Morning all,
I hope each and everyone of you have had a lovely Christmas. Slugsta, have been thinking of you, as I know that things like the first Christmas without a loved one can be so hard to get through. I hope that you are OK, hun xxxx
It's been an odd Christmas here, with OH and son not home till Christmas day evening, and OH working for a good part of every day so far. Even so, the times we have all had together have been lovely, so not complaining. Presents were very much liked, Christmas dinner saw empty plates all round, and its been fab just to have all the family home
I got very spoilt, with my usual zoo pass, a gift voucher that I spent on a lot of new clothes in the sales yesterday, and the new Sarah Millican book from OH - and the kids really went to town, giving me a filofax, lush goodies - and a new kindle!
We went to see Mil on Christmas day. The timing coincided with lunch being served - we had warned the CH that might be the case, because as I've said, OH could only get there for a short time in between finishing work and going to collect our son from Preston. Mil wasn't in the best of moods, quite agitated, so I think it actually helped that we went to a quiet corner of the lounge and that Mil had a small table to eat at, set away from the main table's and quieter. I don't think she knew who we were - she sort of knew she knew us, but not how, IYKWIM? They served her dinner just after I got there with the girls, and thankfully, that worked as a distraction on this occasion. She didn't notice that OH wasn't there - he had been held up at work and didn't arrive until nearly 45 minutes after he was hoping to get there - and nor did she seemed to know that our son was also missing. She tucked into her dinner, with obvious enjoyment - even the Christmas pud, which she (pre-dementia) couldn't stand! OH arrived as she finished pud, so we produced the presents - and to be honest, it seemed to confuse her at first - she kept turning the wrapped gifts over and over, and didn't seem to understand that they were her's to open. Once she did start opening them, there were a lot of OTT, odd responses. She was punching one fist into the air and making a loud, exaggerated 'OOOOOOO' noises. It looked very funny, and she joined in the laughter, but to me it was all a bit manic and I knew that the agitation was bubbling away, very near the surface. I'm glad that I did get the last minute small gifts for her to give to us - though I don't think she would have been upset by not having them to give us, she seemed to enjoy handing them over and giving us tales about how she had bought this one from that shop, or had 'queued for hours' to get another.
One thing that stood out was that there was something very odd about her speech at times. She seemed to get 'stuck' on certain words - not in that she couldn't find the word, but in that she would repeat some words over and over again, very rapidly, as she said them, like a stuck record, in the middle of a sentence. So we got things like
'I went downanddownanddownanddownanddownanddown the road to get that'. She seemed oblivious to this happening. OH had to leave after about half an hour, and as oldest was going with him to pick up son, we left at the same time. She wasn't really bothered. Both girls said that they thought that Nan was very switched on and alert - and she was, in one sense. But I was sure that the OTT reactions and just the look on her face at times signified that she was not far from some agitated behaviour.
Son wanted to see his Nan and give her some gifts from him, so yesterday mroning we headed to the CH again. The staff who let us in immediately explained that after we had left the day before, Mil had blown - she had attacked members of staff leaving scratches and bruises, and hit another resident in the face
She suggested I had a word with the nursing senior - who is lovely - so while the kids went to Nan (who we were told seemed to be in a good mood at that time) I went to speak to the senior, S.
