1. Liz&family

    Liz&family Registered User

    Jun 15, 2005
    12
    my mum is just being diagnosed with alzheimers. She lives alone and at the moment I am largely relying on friends of hers to support and help her. I do have social services carers going in 2xday for half an hour but I feel that this isnt enough and its getting to the time for her friends to be her friends not her babysitters, if you know what i mean.
    Can anyone give me any idea what support I can get from the sate once a diagnosis is confirmed, any tips to get as much help as possible please?
    many thanks
    Liz
     
  2. Sheila

    Sheila Registered User

    Oct 23, 2003
    2,259
    West Sussex
    Hi liz, just from my own experience, if the state are now involved, you should have access to a social worker or a CPN, if not, ask for one.They are your first link to an appropriate care package for your Mum. You need to discuss with them and the rest of your Mum's care team, (by that I mean GP, Specialist who made diagnoses, hospital etc), how to arrange a package that caters for your Mum's needs.
    When you discuss this, it is important that you dwell more on the downs than the ups, that way you will be covered on a bad day with any luck. If the team feel that your Mum is capable of living alone, it is up to them, (with you pointing out the problems faced) to organise a care plan that fits her needs.
    This package could include help at home with dressing, undressing, personal hygene, meals etc. It may also include day centres and respite weeks.
    You will need to say how much commitment you can give to this and how much help you will need for the times you cannot be with her.
    From these inputs, they can then work out how best to help.
    Having said that, the help they say you need is not always the help you get!!
    If your Mum is self financing, you are more likely to get what is required as you (she) will foot the bill. If not, it will be what the local council can afford I am afraid. It is an awful situation, but one that you need to get to grips with. If you have a Crossroads or an Alz. Soc. in your area, they may be able to help. Some of this is paid for and some will be free or subsidised, depending on what is available and your Mum needs. My Mum went to a Crossroads day care centre on Mondays, cost her just the lunch, about £3. A council run day centre would be much more than this. For a few weeks, she also went to an Alz. Soc. Saturday club, cost £2.50, sadly this folded through lack of use, I cannot understand why it was not used, it was wonderful, safe and almost one to one, what more could you ask? If this sort of package is set up, it will give you a breathing space. Sadly, your Mum's needs will be more as the illness progresses. You need to think long and hard about what you will need to do when she can no longer live alone. What ever you decide, we will be there every step of the way, non judgemental and hopefully of help. Thinking of you, love She. XX
     
  3. Jude

    Jude Registered User

    Hi Liz,

    Sheila's pretty well covered it there I think.

    Once you've got some care in place, then don't forget to ask the Care Assessor about an appropriate level of Attendance Allowance for your mother. It will help to pay for some of the carers.

    Jude
     
  4. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    Liz
    I think Sheila and Jude have given you some good information.
    In addition when you get a SS assessment for Mum ,ask for an assessment for yourself.
    Under the carers charter this is an entitlement.
    Good Luck
    Norman
     
  5. Liz&family

    Liz&family Registered User

    Jun 15, 2005
    12
    thats a great help thanks,
    I have had a call tonight from our social worker who says she is handing mums case over now to the mental health team and that my contact there will be in touch with me next week. It sounds like we have now reached a diagnosis too (hence the transmission from SS to MH).
    also had a call from the Depenants Allowance people today - they need to meet with us to get authority for me to deal with it from Mum, but claim will be agreed and backdated. so a positive day for me on the Mum front today!
    As always thanks for your time and advice!
    Liz
     
  6. Sheila

    Sheila Registered User

    Oct 23, 2003
    2,259
    West Sussex
    Dear Liz, so glad things are improving, love She. XX
     
  7. Jude

    Jude Registered User

    Hi Liz,

    Good news indeed. Take it 'slowly but surely'.
    Best wishes,

    Jude
     

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