A friend is always sending me articles about dementia. There was an article in the New York Times earlier this week.
The title was Unusual Ways of Treating Dementia.
I find things like this so frustrating. It was talking about a facility in the Netherlands with 210 patients of which 90 were being given this special care.....a drop in the bucket.
Clearly the facility has excellent palliative care for people dying of dementia. But the headline is misleading. This is not about “treatment” or “fighting the disease”. We still do not have treatments that restore people enough to function with independence. A less stressed and peaceful environment is of course a very good thing. But staring at pictures of nature on my ceiling does not seem much of a life and is not a treatment but rather comfort care.
I get upset when people send me this stuff.
I told my husband family years ago to quit sending me stuff about cures and care....they stopped.
Angry at the NYT as the writer does not know the difference between fighting the disease and managing the disease. Ignorance is everywhere.
Upset that my friend does not realize that after 16 years I am doing whatever I can to relieve the stress and anxiety in my hubby's life . This information is not new to me.
Oh, well once again it is about acceptance. People do what they want or can to make themselves feel better. She thinks it is helpful, and caring but it is annoying. I guess I should tell her.
Being helpful to me requires action. I have a young expatriate woman friend who is alone here in Basel. She is having a minor operation next week and will have a day surgery. But she will have a long weekend at home to recover. So, I am making her some frozen prepared meals to give her. Yesterday, I made braized meatballs, Delia Smith recipe I love, today I will make enchiladas (i prepared the sauce yesterday so one step in the process completed) and tomorrow, I will make a chicken spinach savory bread pudding. Her dad died two years ago of cancer and her mom died last month after about 7 years of dementia.
This afternoon I will practice guitar and sing with a friend. And dinner out at friends house tonight with hubby.
Just have to keep on keeping on.....find those moments of joy and pleasure. Move off anger.
The title was Unusual Ways of Treating Dementia.
I find things like this so frustrating. It was talking about a facility in the Netherlands with 210 patients of which 90 were being given this special care.....a drop in the bucket.
Clearly the facility has excellent palliative care for people dying of dementia. But the headline is misleading. This is not about “treatment” or “fighting the disease”. We still do not have treatments that restore people enough to function with independence. A less stressed and peaceful environment is of course a very good thing. But staring at pictures of nature on my ceiling does not seem much of a life and is not a treatment but rather comfort care.
I get upset when people send me this stuff.
I told my husband family years ago to quit sending me stuff about cures and care....they stopped.
Angry at the NYT as the writer does not know the difference between fighting the disease and managing the disease. Ignorance is everywhere.
Upset that my friend does not realize that after 16 years I am doing whatever I can to relieve the stress and anxiety in my hubby's life . This information is not new to me.
Oh, well once again it is about acceptance. People do what they want or can to make themselves feel better. She thinks it is helpful, and caring but it is annoying. I guess I should tell her.
Being helpful to me requires action. I have a young expatriate woman friend who is alone here in Basel. She is having a minor operation next week and will have a day surgery. But she will have a long weekend at home to recover. So, I am making her some frozen prepared meals to give her. Yesterday, I made braized meatballs, Delia Smith recipe I love, today I will make enchiladas (i prepared the sauce yesterday so one step in the process completed) and tomorrow, I will make a chicken spinach savory bread pudding. Her dad died two years ago of cancer and her mom died last month after about 7 years of dementia.
This afternoon I will practice guitar and sing with a friend. And dinner out at friends house tonight with hubby.
Just have to keep on keeping on.....find those moments of joy and pleasure. Move off anger.