Tonight I actually snapped

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marsaday

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Mar 2, 2012
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Hi Again Dave,

I'm glad you have made a start at getting some help.

What you have said about the behaviour of your wife to you is one reason why it's so hard for others (not affected) to understand this disease. It's all the seemingly little things constantly repeated and the lack of sleep that makes it like chinese water torture-one little drip of water-harmless-constant drips-infuriating!

I hope they listen and you get the help you need. You are bound to be anxious about how it will all come across to an outsider and worried that they won't take it seriously enough, as she presents so well. You need to emphasise your statement:
"I wish I was dead"
That should be taken seriously. Your needs are at least as great as hers.

Best of luck
 

Dave K

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Apr 14, 2014
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Hi Again Dave,

I'm glad you have made a start at getting some help.

What you have said about the behaviour of your wife to you is one reason why it's so hard for others (not affected) to understand this disease. It's all the seemingly little things constantly repeated and the lack of sleep that makes it like chinese water torture-one little drip of water-harmless-constant drips-infuriating!

I hope they listen and you get the help you need. You are bound to be anxious about how it will all come across to an outsider and worried that they won't take it seriously enough, as she presents so well. You need to emphasise your statement:
"I wish I was dead"
That should be taken seriously. Your needs are at least as great as hers.

Best of luck

Hi marsaday

Thank you - Still waiting for that call :(
 

Rageddy Anne

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Feb 21, 2013
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Cotswolds
Yep, happens to all of us eventually

A typical scenario I go through many times of the day

Wife: Want a cuppa
Me: Yes please
Wife: Tea or Coffee
Me: Tea please (thought a cuppa was tea anyway)
Wife: Are you sure:
Me: yes I am
Wife: Would you not prefer coffee
Me: No thanks, Tea is fine
Wife: but I am making coffee
Me: but you don't drink coffee
Wife: I will make you one if you want coffee
Me: OK, I will have a coffee then
Wife: But I thought you wanted tea
Me: I did too
Wife: You choose, Tea or Coffee
Me: Surprise me
Wife, COME ON, WHAT DO YOU WANT?
Me: I'll have a beer
Wife: But it is only 5pm
Me: I will have a cup of Tea please then
Wife: OK
Me: better put the kettle back on as it must be cold by now
Wife: who is?
Me: Leave it, I will do it
Wife: No it's OK I will make you a nice cup of tea
Me: Thank you (Phew)

2 mins later

Me: Thank you but you have made coffee
Wife: what did you say you wanted?
Me: Tea or coffee, I do not really mind

1 minute later

Wife: Do you want something to eat with that?
Me: No thanks - (I gave up, too many options on this one) besides wife has not cooked or made me a sandwich in 12 months or more

This could be my husband and me! Yes, it is like Chinese water torture isn't it? And if any tea is forthcoming, it tastes awful because it's half milk and half lukewarm water,with a tea bag added at the last minute.
Hang in there Dave, with your quest for some help...I'm watching with interest because I reckon I could hit the buffers before long, and I don't know what keeps me going.
Really sympathise about the dog poo walked in, poor you.:eek:
 

Lindy50

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Dec 11, 2013
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Cotswolds
Hi again Dave :cool:

I too have looked around this website and despite lots of lovely photos, actual online forms seem to be lacking :rolleyes: There is a list of local offices though, with phone numbers and email addresses. Perhaps you could contact one of these?

I know it's hard but once you do get in touch with someone helpful, they should be able to make some difference for you :)

Good luck xxx

https://www.barnsley.gov.uk/social-...are-services/contacting-adult-social-services
 

Wolfsgirl

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Oct 18, 2012
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Nr Heathrow, Mum has AD & VD
Your GP might be more easily accessible too if you are struggling?

Hi again Dave :cool:

I too have looked around this website and despite lots of lovely photos, actual online forms seem to be lacking :rolleyes: There is a list of local offices though, with phone numbers and email addresses. Perhaps you could contact one of these?

I know it's hard but once you do get in touch with someone helpful, they should be able to make some difference for you :)

Good luck xxx

https://www.barnsley.gov.uk/social-...are-services/contacting-adult-social-services
 

Dave K

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Apr 14, 2014
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Barnsley (UK)
Hooray!!

Got the call, a bit awkward though as 10 seconds into the call wife walks in stating (LOUDLY) "Why are you doing this to me" + "You are nasty"

So the call only lasted 30 seconds talking in code, the senior memory nurse just asked me "Who needs help" I said I did. Then she said "Is your wife worse or the same than she was when I last met her a couple of months ago", I said "Worse, a lot worse and I feel like cutting my own head off"

She then said, OK David, I will get someone to arrange a meeting for you at a place of your choosing

That's it

But the ball is now rolling.
 

Lindy50

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Dec 11, 2013
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Cotswolds
Oh, this is fantastic news Dave :D:D:D

I have done a little jig!:p

Maybe it wasn't a bad thing that your wife came in, the nurse will have been able to get an idea of the situation from that.

Keep your notes for the meeting Dave :cool:

I'm happy, oh so happy.......:p

Lindy xx
 

Wolfsgirl

Registered User
Oct 18, 2012
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Nr Heathrow, Mum has AD & VD
Well done, it must have been difficult.

Don't forget to print off some of your posts, sometimes it is hard to explain stuff without getting choked and you could miss things out.

Your wife is also a vulnerable adult going off alone each day doing only someone knows what! :eek:

Despite this good news, be prepared to nag ;)x
Hooray!!

