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Need to unload/talk

Unsure2021

Registered User
Jan 1, 2021
25
0
Ah right, I've looked and it has its own gp surgery too, never mind,he's against swapping GPS, email is sent will just have to wait and see now
 

lushr

Registered User
Sep 25, 2020
94
0
wow @Unsure2021 it seems you both are in need of careers and both have serious needs. it is stressful caring for someone else when you aren’t doing great yourself, and it is always fun to care for someone in denial of their health issues.

my dad suffered deep depression and post traumatic stress disorder when he had his heart attack, he was never sick, and to suddenly be vulnerable, have pain walking, he felt trapped. and his temper was flaring from the PTSD. fortunately i work with nurses and they gave me great advice and i was able to explain to him why he felt so down and so scared.... sorry it is off topic, but what i’m saying is i know what it is like dealing with someone that won’t talk to doctors etc. and so there’s an element of fear, vulnerability and denial. it’s a big deal.

im glad you’ve been able to vent here.... talking is really healthy, it helps you sort out your worries, and get relevant advice from people who have had similar experiences. it’s not a betrayal because you need the help processing all that has happened as well.

ifyou can get a psychologist to talk to, or a Gp. that will give you someone safe to deal with your fears and worries. and you can just say “i’m suffering anxiety i need help” and that doctor might be able to back you up and say “you must walk x amount each day” like a prescription, no arguments. the doctors would be aware of the need, and therefore there won’t be a challenge to your need to get out and exercise (which there wouldn’t be anyway).

fresh air does the world of good. even if it’s only walking a couple of houses and back. it makes a difference (says the lady who never leaves her home!).

i hope you find talking here helpful. i have. people here have a wealth of experience and have helped me through really rough stuff.

and now i’m going to go for a walk - you inspired me! even if it’s only a couple of houses and back!
 

Unsure2021

Registered User
Jan 1, 2021
25
0
Update..OH was complaining of chest pains wed,I got him to go to a&e where they admitted him,. ( At home now ) Lots of blood tests done,ECG,chest x-ray... wasn't allowed with him but I spoke to nurses and made them aware of concerns, I don't have alot of info.
Trop level was 11 (heart damage protein) but since being discharged he's told me he had massive pain around new year, felt like someone put hand in chest and ripped his heart out.,....so trop lvls could have already peaked and dropped by time he went hosp.
D-dimer (to do with blood clot breaking down) lvl was 100 , supposed to be below 50. He was given aspirin, antiplatelets and 3 blood thinner injections in stomachache aswell as other tablets he can't remember what they were,
he has high blood pressure,
was moved wards in the middle of the night due to lower blood pressure number being almost as high as the top number.
Throughout his stay every blood sugar finger prick was spot on.
They tried to send him over to sleep clinic tonight but he refused, using me as an excuse, saying he's my main carer and I can't be left too long as I could end up over doing it and end up bedridden with pain. Told me that if they had tried to insist then he would have discharged himself .
He's come home tonight with referral for sleep clinic (probably next week,they want it sooner rather than later), referral for echo,. Heart specialist wants to see him again in two months. And blood pressure tablets.....they think he has sleep apnea.

I do have his discharge papers with big list of bloods done and the results but just too tired to decipher it lol
 

Unsure2021

Registered User
Jan 1, 2021
25
0
I'm not sure if he was anywhere long enough for them to see anything, he went from A&E to observation ward to respiratory ward to cardiology ward, was moved around alot.
He has told me off 1 incident that could be true or he could be mistaken about.
Bloods taken every 6 hours, nurse took blood at 5.30pm last night,he said doc took it at 4pm,nurse said to him 'oh well you've had it done twice now'..
..was it taken twice? Is he just confused what time doc took it and nurse just agreeing with him.
 

Unsure2021

Registered User
Jan 1, 2021
25
0
Actually got him to an appointment at the doctors yesterday,it was just a blood test with a nurse but he went.

Appointment thru for contrast heart echo and they are going to send him home with sleep assessment equipment to do it at home... 22nd Feb.


