I’ve been trying to find other fellow sufferers of dementia, to share our experiences in hope that together we can do something positive about it.
However, I’m not having much success, yet, but I will keep trying. So, while I continue on this task, I realised that there is another avenue to explore in regard to all things dementia related and that is of course Carers.
Carers’ have a unique and extensive knowledge, based on first hand experience. I’m hoping you will help me by sharing that knowledge and expertise. On this forum alone, there are over 64 thousand registered members and together with my own findings, evidence suggest that the majority of those registered are Carers. This means that a far greater pool of knowledge exist here, than any I would hope to find related directly to people sufferering first hand with dementia.
This is how I would like you to help;
Each week I will produce a small set of questions. I wish to keep the number of questions low, so I can focus on a theme for the questions and avoid the drudgery of that tedious batch of questions that jump from one theme to another. Hopefully by doing it this way, you are more likely to be willing to contribute. I’m hoping that, because it will only require a very short amount of your time to respond, a large group will be happy and keen to get involved and the higher the response the greater the related outcome.
I will require no names, or any personal information. The answers given will be based solely on trust. I don’t see that anyone in the roll of a Carer, or patient, would want to falsify answers. I was told that to give any value to the information I gained, I would need to verify the source of that information. This is true if I was taking an academic path, but I’m not. This is purely for the benefit of sharing collated information to those that could hopefully benefit from it ie, those that have a direct, or indirect connection with some form of dementia, now and in the even those to come in the future. I think it is important to accept your sincerity and give value to the answers you give and think they deserve.
As the answers to the questions arrive, I will collate the findings and keep you informed of the progress and outcome. I want people to be aware of the results and maybe make conclusions based on those findings, plus raise concerns, ideas and suggestions, that will lead to further questions that can be set here at a future date. In this way I see the information and findings developing as we progress, rather that setting out to answer a singualr question.
I hope that you will to accept my explanation and will happily take part. I’m excited to see how the response and method develops. If you have any ideas, suggestions, possible questions, then I would be truly grateful to receive them?
Please note: It is obvious that the response of a Carer, may be different to that of anyone with dementia, so I would ask that I start each week’s questions by asking you to say if you are a Carer, or have dementia.
The questions relate to the person being cared for, or the person with dementia.
Please try and keep your anwsers concise as possible.
Below are this week’s questions.
Are you, or have you been a Carer, or do you have Dementia?
1. What is the name of the Dementia?
2. What was the first signs, or symptoms you noticed?
3. How many years ago did you first notice these signs, or symptoms?
However, I’m not having much success, yet, but I will keep trying. So, while I continue on this task, I realised that there is another avenue to explore in regard to all things dementia related and that is of course Carers.
Carers’ have a unique and extensive knowledge, based on first hand experience. I’m hoping you will help me by sharing that knowledge and expertise. On this forum alone, there are over 64 thousand registered members and together with my own findings, evidence suggest that the majority of those registered are Carers. This means that a far greater pool of knowledge exist here, than any I would hope to find related directly to people sufferering first hand with dementia.
This is how I would like you to help;
Each week I will produce a small set of questions. I wish to keep the number of questions low, so I can focus on a theme for the questions and avoid the drudgery of that tedious batch of questions that jump from one theme to another. Hopefully by doing it this way, you are more likely to be willing to contribute. I’m hoping that, because it will only require a very short amount of your time to respond, a large group will be happy and keen to get involved and the higher the response the greater the related outcome.
I will require no names, or any personal information. The answers given will be based solely on trust. I don’t see that anyone in the roll of a Carer, or patient, would want to falsify answers. I was told that to give any value to the information I gained, I would need to verify the source of that information. This is true if I was taking an academic path, but I’m not. This is purely for the benefit of sharing collated information to those that could hopefully benefit from it ie, those that have a direct, or indirect connection with some form of dementia, now and in the even those to come in the future. I think it is important to accept your sincerity and give value to the answers you give and think they deserve.
As the answers to the questions arrive, I will collate the findings and keep you informed of the progress and outcome. I want people to be aware of the results and maybe make conclusions based on those findings, plus raise concerns, ideas and suggestions, that will lead to further questions that can be set here at a future date. In this way I see the information and findings developing as we progress, rather that setting out to answer a singualr question.
I hope that you will to accept my explanation and will happily take part. I’m excited to see how the response and method develops. If you have any ideas, suggestions, possible questions, then I would be truly grateful to receive them?
Please note: It is obvious that the response of a Carer, may be different to that of anyone with dementia, so I would ask that I start each week’s questions by asking you to say if you are a Carer, or have dementia.
The questions relate to the person being cared for, or the person with dementia.
Please try and keep your anwsers concise as possible.
Below are this week’s questions.
Are you, or have you been a Carer, or do you have Dementia?
1. What is the name of the Dementia?
2. What was the first signs, or symptoms you noticed?
3. How many years ago did you first notice these signs, or symptoms?
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