The continuing healthcare con

martin02890

Registered User
Apr 11, 2012
2
0
Belfast
I have signed your petition - going through this at the moment and getting no where as no one seems to even want to admit this exists.:(
 

sue38

Registered User
Mar 6, 2007
10,849
0
55
Wigan, Lancs
I had a notification that there was a new reply to this thread. I followed the link and found no reply. I then managed somehow briefly to bring up a long and interesting post that I'd read last night. But the response that I'd been told about has not appeared at all.

Very odd things do happen here.:)

Can someone explain what's going on?

Hi Stanley the reply was moved to a new thread here. We do sometimes move posts if we feel they are off-topic, or would receive more replies/support in a thread of their own.
 

stanleypj

Registered User
Dec 8, 2011
10,712
0
North West
Hi Stanley the reply was moved to a new thread here. We do sometimes move posts if we feel they are off-topic, or would receive more replies/support in a thread of their own.

I know you do. It would be helpful to people if you indicated where this has been done.

I feel that the threads often develop as a kind of conversation, which is perfectly understandable and natural. Maybe a lighter touch is required?
 

jenniferpa

Registered User
Jun 27, 2006
39,442
0
Speaking as a moderator, the problem is, of course, that in this case a "lighter touch" (if by that you mean leaving the post where it was) could well result in a new member not receiving the support they need.

As you rightly point out, threads do develop into "conversations" but I have to say, this specific thread is more along the lines of a single issue thread - as in, "please sign this petition".

Generally, if there's any doubt we do tend to try to ensure that people (particularly when they are new posters and they indicate that they are unsure of the posting process, as this new member did) get the support they are asking for, even if that means another poster might think "hey, where's that post gone".

I hope that makes the process clearer. :)
 

stanleypj

Registered User
Dec 8, 2011
10,712
0
North West
Would it be so hard for the automated system that notifies us about a new post to also notify us when that new post is suddenly whisked away and where it has ended up?
 

sue38

Registered User
Mar 6, 2007
10,849
0
55
Wigan, Lancs
Would it be so hard for the automated system that notifies us about a new post to also notify us when that new post is suddenly whisked away and where it has ended up?

No the software doesn't give us this option (unlike the situation where we move the whole thread and can leave a re-direct) but I'll ask if it's possible. I doubt that is as we're restricted somewhat by the confines of the vBulletin, but I can ask. In the meantime you can always contact the moderators to see where it's gone :).
 

stanleypj

Registered User
Dec 8, 2011
10,712
0
North West
Thank you. vBulletin, chosen by Nasa. So it should be possible as what I'm suggesting is not rocket science.:) And they offer 'excellent moderation control'.:):)
 

uselessdaughter

Registered User
Jun 8, 2009
249
0
West Country
The one thing that really sticks in my mind, and I may have said this previously, is that the assessor is not supposed to reduce any 'scoring' because the care needs are well managed. In my opinion, that means that the assessment should be made as if the sufferer was not being cared for.



I find this statement interesting. Dad has recently been assessed for but not granted CHC. We were asked to remove him from two homes (for the safety of staff and other residents:eek:) because of his aggression and he was sectioned twice. When we tried to move him, two (dementia registered and for challenging behavour) homes said they did not think they would be able to cope with him. However, he only scored a B for this section. I am of course delighted that his current home seem to be able to manage his aggression but that is not to say that it is still not a problem. I dread it becoming a problem again because this was the only home within reasonable travelling distance that would take him.

This situation would also exist regarding nutrician and medication, which he only scored a C for.

I have asked his new home to comment on the scores given before he moved there.
 

jenniferpa

Registered User
Jun 27, 2006
39,442
0
Stanley - there is one other option. When you get the notification that a thread has been updated, it tells you who posted. You can then check their profile to see where their post is.

I realise it isn't perfect, but it is something you can do for yourself if you don't want to wait for a moderator to get back to you.
 

Wolfsgirl

Registered User
Oct 18, 2012
1,028
0
Nr Heathrow, Mum has AD & VD
Agree totallly!
Clicked and signed.

We all know that money is tight BUT, until the goverment (of whatever hue, there is no difference between them as far as I am concerned) stop giving money away to foreign countries, some of whom spend their money on space programmes rather than improving the lives of their people and some who spend the money on weapons and private jets, I could go on, I will do my best to get funding for my Dad.

If all that money was spend on caring for the disabled, of whatever age, elderly, either in specialist homes or helping families to care at home, life could be made so much easier for so many people.

I get so sick of people saying that there is nothing wrong with paying for your own care. If you turn up at hospital with a cancer caused through smoking you would not expect to pay each time you received chemotherapy - so why should you have to pay for care when you have a disease which is killing your brain, over which you had no control.

Sorry, rant over, but it really annoys me (and no, it is not because I want to inherit).

Linda
 

Flooz

Registered User
Sep 8, 2009
139
0
UK
How sad that the petition only has 270 signatories. Maybe a change of title may help to encourage more people to look at it. Only a thought.

Unfortunately there is no option for editing the petition, so we're stuck with it. :)
 

jan.s

Registered User
Sep 20, 2011
7,353
0
72
Unfortunately there is no option for editing the petition, so we're stuck with it. :)

Sorry, not editing the petition, but the heading on the thread.

Only a thought to try to attract more attention.

I feel very strongly about the petition!
 

winda

Registered User
Oct 17, 2011
2,037
0
Nottinghamshire
Have just caught up with this thread and signed the petition. I didn't realise the thread involved a petition. I feel very strongly about CHC.

How many people have signed so far?
 

iambadgerous

Registered User
Feb 5, 2013
1
0
Hi, I'm new here and this is a subject close to my heart so I've signed your petition...

My Dad was diagnosed last year with mixed Alzheimer's and vascular dementia, he is also diabetic managed with pills (no injections).

He lives alone and had been managing OK until fairly recently, but now he's lost all financial understanding and has stopped bathing, cleaning his flat and clothes, taking his medication etc... He is also generally confused and unable to understand what is going on around him.

We (my wife and I) took the difficult decision to ask for another assessment (knowing what it would mean for him) and, as expected, on Friday he was sectioned for 28 days for assessment.

We met with the care team today (social worker, occupational therapist, consultant etc...) to discuss his ongoing care and they were all of the opinion (as are we) that the time has come for Dad to go into full-time care. When we brought up the subject of funding we were told very clearly that "it is very unlikely that he will qualify for NHS continued funding".

1) Dad has only been in Hospital for 5 days and the assessment has not even started (they told us that his time so far has only been a 'settling-in period') yet they appear to have already made a decision on funding.
2) Without care he will not take his diabetes medication with obvious consequences. How exactly is that not a health need?
3) His GP once explained to me that vascular dementia is like having 'a number of small strokes'. How exactly is that not a health need?

Frankly I am gobsmacked.

Politically I am a not a socialist (not that it seems to matter these days when a supposedly socialist government is in power!) but that does not mean I don't have a social conscience. My Dad worked all his life, paid his taxes and paid off his mortgage for what exactly?

Sorry for the rant and good luck with your petition, you have my full support!
Darren
 

geum123

Registered User
May 20, 2009
4,604
0
Hi Darren,
Sorry to hear that your Dad has taken a down-turn.
It seems fairly common that people are told
"It is very unlikely that he will qualify for NHS continued funding"

If you think different, then appeal the decision.

I believe they hope, you'll just take their word for it.:mad: