Oh Jinx, so very sorry you are having such a bad time. Lets hope Bernard can be moved quickly to a good CH. It is so unsettling for you. I know what it is like to not sleep and everything seems so much worse. Sending you lots of hugs xxxxxxx
Another night of waking at all the times Bernard normally does, plus the dog wanting to go out in the middle of the night. I wonder how long it will take to get back to a proper sleep routine. Spent two hours with Bernard in hospital yesterday, visiting is only between 4 and 7pm. It does mean I can be there to make sure he eats and takes his meds. He was very relaxed and thought he was in a hotel, bless! The staff are brilliant but it's a dementia ward and they must feel like they're herding cats. No sooner have they got one wandering patient settled there's another heading for the door or needing the toilet. There was a poor old chap in Bernard's bay the day before yesterday demanding the chef be brought to him so he could tell him what meals he needed, he was very loud and using some choice language. He'd gone yesterday, not sure what they did with him!
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Emerging from the bathroom tonight with wet patches on his trousers OH says "there's something between my legs that makes me very wet". I pointed out the obvious to which he responded rather crossly,"well I know that but why have I got wet trousers?" Somewhat at a loss after that to explain!
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Pete went through a phases of having a wee standing up and pooing at the same time. I didn't know whether to stand front or back!
A catheter had been put in again yesterday as Bernard was retaining urine. He has been passing wee OK albeit he is incontinent but wonder why this retention happens, is it part of the dementia? Says in his notes he is very sore and swollen down there not sure if that is cause or effect. So difficult when you never see a doctor to ask any questions.
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We had the hospital meeting today, very stressful with the SW keeping up the line of 'coming home being in Bernard's best interest' despite the medical team telling us that B is now doubly incontinent, needs two people to mobilise him, the physio has withdrawn because B is not able to remember what they have told him from one day to the next, he needs constant prompting for drinking, eating, meds etc. towards the end of the meeting the SW said 'I actually decided that going into a care home would be in Bernard's best interest before the meeting but wanted to document the reasons for him going home first'. The medical team said they had never been in such an intense meeting before and my daughters and I came out feeling completely wrung out. We were all in tears, particularly my younger daughter. It is such a big change but I can't cope with his increased needs and I know it's the right decision. B will stay in hospital until a suitable care home can be found, I just hope and pray it won't be too long before a place is available, hospital is so miserable. Feeling very teary and emotional. xxx
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