I don't know what more I can add that hasn't already been said, but I couldn't pass by and say nothing.
It is understandable that circumstances overwhelm us at times, anyone looking after a loved one with this awful disease will tell you as much. It does help to talk to someone, to know that we are not alone in our thoughts and experiences, but also to know that others have been in the same place and pulled themselves out of the mire.
What can seem an endless bleakness can change in the light of a new day. Things will never be as we had once hoped, maybe even expected - but it is not all a dark future. There are still many good experiences to be had, they may come out of nowhere and most unexpectedly, but they will come.
Keep talking, keep sharing. Let others help lift the weight for you - and above all, know that as isolating as this disease can be, you are far from alone xx