Thank you for the {{{{{hugs}}}}}, and the support, all of you xxx
I couldn't take time off yesterday, much as I would have liked to. New project, taken a lot of work to set up, and not just work from me, but from others - couldn't let them down.
OH spoke to chap from health board, yesterday. In a nutshell, his manager has requested 'more evidence'. 1-1 hasn't been refused, he assured OH, it will happen - just more evidence needed! Numerous safeguarding incidents, numerous incident reports of staff being injured with everything from scratches and slaps to broken bones, behavioural reports documenting instances of verbal and physical aggression, repeated instances of her being found on the floor after either throwing herself from the chair or simply writhing her way off it, her arms and legs a patchwork of bruises and skin tears as a result of all the behaviours - and they need 'more evidence'. He can't give us a time line. I presume that knowing that Mil is also on palliative care has this manager thinking that if he can just hold off long enough, she will conveniently die before they have to fund anything extra. I honestly believe its that callous and calculated.
I just don't have the words at the moment to say how I feel. Its another battle isn't it? We have talked about Mil paying for the support with staff at CH, and been advised not to - lots of reasons, the only one that matters to us at the moment is the fact that its not straightforward to set up, the CH can't provide from their own staff unless it comes through the health board, so it means finding a decent agency or several individuals, with all the paperwork and meetings and organisation that would require and it all would probably take even longer to put in place than doing battle with health board would.
OH saw Mil yesterday - sleepy and 'flat' for some of the time, mixed with chatty and writhing and sudden agitation. Staff say she is still mobile - after a fashion, when the severe agitation kicks in, but is so unsteady that a fall, more likely sooner rather than later, is inevitable. She has also started to kick out at residents who tend to wander around the lounge, and trying to either knock them over or trip them up. Leave her in her room, and she is out of her chair or the bed and on the floor every few minutes, when she is agitated - put her in the lounge where there are always staff on the floor, and there is a risk to others, it only takes the staff not being able to get to her quite quickly enough. The contradictions between the 'flat' and sleepy periods, and the periods of agitation are just unbelievable.
Son and his GF are here, I think oldest is planning to also arrive today, just for an overnight stay.
Thank you so much, again - coming onto TP, and reading the posts from you all and knowing that you care means more than I can say xxxx
Love to all xxxx