Hi all
My mother is quite young, 65, and has had early onset frontotemporal (or however you spell it) dementia. This affects the front part of her pain which controls personality. She’s had this around 10 years now … that we know of - it took us an age to get her diagnosed (menopause and other things can make it difficult)
Anyway, my point is her personality has changed so much and she no longer remembers who we are, but she knows we are hers and we are safe (thankgod) we are looking to create or attend a young onset dementia group probably monthly. Safe place for dementia sufferers and carers in the hopes of creating a safe space and support network. There’s not a lot of support out there for carers and nobody understands the challenges we face on the daily and the changes we have to make like we do!
My family and I are based in the north east and wondered if there would be any interest?
My mother is quite young, 65, and has had early onset frontotemporal (or however you spell it) dementia. This affects the front part of her pain which controls personality. She’s had this around 10 years now … that we know of - it took us an age to get her diagnosed (menopause and other things can make it difficult)
Anyway, my point is her personality has changed so much and she no longer remembers who we are, but she knows we are hers and we are safe (thankgod) we are looking to create or attend a young onset dementia group probably monthly. Safe place for dementia sufferers and carers in the hopes of creating a safe space and support network. There’s not a lot of support out there for carers and nobody understands the challenges we face on the daily and the changes we have to make like we do!
My family and I are based in the north east and wondered if there would be any interest?