He's started to forget how to use the TV controller now, often passes it to others to turn over.

He had a poor nights sleep last night,thought he kept hearing the backdoor handle being tried.

This last few days he has misplaced something,turning the house upside down for an HR or so looking,then it's like he forgets for a few hrs and then starts looking again.

He keeps saying that I am saying his name when I'm not saying anything at all.
 

canary

Registered User
Feb 25, 2014
14,602
0
South coast
So difficult @Unsure2021
These are things that seem very familiar to me. GPs are (understandably) really only interested in covid and emergencies at the mpment, but perhaps you could keep a diary of all these odd things and update the GP when things are less fraught.
 

Unsure2021

Registered User
Jan 1, 2021
25
0
I do have and am adding to a list.
I did email the doctor couple of weeks before he was admitted for chest pains.

I spoke to a&e nurse over the phone also about his memory and lack of common sense at times (touching hob to see if hot, leaning over with knife in hand and nearly stabbing himself in the head). She was great, asked lots of questions.

so many blood tests done and delerium test.

abnormal liver and kidney results,high blood pressure,blood clot, abnormal heart protein result, suspected sleep apnea, lots for them to investigate....blood sugar, infection and everything else came back good.

gp actually rang him up for blood test as hospital had told them his memory was poor and even tho they had told him too book a test they didn't expect him to remember.

i know he/we got a long slog ahead, getting to the bottom of it but for now I feel like we are getting somewhere...he's starting to struggle to hide it all now,he couldn't repeat back to the doctors in hospital the instructions they had literally just given him. I am assuming they noticed something as I have never been asked to repeat back things like 'got to book gp appointment'
 

Unsure2021

Registered User
Jan 1, 2021
25
0
Does the pharmacist normally take over reviewing blood pressure meds? checking blood test results,asking for blood pressure monitoring, upping dosage and asking about additional testing being done.
Then arranging follow up phone calls.

Only asking as I assumed this would have been the gp.
 

Bunpoots

Volunteer Host
Apr 1, 2016
5,202
0
Nottinghamshire
Does the pharmacist normally take over reviewing blood pressure meds? checking blood test results,asking for blood pressure monitoring, upping dosage and asking about additional testing being done.
Then arranging follow up phone calls.

Only asking as I assumed this would have been the gp.

At dad’s practice it was the nurse who did these things although they would ask the doctor before changing meds.
 

Unsure2021

Registered User
Jan 1, 2021
25
0
Thanks,
I wondered if it was anything to do with his refusal to see/attend gp appointments in the past, maybe a work around.
 

nita

Registered User
Dec 30, 2011
2,053
0
Essex
Hallo, @Unsure2021 - I just wanted to say it may be routine for the pharmacist to take over this duty as recently the pharmacist at my GP surgery has been phoning me for my blood pressure readings and he also upped my amlodopine and then monitored it for a while as my BP was a bit high. It may be because GPs are too busy and short-staffed in the current situation.

I do hope you get some answers to your husband's many health problems soon. Did you say then that diabetes is not the problem as his blood sugars were OK? I know that can cause confusion and delirium if not right.
 

Unsure2021

Registered User
Jan 1, 2021
25
0
His blood sugars were good, long blood sugar test and all finger prick tests while in hosp too.

RBC and heamoglobin are high, something to do with low oxygen so looking at heart and sleep apneas atm.
 

Unsure2021

Registered User
Jan 1, 2021
25
0
He goes down hill around 4ish, almost into a panic,agitated, memory is worse but once he's ate he picks back up,
I've always put this down to his diabetes as he normally eats little during the day (and it's normally full of sugar) and 1 big meal at teatime.

Since being in hosp he's made a massive effort to eat regularly and healthily and this 4pmish thing has reduced significantly but it's still there.

But on the other hand Since being discharged I've noticed the stupidly manic good moods he goes into have increased and he doesn't know when to stop,when the fun/good mood goes to far.

And my god does he talk non stop about nothing and if you don't answer him or listen to him then there is something up with you! I just want to tell him to shut up for 5 mins sometimes.
 
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