Hi
@Jezzer, I do hope your brother's surgery has gone well? And, I hope that you are ok?
I have had time to think over all the anaesthetist said. It was upsetting as she spelt it out and my husband was sitting by my side taking it in, not sure what but enough to know that he was upset. I hate to see him upset. I must admit that this is the first time that I realised that this isn't a game anymore... this is for real, and it isn't going to go away or get any better, it can only get worse, and it sounds like the next surgery/hospital stay could have a substantial impact.
She told us that it isn't simply the anaesthetic that is the problem, it is the drugs that he will need, the hospital stay, being out of his comfort zone, not having me there... the list went on. And I am terrified and thinking .... well, I have no idea what I am thinking. It is all so negative.
I spent the afternoon trying to get his notes that the anaesthetist wants from a private hospital that carried out surgery on him, paid for by the NHS, and that have now been archived. They made me jump through hoops, phoning this number, then that number, then back again. Talk about giving me the runaround. Anyway, it is supposed to be being accessed today.
All of this has had an impact on my husband and he has been so upset this morning. He can't remember his hospital stay in March when he was rushed in with sepsis. For 10 days he was so confused, he had no idea, and still doesn't remember that I visited for 7 hours every day, feeding him and watching over him. All of this is coming together and having an additional negative impact on him.
I am sorry that this post is so depressing. The anaesthetist told me that it was essential that I looked after myself, made sure that the family all knew what was happening, and that we should have LPAs in place. How do you look after yourself when your primary concern is for your husband that you are slowly losing? How can you get family support when they live 4 hours away and have their own lives? And yes, we had the forethought to put LPAs in place for both of us, we are waiting for notification from the Office of the Public Guardian that they are complete which should be any day.
I hope your day Jan is better than mine and that all is well with your brother.
Hopefully I will be a bit more upbeat tomorrow! Love B xx