Expert Q&A: Rare dementias - Tues 3 March, 3-4pm
Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.
You can either post your question >here< or email them to us at firstname.lastname@example.org and we'll be happy to ask them on your behalf.
Sorry Officer but I don't understand what you are asking, I'm sure it's just me but could you expand on what you want to know, I understand that you are angry about a lack of understanding about dementia, but ...How has the lack of understanding in the family, or work place to the progress of dementia before diagnosis. And how it can affect the individual after the diagnosis with the lack of knowledge in the workplace, and in the general population
The slow initial progress of my front temporal dementia before diagnosis had changed my character to the degree that it cost me my employment, and my family. Nobody recognized the changes for what they they were. I now realize that the changes affecting me had totally changed me in all ways from unable to take verbal instruction to becoming sexually aggressive. Decision making switched itself on, and off at will. This had a huge effect as this capability was very important in my then employment. In my relationship, well after many years of a good marriage I threw it away by becoming aggressive, angry, basically a bad egg.How has the lack of understanding in the family, or work place to the progress of dementia before diagnosis. And how it can affect the individual after the diagnosis with the lack of knowledge in the workplace, and in the general population
Please keep returning to your doctor benny, you must be listened to.HEY this is real and the way I am feeling I just dont wanna be a part of life anymore but NO no- one will listen!!!!! I really do know how you must have felt just wish someone would listen to me!!!!!