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Discussion in 'Dementia-related news and campaigns' started by SophieD, May 29, 2019.
This is the trouble too, lack of training and not really wanting the harder cases.
We are held over a barrel! Where did that saying come from? Now my phone has died, I am not sure why, new battery, it was charged, it has been one of those days, hope yours is better. X
I personally feel this is part of the problem in that those in charge of making decisions on care underestimate the behaviours and the caring needs of dementia, especially as the number of those suffering from this illness appear to be on the rise. I believe this is the reason why the dementia nurse services in my area were cut 3 years ago, and led to the decision to employ cheaper/younger staff with no/less experience instead. It's now been realised that it didn't work as knowledge is key. I was told this by a re-employed experienced dementia nurse.
So agree with this post - especially the parts I highlighted. I so welcomed the first scenes with Rachel and her mum Barbara, especially with the car. I've heard some say such scenes may not be shown on TV as it might scare others. I don't watch a programme about care/dementia to be entertained. It's real life, it can happen. I wish I seen something like that when my dad was first diagnosed.
With regards to the varying figures for care home placements, I can perhaps understand the higher figure being due to extras requested by the person being cared for or their family/loved ones, but where the only difference being where the money is coming from is - as said - so unfair.
There was another duo where dementia has impacted their lives - Michael and his partner/carer Barbara. Michael also had encephalitis. I'm wondering if I got this wrong but I think it was stated that Barbara receives £470 per week for his care and said it wasn't enough. I wish she or the programme made it clear why she felt that way because, to a lot of people watching, that figure sounds pretty high and Barbara appears to receive practical help five days a week.
Maybe that figure included welfare benefits too and therefore included Michael's everyday needs like food, heat, water, etc, but I thought the figure quoted as for 'his care'.
Thanks for all your comments on the first episode. Please feel free to keep sharing your thoughts on the first episode.
We've also opened up a discussion for the second episode (on BBC One tonight at 9pm) here: https://forum.alzheimers.org.uk/thr...e-part-2-will-you-be-watching-tonight.116209/