the way forward is still as clear as mud...much to my frustration this dr (who apparently is one of the top in this field) has told bil that we must 'set mil right' when she has these hallucinations. it feels wrong to do this and we have no support network. does anyone know what we can do about finding some one to talk to that has the experience and medical knowledge for these situations?
Just been catching up with this thread reading posts when you ask
does anyone know what we can do about finding some one to talk to that has the experience and medical knowledge for these situations?
Can you not ask your doctor to do a referral to allocate your MIL to the mentail heath unit so you can have a CPN ?
I find my brother CPN very helpfully in understanding hallucinations and my brother anti psychotic drug. MIND is also have a wealth of information on anti psychotic drug and are very help full if you just ring them up with any concerns you are having .
CPN tell me that they are real to them (hallucinations) as you and me in person , not to humour them about it , just tell them you can't see them like they do , ask what they are seeing talk to them about it , what are they saying . don't get angry or frustrated about it with them , as that can antagonise them and they can get violent , aggressive , if that happen just act cram ( even if you don't feel it pretend ) back of and move out of the room. if it got to the stage that you felt they where in danger to them self all those around them call 999. not saying its going to get to that stage , hopefully when medication kick in it well stop the hallucinations.
when it happen to me , my brother had a relapse I phone NHS direct for advice , who told me to phone 999 for me , telling me that I should always phone 999 next time
must say I found hallucinations very scary, hard to get my head around it when my brother had an episode of them , that why I find CPN very helpful also came in handy in understanding what is happening with my mother and her AZ.
the support out they its just knowing how to go out getting it, if MIL or you BIL do not like the involvement of the mental heath team , just ask for advice from a CPN , just pop into you local hospital who could have a mental heath unit , asking them you would just like some advice from a CPN.
Sorry to read about your breast cancer , must of been shock for you both xx