Please don't throw me away, breaking my promise

[cumbria35]

Thanks so much for sharing. Your new promise gives me hope. I'm sure everyone here fears the advent of a crisis point that may cause us to consider residential care for our loved one.
You have shown a different angle. Your new promise, which I love, shows how a positive situation can be created out of what is perceived as a negative one.
You haven't broken faith, you have just followed another pathway to keep your promise.
Thank you again

Oh thank YOU. Thank you for liking my new promise. Thank you for your encouragement.
It has always hovered over me, a kind of regret that we never held hands enough, me and OH. We were always outdoors on some new adventure. I can hold hands with him now and it's the answering press of his hand that I live for.

Hope for us all

 

[AliceA]

Actually I absolutely love shells...
I collect them, but I have to have found them myself, it’s cheating to buy them!
So, how often is a real shell that you find on the beach empty?
It usually has interesting things inside.
And shells have gorgeous colours, shapes and textures.
And everyone is different.
My husband is a gorgeous shell, although I didn’t find him on the beach!
He has all the interesting things, he is far from empty, and like a shell on the beach, I never know what I’m going to find from one minute to the next. xx

Lovely description, thank you.

 

[AliceA]

You are far from that Geraldine, I think we all have to find our own inner meaning to external situations over which we have no control. We all have skills we just have to find a different way of expressing them.
You are doing a grand job on and off this site. Xxx

 

[cumbria35]

Where would we be without this forum, we are having a few days away. Our last holiday was good but this time bit more difficult. After waking up at 12 midnight to ask me to put the bathroom light off (we have always left it on so that he could find the bathroom) we had words and afterwards I felt so angry with myself for having words that I cried quietly in my bed. Three hours later I awoke to find him looking for the bathroom. I hate this despicable disease and what it is doing to my husband of 61 years. However we have now had two good nights and days so all is well again.

 

[Lindy50]

This is the link to the Teepa Snow video clip on the GEMS concept -

http://teepasnow.com/resources/teepa-tips-videos/teepas-gems/

Oh wow !!! @Izzy, I have just watched the Gems clip and also one about giving breakfast to someone in the Pearl stage. Absolutely fantastic, thank you so much X
I'd heard of Teepa Snow but not watched or read anything by her for years....probably not since mum was more like an emerald.....
Wonderful stuff
Thank you again.
Lindy xx

PS And thank you @kindred for starting the shell discussion xx

 

[kindred]

You are far from that Geraldine, I think we all have to find our own inner meaning to external situations over which we have no control. We all have skills we just have to find a different way of expressing them.
You are doing a grand job on and off this site. Xxx

Oh thank you with all heart. I do agree about inner meaning, so very much. We spend our adult lives striving for control and then ... thank you so much, so appreciated. Gxxxx

 

[kindred]

Oh wow !!! @Izzy, I have just watched the Gems clip and also one about giving breakfast to someone in the Pearl stage. Absolutely fantastic, thank you so much X
I'd heard of Teepa Snow but not watched or read anything by her for years....probably not since mum was more like an emerald.....
Wonderful stuff
Thank you again.
Lindy xx

PS And thank you @kindred for starting the shell discussion xx

Thank YOU, the gems clip is gorgeous. I love it, mum like an emerald ... Gxxx

 

[kindred]

Where would we be without this forum, we are having a few days away. Our last holiday was good but this time bit more difficult. After waking up at 12 midnight to ask me to put the bathroom light off (we have always left it on so that he could find the bathroom) we had words and afterwards I felt so angry with myself for having words that I cried quietly in my bed. Three hours later I awoke to find him looking for the bathroom. I hate this despicable disease and what it is doing to my husband of 61 years. However we have now had two good nights and days so all is well again.

Good to hear from you and yes, TP is our lifeline sweetheart. I know, good nights, bad nights, good nights, I know ... all love and thank you! Gxxx

 

[kindred]

Thank you, Izzy, saved me coming off the site. It is my husband's birthday today. He wanted to wear a tie, he really struggled to tie it. It took an hour he did not want help. He said he could not understand it, his coat choice was inappropriate but he said he felt comfortable in it. So fair enough. We met family, chose food carefully then home to sleep.
Sometimes we have to realise that this is a perfect day, adaptations and more. Thanks for being there in background. It is a good feeling.

