I have this morning received the call deep down I thought would come. Doctor rang and said that dad is not improving and is deteriorating despite the treatment he has been having and is felt further intervention will not help. Doctor said dads inflammatory markers still up is suspected dad is aspirating into his lungs. Doctor says that she will be referring dad to the Palliative Team who will call to let us know what will be happening next. Dad is still being kept on the treatment he has been having for now. I called sister to let her know usual response she didn't even sound upset saying she knew this would be the outcome she was pretty cold about it. Sister says dads world was turned upside down from the day he went into the CH had probably thought we had abandoned him and still maintains if she could tolerate dads behaviour why couldn't the carers coming into his home. I said that there were no other options for dad she said they could have got dad 24/7 care in his home but I said no it would have been too expensive for ASC to provide. I said there is no blame attached to anyone for what has happened but sister slammed phone down again she may have just about caught me saying why was she still being like this of all times. I received another call this time from Palliative Team he says that the current situation means there is no place for dad within the hospital for dad to be moved to for end of life care and he had actually been in touch with the CH just prior to calling me regarding them and dad but didn't confirm what was happening. I had actually called the CH prior to his call to update them of dads situation and I was told that if dad is returned to them he would be placed on the nursing care floor. The guy from hospital said he had no concerns over dad going to the CH and in fact said his own mum had been there or was there was difficult to follow as I was trying to make some notes and he said was a good CH. Guy actually said was only 2.5 miles away from the hospital and there would not be concern over the journey for dad as dad was very comfortable and actually sleeping quite a lot. Dad is not really talking anymore just making some sounds so is actually unlikely dad will be able to speak with us again. I was told they will be applying for Fast Track Care now he couldn't say when or where dad will be moved to yet but added in theory dad will be transferred to wherever can take him so personally I will be ok with dad going back to CH. I was absolutely honest as was asked how family felt and I said sister did not really want dad going back to the CH for reasons she has given me as I feel they should know what her feelings are but I suspect will have no influence whatsoever where dad is placed. I decided that I would email sister as following our earlier call just cannot stomach talking with her. Its possible something will be decided in next day or two in the meantime he assured me dad will be looked after well whilst in the current ward. Guy has been in to see dad before calling he says dad is comfortable, he reiterated that they completely understand what a very difficult time this is made worse by the current Covid restrictions. The doctor that had called earlier had indicated for end of life the visiting at hospital was 8am-8pm but obviously she must not have been aware of availability for dad to stay there. Doctor indicated dad may have around 1-3 weeks left but added that the hospital is not ideal for dad to stay as they do have quite a lot of Covid there. I wonder is she is thinking not really ideal for people visiting incase we pick it up?. I desperately want to spend time with dad and see him as much as possible.
I lay in bed last night my head whirling round and round as it does knowing we would be faced with this soon but hoping that outcome would be different. I was telling myself I would bite the bullet with sister and take her in my car wherever dad was so she can get to him same as me but this morning and my call to her only confirms that whilst I can show compassion for the situation and want her and dad to reunite for his last few days/weeks she cannot hold her nasty tongue or change her way not for dads sake or mine. I actually really really hope dad goes back to CH as soon as possible now. I am assured by guy that called that they ( Macmillan support ) will be offering their support to CH in dads care there and everything he needs will be in place to make dad comfortable.
I lay in bed last night my head whirling round and round as it does knowing we would be faced with this soon but hoping that outcome would be different. I was telling myself I would bite the bullet with sister and take her in my car wherever dad was so she can get to him same as me but this morning and my call to her only confirms that whilst I can show compassion for the situation and want her and dad to reunite for his last few days/weeks she cannot hold her nasty tongue or change her way not for dads sake or mine. I actually really really hope dad goes back to CH as soon as possible now. I am assured by guy that called that they ( Macmillan support ) will be offering their support to CH in dads care there and everything he needs will be in place to make dad comfortable.