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Massive deterioration after hospital stay

MarleysMum

Registered User
Sep 17, 2020
14
My dad was diagnosed with vascular dementia just over 2 weeks ag. However he had a bowel op in Feb 19 and had post op delirium so a CT scan was done that showed damage caused by vascular dementia but this was never shared with us.
two weeks ago he tripped and fell at home. Paramedics were called and it was suspected he may have had a stroke. So admitted to a and e, tests done and all clear. However they needed to test for UTI but he went into retention and catheter inserted. UTI test clear. He was very wobbly on his feet and at risk of falling (wasn’t like that a couple of days prior) so agreed discharge to intermediary care home for rehab and assessment as he lives alone.
After 2 days at IMC they wee still concerned re weakness in left side so re admitted to hospital for further tests for stroke. All of these have been clear but he seems to have had another UTI and has been v confused. After 10 days he has now been discharged back to IMC. I have spoken to the occupational therapist today and the person he described is not the man I knew 2 weeks ago. He cant even stand unaided, but just over 2 weeks ago walked unaided (no stick, frame etc) around Asda with me. He’s had a bowel accident and didn’t even mention it and apparently is just staring into space and not engaging with anyone. The OT couldn’t believe it when I explained how he was managing only 2 weeks ago with minimal support.
The communication from the hospital has been non existent (I’m in the process of addressing that) and with local lockdowns I haven’t been able to visit him in the hospital or care home.
The OT said they will give him a couple of days to re adjust and will then start assessing him to see how he can improve.
my mum had VD so I know that there can be sudden deterioraten but it was never like this.
Has anyone had a similar experience and did your loved one manage to improve
Thanks and sorry for the long post
 

Duggies-girl

Registered User
Sep 6, 2017
2,096
Hi @MarleysMum Yes dad was admitted early 2019 with pneumonia (he was fine except he couldn't stand up) which worsened and he had to have intravienous antibiotics. The whole episode was a nightmare, dad changed from his lovely normal self into a frightened and agitated stranger. I became the spawn of the devil for a couple of days then dad had a heart attack followed by a stroke, he also had 3 falls in 3 weeks. We were called in on the night of the heart attack to say goodbye. It was a dreadful 3 weeks which I would never wish on anyone. The physio team were not very good although dad could just about stand with a frame after 3 weeks.

Yes he came home and he improved a good deal but that was down to me. While he was in hospital I visited twice a day and I got dad to stand and sit, stand and sit over and over again using the frame whenever I could. I never actually saw the physio people doing anything. After a couple of weeks at home dad managed to get himself to the bathroom on his own although it was very dodgy. Dad had another year at home and he became quite mobile with his frame but I had to move in 24/7 because he never got back to how he was previously. He didn't really know where he was and had to relearn the layout of his bungalow again although he never managed to recognise his kitchen again. He did return to his previous good natured self though which was a blessing as I don't think I would have coped otherwise.

Sorry that this has happened to your dad especially at this awful time of not being able to visit. It does sound as though your dad is worse than my dad was. I hope that you get some better communication from the hospital, I never managed to speak to a doctor in 3 weeks even though I was there twice a day and this was long before the covid thing.

Sorry that is very encouraging for you.
 

MarleysMum

Registered User
Sep 17, 2020
14
Hi @MarleysMum Yes dad was admitted early 2019 with pneumonia (he was fine except he couldn't stand up) which worsened and he had to have intravienous antibiotics. The whole episode was a nightmare, dad changed from his lovely normal self into a frightened and agitated stranger. I became the spawn of the devil for a couple of days then dad had a heart attack followed by a stroke, he also had 3 falls in 3 weeks. We were called in on the night of the heart attack to say goodbye. It was a dreadful 3 weeks which I would never wish on anyone. The physio team were not very good although dad could just about stand with a frame after 3 weeks.

Yes he came home and he improved a good deal but that was down to me. While he was in hospital I visited twice a day and I got dad to stand and sit, stand and sit over and over again using the frame whenever I could. I never actually saw the physio people doing anything. After a couple of weeks at home dad managed to get himself to the bathroom on his own although it was very dodgy. Dad had another year at home and he became quite mobile with his frame but I had to move in 24/7 because he never got back to how he was previously. He didn't really know where he was and had to relearn the layout of his bungalow again although he never managed to recognise his kitchen again. He did return to his previous good natured self though which was a blessing as I don't think I would have coped otherwise.

Sorry that this has happened to your dad especially at this awful time of not being able to visit. It does sound as though your dad is worse than my dad was. I hope that you get some better communication from the hospital, I never managed to speak to a doctor in 3 weeks even though I was there twice a day and this was long before the covid thing.

Sorry that is very encouraging for you.
Thank you for taking the time to reply. I suppose really I know he’s not going to get back to where he was prior to this. I’m fortunate that my sister in law is a manager at the IMC so at least she can go in to see him and she assures me that the physiotherapy there is very good. But it’s a long and familiar story that she’s not been there for me over the last couple of years so it’s been difficult to ask for and accept help (she’s my brothers wife who sadly died 4 years ago, 6 months after my husband died and 3 months before my mum died ). To be honest if she’d not seen him I’d wonder if they’d sent the right person home
 

Kellyr

Registered User
Aug 8, 2020
73
Hi @MarleysMum ..my mum has vascular dementia with some Alzheimers thrown into the mix (so weve been told). Shes had it for about 8 yrs. Last March she got an infection and was admitted to hospital with suspected sepsis. She had urinary retention so was catheterised and stuck in the hospital for 3 weeks. The hospital didnt do much about physio as she wasnt able to follow instructions so they gave up. She has been immobile ever since, but I was warned this might happen as the period of immobility can really mess up the brain function when you have any form of dementia. Aside from that shes not deteriorated as much as I would have expected but everyone with these problems is so varied based on so many different factors. Really sorry you cant see your dad at the moment. Its making everything so much more difficult but hope you get all the support you need going forward. Good luck
 

MarleysMum

Registered User
Sep 17, 2020
14
Hi @MarleysMum ..my mum has vascular dementia with some Alzheimers thrown into the mix (so weve been told). Shes had it for about 8 yrs. Last March she got an infection and was admitted to hospital with suspected sepsis. She had urinary retention so was catheterised and stuck in the hospital for 3 weeks. The hospital didnt do much about physio as she wasnt able to follow instructions so they gave up. She has been immobile ever since, but I was warned this might happen as the period of immobility can really mess up the brain function when you have any form of dementia. Aside from that shes not deteriorated as much as I would have expected but everyone with these problems is so varied based on so many different factors. Really sorry you cant see your dad at the moment. Its making everything so much more difficult but hope you get all the support you need going forward. Good luck
Thank you for your reply. My mum was the same - vascular dementia and Alzheimer’s. To be honest before she was diagnosed I had no idea that there were different types and that it could be mixed. I can only hope that my Dad is able to improve with help
 

MartinWL

Registered User
Jun 12, 2020
315
My father's story has similarities, the operation, the UTI, the catheter. I believe is is common for a general anaesthetic in old age to exact a toll and accelerate decline.