1. Expert Q&A: Protecting a person with dementia from financial abuse - Weds 26 June, 3:30-4:30 pm

    Financial abuse can have serious consequences for a person with dementia. Find out how to protect a person with dementia from financial abuse.

    Sam, our Knowledge Officer (Legal and Welfare Rights) is our expert on this topic. She will be here to answer your questions on Wednesday 26 June between 3:30 - 4:30 pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

  1. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    #1 Norman, Aug 12, 2006
    Last edited: Aug 12, 2006
    Does anyone have experience of obtaining respite care?
    Is there any laid down periods of applying,every 3 months etc.
    At patients home or in a care home.
    Social Worker arranges it?
    There seems to be a lck of clear guidance and I am wodering if we can put something together
    for our resources section.
    Norman
     
  2. wendy43uk

    wendy43uk Registered User

    Dec 22, 2005
    64
    sheffield
    restbite care

    hi norman i was told i can have restbite care 2weeks every 6 weeks at the cost of 117 pound aweek which i cant aford hope this helps wendy
     
  3. Lila13

    Lila13 Registered User

    Feb 24, 2006
    1,342
    My mother's was arranged by a social worker. But she only got in at short notice because one of the regulars was going away on an Easter holiday

    Some people get a week every 4 weeks, or 8 weeks depending on need and local availablity.
     
  4. Rosalind

    Rosalind Registered User

    Jul 2, 2005
    203
    Wiltshire
    I am told we can have it for my husband, subsidised because he has no assets, for 8 weeks in any year. The local authority bulk buys a number of beds in two local homes, which are only used for respite. He has had one week already, in a home that was mainly just for old people, not an emi one, and hated it, but is now going to another one that is for emi patients for day care once a week, which he does not loathe (and I am told appears to enjoy when there, joining in with everything) and he is booked in for a stay later in the year when I am having a week's holiday.
     
  5. Grandaughter 1

    Grandaughter 1 Registered User

    Jan 17, 2006
    141
    Hampshire
    Well my Grandad is booked in for his 1st one next week. Nan just spoke to the CPN and he arranged it. I don't know if it is a one off or there will be more to follow.
     
  6. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    I was told I have 8 weeks a year starting from the financial year march ending the following year April.

    Therefore, since April 06 this year I have had one week so have 7 weeks left. My Social worker says she can book it a mouth in advance so I have book to weeks in September 8th. so I was thinking if I book a respite every 3 mouths over the year 06
    June 1 week

    Septemebr 2 weeks

    December 2 weeks

    March 3 week that be my 8 weeks done for the year 06.

    then it starts againa April 07 ……8 weeks
     
  7. pammy14

    pammy14 Registered User

    Dec 5, 2005
    103
    leicestershire
    I have has 3 separate weeks for my sister since Feb and another long one in Dec/Jan when we go to NZ to visit my daughter, booked through SS at their council respite unit. I have booked one privately at a care home for next week as each time I ask SS I feel I have to Justify myself and the cost is the same anyway £450.00 per week.

    I don't know whether to book a SS one for November or go private- we will see how she gets on at the care home,
     
  8. shauny

    shauny Registered User

    Oct 27, 2005
    57
    north-east england
    respite

    Norman, as a front line social worker i can assure u that another post code lottery is definitely respite. Where i am every 6 weeks if i can get a place! a lot of the clients i deal with i try and organise a yearly respite plan for them. I am about to move to another local authority so it will be intresting to see how they do it. Im afraid the goblins in Whitehall don't believe in national conformity or provide the adequate resources to help families. Shauny
     
  9. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    HI Shauny
    I know that you are right ,I am gathering evidence.
    Are you coming my way when you move? I wish.
    Norman
     
  10. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    Definately no SS respite in this area.

    I am lucky in that Lionel has some savings, so that I get a break. All of Lionel's young friends, and their carers are not so luckly. Respite is a dirty word in south Essex.
     
  11. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    #11 Margarita, Aug 14, 2006
    Last edited: Aug 14, 2006

    shauny Move to Hammersmith fulham as you say

    I read a report that my daughter done it says that 90percent of Social worker job taken up with paper work So 10 percent is left for service user :eek:


    Looks like
    When a love one gets dementia
    There should be a list in what area is the
    For the best local authority -Social services for people with Dementia .

    SO to put that other Authority that is not so good to shame (something to do with Best practice ) I know I read this in my daughter report that is what Tony Blaire is trying to do so There competition between local Authority .
    .



    But can't find out where to look it up , also how I find from reading on TP how some local Authority class
    Dementia, I am told I cannot get a CPN in Hammersmith fulham for my mum, because it does not come under mental illness. Tony Blaire is changing the system.

    They have a carer group for the mental ill, but I cannot join them because my mum does not have a mental illness. Because Dementia – AZ is organic not a mental illness

    On TP I read that other people get CPN in there local Authority
     
  12. shauny

    shauny Registered User

    Oct 27, 2005
    57
    north-east england
    respite

    Hi Norman & Margarita, il pick up on a couple of points u have both raised.

    1/Margarita, i am gobsmacked that u were denied a cpn, i work pretty closely with the community psychiatric team and we both work for what is best for our clients with dementia's. This highlights the regional differences in support but i did'nt realise it was this bad.

    2/ Norman, i had a general discussion with a couple of colleagues today about respite. I am not sure if there has been any independent research into the regional differences which there obviously are. I am wondering if the Alzheimers Society has done any independent research into this very important area? perhaps as a moderator u could raise it with them?

    Shauny.
     
  13. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    Shauny
    I have today asked the question
    Norman
     
  14. Lila13

    Lila13 Registered User

    Feb 24, 2006
    1,342
    I don't think my mother's social workers realised she had dementia.

    But then she only saw them for 2 short visits (one each visit, so the first one couldn't see changes).

    Lila

     

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