Where to start!! I'm new to this and feeling pretty desperate to be honest.
My name is Tracy. 2 years ago I noticed some changes in Mums personality, aggression,,rude, confrontational, and said to my sister I'm sure mums getting dementia but everyone laughed it off. Last May mum was independent and full off life still travelling abroad on her own etc? Living alone and enjoying life. Then her brother died unexpectedly and Mum instantly started with horrific depression and anxiety. Her personality has changed beyond all recognition and she is now very child like. She's lost 3 stones and has been in a psychiatric unit 6 months. She's not safe to be left alone as she has no sense of danger, walks into the road, spills hot tea on herself. Wanders round the house when we take her home on visits, just wandering from room to room. Mum was loud and bolshy she's now as quiet as a mousse and never speaks. She has obsessions and goes on about them all day long, can't eat, can't wee, has no pulse. She's lost all empathy and regard for anyone else. We demanded a brain scan and the psyciatrist said it showed some vascular changes, some brain shrinkage, and all the changes were in the frontal lobe. When we suspected dementia before the scan we thought front lobal dementia as all her traits seemed to fit with that. The psyciatrist said he never diagnoses on a scan alone and wanted to observe mum further. Mum has declined and now has psychotic episodes / all the psyciatrist keeps saying is at the moment he wants to control her symptoms and a diagnosis is not important!!!!! Every week we tell him we need to know what's wrong with mum, he just says it's a possibility it's dementia going off the scan but he won't diagnose her yet. My mum has gone, it's her body but not my Mum. I'm a single parent with 2 children and mum has always been my rock and my best friend. We used to be on the phone around ten times a day. She's not rang us in 6 months. Before mum went into hospital we had her living with us. The mornings were dreadful she was so disorientated mornings, refused tablets, refused food, accused us of poisioning her to the point she was paralysed yet walking around!! As a family we're sure it's dementia but why are they taking so long to disgnose? We took her for denture fitting on Saturday and when I suggested she needs to try and chew something to see if she could eat with them in she nearly bit the dentists finger off! It was hilarious to be honest. She spits in the street and each week has some new obsession, we've had them all, she's dying off a serotonin overdose, she has kidney failure, the patients are set ups to spy on her, there are cameras in her room, social services are coming to tske my children away because I wasn't in time with her washing, the psyciatrist is not a real doctor. The list goes on and on. Mum was an old school nurse and midwife who just got on with it if she was ill, so all this behaviour is bizzare!! I've managed to get power off attourney but that left her agitated for days rambling on the hospital were taking her house!!! We're so worried, confused, scared, how can we make plans without a diagnosis? A nurse on the ward said the psyciatrist concerned is known for taking his time to disgnose! This has to be the most painful thing I have ever gone through in my life but the not knowing just adds to it!!!!! Any advice ????