Hiya
Typically Karen
Sorry folks............i think the guns should be aimed at me as i think i'm responsible for this:
Causing trouble again eh? .............sorry, but i did say words to this effect.........i'll try to explain:
The reason i haven't posted this up to now is that i don't want to hurt people who are already hurting in their struggle to cope with caring, but i feel its something i need to mention.
I must admit, that at first i thought the "After Dementia - dealing with loss" was a fantastic idea, but it seems to me that myself and other members (not all) who have been bereaved, feel isolated from the main board and feel we can only post in the "After Dementia section"
Apart from Sylvia and Hazel, the "After dementia" section does not recieve a lot of support (other than from those who have been bereaved).............i understand that carers are sometimes too busy coping with the daily chores of caring and that the topic itself can be emotional and uncomfortable for some, but without support - how can we help those who have offered us support throughout their caring period?
I was talking to a member (for imformation purposes - it was not a sista ) who suffered a bereavement and they said they were leaving TP as they felt they no longer belonged here and that they felt that AS did not offer the support they now needed................now this might be a different topic altogether........(apologies to Jennifer for stealing this thread and maybe Brucie might want to move it) but it seems to me that Dementia is AS's business...........it seems to me that (Sorry once again!) but everyone dealing with Dementia will at some point deal with death............Dementia, as already stated is a "different kind of death" to most others
Blue sea
It seems to me that there are more people who have suffered bereavement from dementia than there are carers, yet AS and TP offer little support to those who are bereaved.
To have members that feel it is time to move on is good and a natural thing, but not because they feel they can't get the support they need.
I don't know what the answer to this is, but i thought i should mention the problem, otherwise how can we begin to deal with a solution?
Right then..........fire away!
Love Alex x
two-footed and unarmed i go wading in when i think someone else might get hurt......
Typically Karen
Sorry folks............i think the guns should be aimed at me as i think i'm responsible for this:
I am keenly aware some people who have been very valued members of TP feel somewhat 'distanced' from the main boards since their own losses ... also that the 'Dealing with Loss' section has been a debatable point for some time as to whether it was a place of isolation ..... from different perspectives ...
Causing trouble again eh? .............sorry, but i did say words to this effect.........i'll try to explain:
The reason i haven't posted this up to now is that i don't want to hurt people who are already hurting in their struggle to cope with caring, but i feel its something i need to mention.
I must admit, that at first i thought the "After Dementia - dealing with loss" was a fantastic idea, but it seems to me that myself and other members (not all) who have been bereaved, feel isolated from the main board and feel we can only post in the "After Dementia section"
Apart from Sylvia and Hazel, the "After dementia" section does not recieve a lot of support (other than from those who have been bereaved).............i understand that carers are sometimes too busy coping with the daily chores of caring and that the topic itself can be emotional and uncomfortable for some, but without support - how can we help those who have offered us support throughout their caring period?
I was talking to a member (for imformation purposes - it was not a sista ) who suffered a bereavement and they said they were leaving TP as they felt they no longer belonged here and that they felt that AS did not offer the support they now needed................now this might be a different topic altogether........(apologies to Jennifer for stealing this thread and maybe Brucie might want to move it) but it seems to me that Dementia is AS's business...........it seems to me that (Sorry once again!) but everyone dealing with Dementia will at some point deal with death............Dementia, as already stated is a "different kind of death" to most others
Blue sea
Losing someone who has had dementia is a particular type of loss. No-one can say it is worse or better than death from any other illness, it is just different. It leaves you with different issues which can be complex. There may be a sense of guilt, that we all probably feel - could we have done more as carers? There is the difficulty of regaining the memory of how the loved one was before the dementia. There is the ambiguity of feeling relieved and thankful for the death. There is the huge hole left by no longer having someone to care for and worry about on a daily basis
It seems to me that there are more people who have suffered bereavement from dementia than there are carers, yet AS and TP offer little support to those who are bereaved.
To have members that feel it is time to move on is good and a natural thing, but not because they feel they can't get the support they need.
I don't know what the answer to this is, but i thought i should mention the problem, otherwise how can we begin to deal with a solution?
Right then..........fire away!
Love Alex x