If putting myself up as a human 'guninea pig' for the rest of my life and beyond does not directly relate to caring - then tell me what does?
I want for no-one to ever go through what my mum is going through - what my dad, my aunts, in-laws etc etc have gone through (with different diseases) ..... if I haven't been able to make their lives better while they have suffered .... well, maybe I can help make someone else's better or at least easier in the future ....
If all I can do as a carer now is to organise, to worry, to flit about with meals and medications .... to care as best I can ....... to avoid that type of role for my son, to make life easier for him, his peers and the next generation ..... to think they may be prevented from the ravages of diseases we have had to witness and care for or suffer ....... then forgive me for even worrying about a bit of blood being taken and an anonymous 'consultation' ........ (Ok - the on-going commitment is a bit scary)
My caring role seems pretty hopeless ... but I'm still trying to care - on one level for my mother .... and on others too ..... which may afford some hope ......
Maybe this is more directly related to caring than you think, Jennifer ..... when we are frustrated there is almost nothing we can do - to be handed an opportunity 'on a plate' to try to make some positive difference (albeit not with immediate impact) it is VERY relevant to caring .... if it is just making carers feel good about themselves ........ which has a HUGE direct impact on our caring capacity .....
Thanks especially to Craig, for helping me 'think out loud' .... and assuage/balance the worries ...... This is no 'fun adventure' ....... I will have to take yet more 'time out' to attend the nearest assessment centre - and my medical history is not fun reading - but Godammit - I WILL do this for mum ........ and everyone else's mum, dad, partner etc etc ....past, present and future ........
Karen, x
I want for no-one to ever go through what my mum is going through - what my dad, my aunts, in-laws etc etc have gone through (with different diseases) ..... if I haven't been able to make their lives better while they have suffered .... well, maybe I can help make someone else's better or at least easier in the future ....
If all I can do as a carer now is to organise, to worry, to flit about with meals and medications .... to care as best I can ....... to avoid that type of role for my son, to make life easier for him, his peers and the next generation ..... to think they may be prevented from the ravages of diseases we have had to witness and care for or suffer ....... then forgive me for even worrying about a bit of blood being taken and an anonymous 'consultation' ........ (Ok - the on-going commitment is a bit scary)
My caring role seems pretty hopeless ... but I'm still trying to care - on one level for my mother .... and on others too ..... which may afford some hope ......
Maybe this is more directly related to caring than you think, Jennifer ..... when we are frustrated there is almost nothing we can do - to be handed an opportunity 'on a plate' to try to make some positive difference (albeit not with immediate impact) it is VERY relevant to caring .... if it is just making carers feel good about themselves ........ which has a HUGE direct impact on our caring capacity .....
Thanks especially to Craig, for helping me 'think out loud' .... and assuage/balance the worries ...... This is no 'fun adventure' ....... I will have to take yet more 'time out' to attend the nearest assessment centre - and my medical history is not fun reading - but Godammit - I WILL do this for mum ........ and everyone else's mum, dad, partner etc etc ....past, present and future ........
Karen, x