Oh love, the birthday. Yes, we have to say, this is the day ... thank you so much. so good to hear. Gxx

 

[kindred]

Actually I absolutely love shells...
I collect them, but I have to have found them myself, it’s cheating to buy them!
So, how often is a real shell that you find on the beach empty?
It usually has interesting things inside.
And shells have gorgeous colours, shapes and textures.
And everyone is different.
My husband is a gorgeous shell, although I didn’t find him on the beach!
He has all the interesting things, he is far from empty, and like a shell on the beach, I never know what I’m going to find from one minute to the next. xx

That is just wonderful, wonderful. Shapes and textures and colours and everyone is different. this is so true, oh thank you so much. Gxxxx

 

[AliceA]

Oh thank you with all heart. I do agree about inner meaning, so very much. We spend our adult lives striving for control and then ... thank you so much, so appreciated. Gxxxx

Just lovely to find a real Kindred Spirit! Much love.

 

[AliceA]

Oh love, the birthday. Yes, we have to say, this is the day ... thank you so much. so good to hear. Gxx

Xxx

 

[AliceA]

Good to hear from you and yes, TP is our lifeline sweetheart. I know, good nights, bad nights, good nights, I know ... all love and thank you! Gxxx

I feel for you, I am considering a break, my husband used to love going away and his long term memory thinks we can still do these things. I also know quiet happy days at home real suit. It really is Catch 22. Try and enjoy the rest of your break if you can. I am considering using a company from Glasgow, they provide a Care escort at what ever level needed. Light to heavy duties. B&b to hotels etc. 1 to 21 days. I do not know costs yet but I thought a small lodge perhaps. Some change hotels are inexpensive. Has anyone tried this? Just having someone around so I could get in a quiet walk at my pace would be a break for me. The situation constantly changes does'nt it.

 

[AliceA]

Thank YOU, the gems clip is gorgeous. I love it, mum like an emerald ... Gxxx

I feel we need a fresh look at the condition, Teepa is so practical and refreshing. I have a Caring box. I must copy the Gems as I feel to meditate on these each day would be like a balm to stop us all going Balmy!

 

[Izzy]

@AliceA - I don't know if these companies would be of any interest to you -

https://dementiaadventure.co.uk/what-we-do/our-holidays/

http://revitalise.org.uk/break-theme/alzheimers-breaks/

There's also a fact sheet on holidays which you might find useful -

https://www.alzheimers.org.uk/get-support/staying-independent/holidays-travelling

 

[AliceA]

That is just wonderful, wonderful. Shapes and textures and colours and everyone is different. this is so true, oh thank you so much. Gxxxx

Shell cannot be empty, hold them to you ear and they hold an ocean. Perhaps a sign to listen more with all our senses? Xxx

 

[AliceA]

@AliceA - I don't know if these companies would be of any interest to you -

https://dementiaadventure.co.uk/what-we-do/our-holidays/

http://revitalise.org.uk/break-theme/alzheimers-breaks/

There's also a fact sheet on holidays which you might find useful -

https://www.alzheimers.org.uk/get-support/staying-independent/holidays-travelling

oh, so many thanks, Issa. Do you ever sleep! I will look these up later. Xxx

 

[Izzy]

oh, so many thanks, Issa. Do you ever sleep! I will look these up later. Xxx

Ha! Not a lot!!!!

 

[Lindy50]

Thank YOU, the gems clip is gorgeous. I love it, mum like an emerald ... Gxxx

Sadly mum’s a pearl now, but I can still see that pearl in the oyster shell xx

 

[kindred]

Where would we be without this forum, we are having a few days away. Our last holiday was good but this time bit more difficult. After waking up at 12 midnight to ask me to put the bathroom light off (we have always left it on so that he could find the bathroom) we had words and afterwards I felt so angry with myself for having words that I cried quietly in my bed. Three hours later I awoke to find him looking for the bathroom. I hate this despicable disease and what it is doing to my husband of 61 years. However we have now had two good nights and days so all is well again.

Sadly mum’s a pearl now, but I can still see that pearl in the oyster shell xx

of course! Gxxxmore anon about visit.