Vicki, I am eldest of 5 siblings, live away from home area. Dad has just been given up to 2 weeks to live due to heart failure. He has parkinsonism and dementia. Mam lives in same home as him but separate. She is on ground floor, him first floor. They spend 80% of time together. She has...

My husband has Lewy Body with Parksinsons and hardly leaves his bed. In the last few days he has changed (no ITU) and it is quite worrying but don't know who to ask about it. We have been dismissed from Memory Clinic, OT etc have stopped coming and doctors is mostly on the phone as I can't get...

My husband has been in memory care since April 21, 2022. He has been diagnosed with Parkinsonism and dementia/cerebral small vessel disease. He usually thinks he is in a school dorm or in a military barracks. He usually likes his 2-room apartment - it has a south-facing bay window and is light...

My husband has Lewy Body dementia with Parkinsons and spends most of his time in bed, his mobility is not good. Sundowning has been going on for a long time but usually at tea time and he spends lots of the night talking to himself, scratching, clapping and shouting out, so much so that I am...

My husband has Parkinsons and dementia. My lovely man has changed into someone I don't recognise anymore and I miss him.

Hello my husband of over 50 years was diagnosed with Parkinsons and then Alzheimers over 10 years ago. There have been many different diagnosis along the way but it is the dementia which is now really taking hold. He is a very proud man and excepting help does not come naturally to him!! I am...

Hello, My mum went into a home a few months ago primarily because of her Parkinson's but she is increasingly showing signs of dementia. She is convinced that carers, nurses at the local hospital and various others are conspiring against her, threatening her with violence, deliberately handling...

My husband has dementia and accuses me of having an affair because I haven't wanted to have sex in the past 2 years for a number of reasons (both physical and emotional). Our relationship was not as good as it could have been when I made that decision and at the time I suspected he had Dementia...

Hi All, So today on my visit today my husband who has Parkinsons and mixed dementia started a plan to come home. There is no possibility of this as his care needs are so high and the psychiatric team feel he poses a risk to himself and me. He then cried uncontrollably for 2 hours, I also cried...