Hi,
My mum was diagnosed with Alzheimer's in March, although I knew she was suffering from it just before the pandemic. She lives alone and has poor mobility. I have been working in various cities across the country and it is not possible for me to move back to my home city, although I have managed to get a job closer to home.
I am really shocked at how little can be done to support her. The services just don't seem to exist and there seems to be little to no communication between health services. Often, they will phone or just drop by my mums home and fail to communicate with me what has occurred or what was discussed.
I manage all her expenses and food and any needs she has; I have financial and medical POA. My mum has limited mobility, lives alone and has an ever shrinking circle of friends, so she is often very lonely and there is only so much I can do. It is exhausting me and it is at the point where I can become very upset myself. I have tried finding support groups but mostly there are during the day when I cannot attend, even the online ones.
I dread going home to see her as communicating with her is very difficult and there is always a huge list of things to be taken care of. I am at the stage of deeply resenting my brother for completely checking out of the situation... although typically he is the one my mum raves about when he calls once a year, whilst I am left calling everyday and making trips to see 2 to 3 times a month.
I know I cannot be the only one experience this and I would love to hear how people cope with the emotional upset and lack of support.
My mum was diagnosed with Alzheimer's in March, although I knew she was suffering from it just before the pandemic. She lives alone and has poor mobility. I have been working in various cities across the country and it is not possible for me to move back to my home city, although I have managed to get a job closer to home.
I am really shocked at how little can be done to support her. The services just don't seem to exist and there seems to be little to no communication between health services. Often, they will phone or just drop by my mums home and fail to communicate with me what has occurred or what was discussed.
I manage all her expenses and food and any needs she has; I have financial and medical POA. My mum has limited mobility, lives alone and has an ever shrinking circle of friends, so she is often very lonely and there is only so much I can do. It is exhausting me and it is at the point where I can become very upset myself. I have tried finding support groups but mostly there are during the day when I cannot attend, even the online ones.
I dread going home to see her as communicating with her is very difficult and there is always a huge list of things to be taken care of. I am at the stage of deeply resenting my brother for completely checking out of the situation... although typically he is the one my mum raves about when he calls once a year, whilst I am left calling everyday and making trips to see 2 to 3 times a month.
I know I cannot be the only one experience this and I would love to hear how people cope with the emotional upset and lack of support.