They are pretty concerned about Mil and her behaviour at the moment. She is getting more and more physically aggressive and I got a strange feeling of deja vu because S said that they just couldn't believe how resistant she is to any form of distraction, that absolutely nothing they say or do makes any difference when she is heading for a melt down
As you guys all know, that has been a feature of Mil's dementia all along, its something we experienced, something the staff at both day care centre's experienced, and even something commented on and experienced when she was in hospital. S added that the explosion on Christmas day was the worst that they had seen so far. The resident she had hit was one that she has targetted a few times, though no one knows why (apparently he isn't at all aggressive or given to being unpleasant) - but Mil seems to have an intense dislike for him, and they spend a lot of time keeping them apart, as MIl will head for him when she is in a bad mood. S described Mil's behaviour the day before as 'unbelievable' saying she had never seen anything like it. And I was instantly worried that this was going to lead to us being told that Mil couldn't stay there. So I asked was it likely that they would have to say they couldn't keep her. S told me not at this stage - Mil's behaviour is bad, but at the moment they are coping with her and they will continue to do so for as long as they possibly can. The tipping point would be if the aggression increased to the point that it was constant and that other residents would be in danger of being seriously hurt. Mil was put on quetiapine a few weeks ago, by the GP, when this current phase of aggression started to be a problem. And again that feeling of deja vu, as S told me that though initially they thought it helped, very quickly Mil seems to have become used to it, and already, it's not having any impact on her at all. Boy - how many times did that happen when she was here with us? How many different meds were tried and how many times did she quickly build up a tolerance to them? However, she is on the smallest dose at the moment, so as S put it, there is 'wriggle room' to increase and hopefully manage her behaviour or stop it getting any worse for a 'good while' longer. S also said - very gently - that Mil was deteriorating in other ways, and that what they hoped to do was to manage her behaviour until the next big step down in the dementia, because it's likely that as that happened, Mil would lose the ability to be so aggressive or lose her mobility, which would keep the other residents safe.
I went to join the kids and Mil feeling partly reassured by the homes obvious determination to hold onto Mil, but there is now also that possibility that they won't be able to keep her hanging over her future - and once again, dementia has left me hoping and praying for a quick deterioration, to render her incapable of the aggression, which feels very wrong and has set the guilt monster nagging at me again. I have the stick to hand, to bash him with, but he is a persistant devil, isn't he?
Mil was - thankfully - in the best form I've seen her for ages! Again, I am not sure to what extent she knew exactly who we are, but she was clearly relaxed and very 'switched on' . She hasn't seen oldest for quite a few months and commented on how much her hair had grown. She also turned to me and announced that my hair looked darker and when did I dye it? And she really seemed to enjoy her gifts from son - a teddy in Limerick City football strip, a tin of biscuits, with Mrs Brown on the front, and a 'fiddle muff' - sounds very odd, but its a reversable muff, with buttons and beads and ribbons work into the knit (and all different types of knitting, for added texture), that she can play with and she loved it! She kept stroking it, putting her hands in it, playing with the beads and bobbles - she even worked out how to turn it inside out! She left us amazed by being able to read the slogan on the side of the Mrs Brown biscuit tin - it being Mrs Brown, the language was a lot ripe, and Mil found that extremely funny, though it did lead to her repeating a very rude word several times, in between guffaws of laughter! We were stunned - the last report said that Mil was now unable to read - maybe if they test her again, they need to throw in a few swear words?
The odd speech was still evident though - she commented that she had never
'seen a teddy dressed in Limerickcitylimerickcitylimerickcitylimerickcitylimerickcity football kit' before. But, she was all smiles and laughs, and when I handed her the gift that I had got her for her grandson, she gave it to him and when he unwrapped the toiletries and she saw the picture of David Beckham on the box, she squealed that he was 'nice' grabbed it back and covered the pic in kisses, laughing her socks off as she did it.
We stayed for about 45 minutes, and again, she wasn't bothered when we left. Talking in the car, we realised that certain upsetting features of the dementia do seem to have disappeared as the dementia has worsened - no talk of gun men or babby's for several months now, no begging us to take her home or extreme upset when we leave. No mention for several weeks now , of her believing that OH is her husband. Its a bloody shame that the aggression has got worse instead of better and that we are left hoping for another deterioration that will see that vanish too
Right - I've ages off loading on you guys (again!) - for those that have managed to get through that mega post, thank you - and conratulations! I had better shift myself and at least get dressed and start the usual jobs around the house!
Hope you all have enjoyed, and continue to enjoy Christmas - take care everyone xxxx