Guilt trip

[Curlie]

Thanks so much for the link Hazel it really does help. After reading other people situations I tend to feel a bit guilty , mum is not as bad as some ( at the moment.), but boy does this site help. With the help of people on this site it makes you realise that you are not alone as you think. i still feel frightened, worried, useless and yet still try to be strong for my kids and hubby.

 

[Skye]

After reading other people situations I tend to feel a bit guilty , mum is not as bad as some ( at the moment.), but boy does this site help. With the help of people on this site it makes you realise that you are not alone as you think. i still feel frightened, worried, useless and yet still try to be strong for my kids and hubby.

Lisa, you are definitely not useless. Frightened, yes. Worried, yes. We all are. Coping with AD is the scariest thing I've ever experienced, because you have no idea what's coming next, just that it will be awful.

And don't feel guilty, either. We've all been where you are now. We've all had to learn, just as you are doing, and one day you'll be able to give others the benefit of your experience.

Just keep posting, and let us know how it goes.

Love,

 

[lizzie2596]

Hi Lisa

I'm pleased that my experiences have helped you a little already. What I found with Mum was that once I had the official diagnosis of AD that it opened so many doors for me and made dealing with officialdom quite straightforward. Once I mentioned Alzheimers wheels started to turn automatically. The CPN came for a visit to do the initial assessment. I rang the DWP about Attendance allowance and they sent someone round to fill out the form with me. I rang Social services and they sent someone to assess Mum's needs and then I had a carers assessment as well. Very little effort needed on my part.

I would go along with all of the others who have stressed how important it is to pursue things with the GP as the referral to a specialist is the only way to go now. Does the GP know your Mum quite well already? Mine did and was able to put all of my concerns into the context of what he already knew about her. The diabetes issue will give you extra ammunition for insisting on some positive action.

Good luck

Liz x

 

[Margarita]

The diabetes issue will give you extra ammunition for insisting on some positive action.

what type of diabetes has your mother got ?

My mother got diabetes 2 and I don't get any support from district nurses , they just let me get on with it , So I was wonder what you meant when you said

extra ammunition for insisting on some positive action

As mum is diabetes 2 they say she does not need nursing care .

 

[Curlie]

See mums doctor today

Hi Liz

Once again you have answered my questions before i needed to ask

Finally see mum-in-laws doctor and explained that the last time he see her with us, she was having a good day. He listened to what i had to say and said by that he can say it is dementure. Although not sure what the difference is. He is writing a letter to request an assessment, which im sure he said would be done at home. At the moment we have arranged a system around the tablets, just hope it works!

I feel like a chunk has been taken away from my shoulders at the moment, maybe because i feel i have started the ball rolling. My local Alzheimers group rung me back today and advised me on getting an EPI?

I have been told several times the differant types of dementure but feel like i have had to take so much in over such a short time , i suppose you learn more as you go on.My only concern is that the assessment starts before i go back to work in five weeks.

Thanks again
Lisa

 

[jenniferpa]

Lisa it's EPA I think: enduring power of attorney. You can download the forms from the public guardianship website http://www.guardianship.gov.uk/formsdocuments/forms.htm and this is the factsheet from the AS http://www.alzheimers.org.uk/After_diagnosis/Sorting_out_your_money/info_epa.htm

Jennifer

 

[Curlie]

Thanks Jennifer i will go on links tomorrow morning.