Got the call, a bit awkward though as 10 seconds into the call wife walks in stating (LOUDLY) "Why are you doing this to me" + "You are nasty"

So the call only lasted 30 seconds talking in code, the senior memory nurse just asked me "Who needs help" I said I did. Then she said "Is your wife worse or the same than she was when I last met her a couple of months ago", I said "Worse, a lot worse and I feel like cutting my own head off"

She then said, OK David, I will get someone to arrange a meeting for you at a place of your choosing

That's it

But the ball is now rolling.
 

hokeycokey

Registered User
Feb 24, 2014
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Brilliant Dave, well done you - I know that this is a huge step for you to have taken but it is so so important. We all think we can manage, we are all proud but there comes a time when it doesn't help

I have to say that I have been "pleasantly" surprised at how caring the professionals have been towards me since the Sectioning but the Social Worker said someone would call me about counselling, someone who is there for people with a loved one that is Sectioned and that was two weeks ago ....
 

jugglingmum

Registered User
Jan 5, 2014
7,130
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Chester
Oh, this is fantastic news Dave :D:D:D

I have done a little jig!:p

Maybe it wasn't a bad thing that your wife came in, the nurse will have been able to get an idea of the situation from that.

Keep your notes for the meeting Dave :cool:

I'm happy, oh so happy.......:p

Lindy xx

This sums it up for me :D
 

Rathbone

Registered User
May 17, 2014
2,264
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West Sussex
The problem I have is that OH goes out on buses to different town every day, sometimes multiple times in a day, I do not know what she gets up to or how other folk see here so would the powers to be think that care is not required

It's in the house where the problems are, morning, noon and night, she is doing things that no child would do once told not to do it, she is confused, does not cook, clean, personal hygiene has gone so has her clothes choice

She steps in dog poo everyday bring it into the house, yes I do check for puppy poo all the time, but if I miss one it is guaranteed to be brought in the house

Her language, reasoning, understanding, memory are non existent, she does not want help, threatens with divorce, moving out, the "F" word id her favourite along with 2 fingers (something she has never done before in her life)

Every day like clockwork she puts a pen through the calendar for that day, always has done but this does not happen any longer, no problem but just another thing that she has done for eternity but does not do any more, there are hundreds of minor things, it is constant.

She is aggressive, constantly asking questions, question, questions, guessing 200-300 or more every single day 7 days a week

I am now sleeping on the couch, fully clothed for the past 2 nights as I am really finding it hard being next to my wife (I shower once she gets up). I know I have covered all of this in various posts but as I am sat here thinking of what to say to anyone whom may call me from the memory team I thought I would list in my own head everything I am concerned about

She is horrible to the neighbours, never to their face though, only to me, delights when neighbour lost his job, then went in to hospital for an operation returning with his arm in a pot

She, does not, will not leave my side when she returns from her bus trips, constantly walks around, hands behind her back asking really infantile questions, will not take a no for any answer, can not sit down for more than 2 minutes in a different room if I am not there, constantly requests that I sit in the front room with her when I say no, I am working in the next room, running my online business sh yells that I hate her, should we get divorced etc. etc.

She is incapable to finding anything on the TV to watch, I have to press the buttons, this is a new one as only last week she could use the remote.

She gets bored after 2 minutes and is asking me all the time what should she do, hell, I am work in the day answering calls, replying to e-mail, checking site, stock changes, processing orders, dispatching them, taking payments, issuing refunds, looking after our dog, going for walkies twice a day, feeding him, bathing him, comforting him, playing with him, I can not do anymore than I am doing now

I am lucky if I get 2 or 3 hours sleep a night, wake up on the sofa fully dressed then it all starts again

There are many more hundreds of things I could mention but I think you all get the jist of things

I AM UNABLE TO COPE, I AM UNHAPPY, I AM EXHAUSTED (all of the time) and now I am waiting for a call that may or may not happen


Edit:

I forgot to mention the BEST part - My wife is like an angel if front of anyone else, it's just me she is horrible too.


Sorry Dave, just returned from latest OH neuropsych assessment, so wasn't here to check how you are. What you have written down for us all is EXACTLY what you should tell the Memory Nurse. Print it off and stick it in everyone's hand GP, SS, MAS nurse whomever. You must get help now to save your own skin and your wife is desperately unwell and must have the proper intervention. We all know it's not as easy as knowing that help is needed for it to arrive. Convince them the way that I did by writing it all down so they cannot ignore it and you don't need to remember. IMHO it's the hardest thing to bring to mind when you are being asked what is wrong. If they cannot see what that is from your list they are the ones needing help.
PLEASE do what more you can to move this forward - how ever frustrating or impossible it seems, because we are all so worried about you. Loving thoughts. X Shelagh:)
 

Dave K

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Apr 14, 2014
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Thanks EVERONE of you, I think without all your help(s) I would have not have done anything about it until it was possibly too late

Now, I got to stop gripping and focus on the positive aspects of my life, so might do some doggy (Zeus) updates later this evening

Once again, a big thank you to everyone especially the "Nag Dave" team, just proves that nagging does work :D (but I never said that)
 

Rathbone

Registered User
May 17, 2014
2,264
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West Sussex
Hi marsaday

Thank you - Still waiting for that call :(

Dear Man! Stop waiting - ring them up and ring them up and ring them up! It's true: those who shout the loudest and the longest, get seen first. Nobody can stand it! Just like you - except they are not listening and we are!! Go for it Dave. XX:)
 

hokeycokey

Registered User
Feb 24, 2014
139
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Dave - suggest you keep a diary as well ... more evidence and the more you have the better for you and helps you remember it all too
 

Rathbone

Registered User
May 17, 2014
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West Sussex
Sorry Dave. i must have been Sooooo irritating - like you need more of THAT! I have finally caught up and great to hear your persistence (with yourself) paid off. Have a great big gold star.
Now you have to sit on their tails and make that appointment happen.
XX Shelagh (another member of the Nag Dave Team.:D
 

Dave K

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Barnsley (UK)
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