lynne
Hi Lynne. I was told that when a person passes it is very rare that cause of death is put as dementia so you can imagine my shock when the doctor put it down. My Mum requested no flowers so I am going to ask for any donations to go to AD. My son has also put the charity forward to be considered for his company to support. It's not a done deal but they will look at all suggestions. Fingers crossed. I am struggling at the moment, I had no support from my siblings while Mum was here and get none now. You don't realise how isolated you become whilst caring especially as it becomes harder to get out of the house.The social worker rang me yesterday saying that if there was anything she could do to please call her. I had to practically beg this person for a 3 hour sitting service, there was nothing else she could do for me. I needed the help then, what could she possibly do for me now? The care packages available need to be tailored to an individuals needs. Not, you can have this, this and this but if you don't need it then you can't have anything else. These people have to help us when we need it before we get to the stage where we are so despersate we can't see an end to it. We need to be able to care for our people at home if we want to and get the necessary support. Good quality practical help not lip service and a pat on the head.