It's life Jim - but not as we know it!

Discussion in 'I have a partner with dementia' started by jenniferjean, Sep 18, 2019.

  1. kindred

    kindred Registered User

    Apr 8, 2018
    2,323
    Yes, get help with the forms … incidentally the not very nice bloke did tell you the number of times you need to get up in order to qualify … that's kind of useful to know? Also you must mention falls at night.
    warmest, Kindred.;
     
  2. Petunia59

    Petunia59 Registered User

    Oct 11, 2019
    23
    jenniferjean: I think what the DWP guy said is utter rubbish! My Mum's had higher rate AA for over 3 years now; even before she had any carers coming in. I got Age UK to fill in forms.
     
  3. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    615
    Female
    Basingstoke, Hampshire
    Thank you everyone. Once I get the forms I shall see if I can get AgeUK to help.
     
  4. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    615
    Female
    Basingstoke, Hampshire
    I think I understand why you put this. It's still very painful when he tries to get up either off the sofa or the bed. Each time he winces and then says "I've got a pain in my gut. I don't know what's caused that". It's not so bad today as he is hardly moving unless he has to go to the toilet. But each time he says the same thing.
     
  5. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    70,105
    Kent
    I claimed full rate Attendance Allowance because my husband wasn`t safe to be alone at night. Whoever told you there is criteria for how many times your husband needs attention at night @jenniferjean is a `jobsworth`. Your husband needs attention all night long.


    Quote. Each time he winces and then says "I've got a pain in my gut.

    Do you think he might have strained a muscle?
     
  6. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    615
    Female
    Basingstoke, Hampshire
    Thanks @Grannie G , the ambulance man who checked him on Friday seemed to think he's bruised his ribs. This morning when I got him up to use the loo he didn't wince as much, so I think that's probably what he's done. He didn't move about much before the fall but it's even less now. Whether he'll improve when his ribs are better or whether this is how it will be now is anyone's guess.
     
  7. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    615
    Female
    Basingstoke, Hampshire
    My husband has always liked those Celebrations chocolates. We haven't had them for quite a while, so I thought I'd treat him to some at the weekend. He can't take the wrappers off. I know it's such a silly little thing, but it quite upset me to see him struggle.
     
  8. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    70,105
    Kent
    This is when it really hits home isn`t it @jenniferjean
     
  9. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    615
    Female
    Basingstoke, Hampshire
    Well he might not be able to take the wrappers of the sweets but he can still take the lid off a jar of pickled eggs. I opened a new jar to give him two pickled eggs with his lunch. I was busy doing paperwork but heard him in the kitchen. I thought he might have trouble opening the jar if that is what he was after, so went to help. In the kitchen I found one empty jar - he's eaten the lot.
     
  10. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    615
    Female
    Basingstoke, Hampshire
    I had a man from Age Concern come round today and filled in my husband's form for the higher rate Attendance Allowance. So it's just a case of wait and see now.
     
  11. DesperateofDevon

    DesperateofDevon Registered User

    Jul 7, 2019
    2,212
    I applied for it for Mum & was told that it would be granted in 6 months time as that’s how long the need had to have been for! I didn’t argue it takes too much energy!
     
  12. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    615
    Female
    Basingstoke, Hampshire
    Yes, I had heard that would be the case. You can backdate it if the need can be justified but you have to state why you haven't claimed previously. I just wanted to leave it as a new claim and then wait the 6 months.
     
  13. DesperateofDevon

    DesperateofDevon Registered User

    Jul 7, 2019
    2,212
    It’s the easier option I felt & just couldn’t battle anymore. x
     
  14. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    615
    Female
    Basingstoke, Hampshire
    It's a shame that we have to battle for these things. But it is good that we have organisations like Age UK and Age Concern to help us. I do try and promote their help where I can so people know.
    We don't have Age UK in our area but their office themselves advised me to try Age Concern.
     
  15. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    615
    Female
    Basingstoke, Hampshire
    Today I am starting to complete the fluid chart ready for the appointment with the nurse from the continence service in January. I can only note how many times he goes to the loo, I can't give info on how much he does. As I accompany him during the night because of risk of falls, I'm finding that easier to record than during the day.
     
  16. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    615
    Female
    Basingstoke, Hampshire
    One of the first bits of advice I was given when starting this journey was to accept as much help as was offered.
    Well as I now find it hard to take my husband anywhere because of his walking, and the fact that I can't leave him alone, I did contact our chemist to ask if they could add us to their prescription delivery service. I was told that they couldn't as they were not accepting any new customers. I explained how difficult it was for me to bring my husband with me but no .......
    Last week I had an appointment with a lady from our local carer support and dementia advice service. Among other things she asked me about having our prescriptions delivered and I explained that we couldn't. She asked me for the details of the chemist and said that she would contact them.
    Today she rang me to say that as from now our prescriptions would be delivered. Result!
     
  17. Fishgirl

    Fishgirl Registered User

    Sep 9, 2019
    134
    #97 Fishgirl, Dec 18, 2019
    Last edited: Dec 18, 2019
    Well I’m absolutely disgusted!
    That’s terrible that a chemist wouldn’t make an exception for someone with Dementia. I was only thinking today that I would start having OH meds delivered because it’s a struggle to get him there, but probably I’ll get the same answer. Well done to the lady from carer support!!xx
     
  18. Bikerbeth

    Bikerbeth Registered User

    Feb 11, 2019
    638
    Bedford
    So glad you are now able to have the ‘meds’ delivered. It may seem a small thing to some people but it makes such a difference
     
  19. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    70,105
    Kent
    Can you find a new Pharmacy @jenniferjean?

    All pharmacies in my area deliver and many have posters in their windows advertising the fact.

    Will your GP have a list of Pharmacies who deliver.
     
  20. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    615
    Female
    Basingstoke, Hampshire
    Thanks for your answer. This pharmacy is attached to our surgery so would be preferable to stay with them, and it seems they have now changed their minds since the care support service put pressure on them.
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.