I don't want to intrude at a sensitive time, but you can help make this happen.I have been so touched by all of your words. It has given me so much unexpected comfort. Earlier in the day I was thinking about the effect tp has had with me in such a short space of time and realised that it's like an extended family with a common thread.
This thing that attacks our loved ones is still so incredibly unreconised as a terminal illness. Something has to be done to change the perception of it and ALL it entails.