it's the beginning of the end.....worried!

jennifer1967

Registered User
Mar 15, 2020
24,071
0
Southampton
Sometimes the GP’s can be two trick ponies, prescribing Nitrofurantoin and Trimethoprim.
It may be worth discussing the use of a second line antibiotic, example, Pivmecillinam.
Second line antibiotics cost more money.
Obviously it would depend on the lab result and other health conditions.
welcome back @Weasell
 

Weasell

Registered User
Oct 21, 2019
1,778
0
Hi Jennifer,
Many thanks, your kindness comes through as normal.

I am not back, but when you realise that someone is dealing with a UTI and dementia, something just calls you to offer any help you can, as you imagine what the carer is going through?

I realise my posts are not really suitable, so perhaps will follow the children’s nursery ‘ pop goes the weasel’ and just chip in very, very occasionally?

I posted a while ago on the subject of excessive sleeping, as I just feel there is not enough information out there for that specialised area of dementia. The information available falls into two categories, sympathy/empathy or lots of corporate words which don’t communicate much to an audience so desperate for any nuggets of information.
 

ScaredyCat

Registered User
Mar 31, 2019
161
0
To cut a very long story short, mum who was made moderate stage went into hospital due to UTI during lockdown. With 2 days her delirium was so bad she walking around with no clothes on and defecating on the floor. She was there for 5 weeks while 2 different councils liaised over where she was going to be transferred. She was transferred to a dementia home for a 6 week assessment and seemed to fail to improve. I was given the impression by everyone that she'd never go home. Well 6 weeks later..and she was at home, immaculately dressed, hair styled and maybe back to 75% of how she was prior to the UTI.
 

tomp9

Registered User
Aug 27, 2022
26
0
Nan has gone downhill again, because of two falls in two days. First on Wednesday, wasn't so bad just a couple of bruises and scratches and a bit shaken up. Was OK yesterday, still with infection. Yesterday evening fell and hurt herself. Probably fractured ribs (or bruised) and some other bruises elsewhere. Found it difficult to get out of bed, eventually made it to armchair. Doctors were considering hospital if Nan was immobile. But it was good that Nan wanted to move but due to fall body wouldn't allow it at the time.
Has been asleep most of the day. (Understandable I guess) Nan has not eaten anything today, but has managed approx 500ml of liquid. Better than nothing but needs more, otherwise hospital beckons on a drip.
My poor Nan doesn't need this she has already been through so much the last 10 days!

I am praying for a recovery!
 

canary

Registered User
Feb 25, 2014
25,246
0
South coast
Has the GP prescribed different antibiotics yet?
Get back onto them
This all sounds like a UTI that hasnt gone away.
 

tomp9

Registered User
Aug 27, 2022
26
0
Has the GP prescribed different antibiotics yet?
Get back onto them
This all sounds like a UTI that hasnt gone away.
I don't know the specifics but I do know more are being ordered
Dr said they'd be ready for midday so we wouldn't have to miss a dose, but they are still not ready.
The UTI was still there on Wednesday
 

tomp9

Registered User
Aug 27, 2022
26
0
After a better day yesterday, loads of liquid and even a bit of food, today nan is extremely weak and is sweating and does not feel very well at all. Has a slight tempreature of 38c.
Could this be down to pain?
We have called an out of hours doctor. I reckon a trip to hospital beckons. I just pray she comes out :-(
 
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Moggymad

Registered User
May 12, 2017
1,314
0
I would be very concerned about sepsis if the uti hasnt gone after this time. If so it is an emergency
 

tomp9

Registered User
Aug 27, 2022
26
0
I would be very concerned about sepsis if the uti hasnt gone after this time. If so it is an emergency
I do not think it is sepsis.
Mum says there was improvement on the UTI front. We'll have to do another urine sample to test for the UTI.
 

Charlottelucy

New member
Sep 5, 2022
3
0
Thank you both.
We are all hoping that this severe confusion and the sudden worsening is just the UTI, but don't think it is...after all we're on day 3 of the anti biotics and the dementia symptoms are worsening
Hiya,

I dont know if this is reassuring but my nana had a UTI in July and ended up in hospital after a fall. She went from being mostly independent to cofused, unable to get out of bed, unable to feed herself etc. It took around 4 weeks for us to start seeing improvements and even now 7 weeks on shes still not 100% back to how she was but slowly slowly seems to be on the mend <3
 

tomp9

Registered User
Aug 27, 2022
26
0
Hiya,

I dont know if this is reassuring but my nana had a UTI in July and ended up in hospital after a fall. She went from being mostly independent to cofused, unable to get out of bed, unable to feed herself etc. It took around 4 weeks for us to start seeing improvements and even now 7 weeks on shes still not 100% back to how she was but slowly slowly seems to be on the mend <3
Thank you for this. I am praying my nan goes the same way.

Nans delirium was the worst it has been last night and this morning, after waiting for 12 hours to be taken into hospital. Agitated, hallucinating, confused.
Nan does not longer have the UTI, but something showed up as abnormal on the blood test, so Doctors are trying to work out what and why.
Nan has had some soup. Better than nothing I suppose. But I am surprised Nan has not been put on a drip.

Drs have also said nothing has been broken or even fractured rib wise, and also had a head scan and that came back OK.
 

tomp9

Registered User
Aug 27, 2022
26
0
Doctors do not know if it is an Infecrion, they said it might be, but they also said it could be bowel cancer. as nan has had this before. they are putting her on strong anti biotics. they sre so strong that it could cause heart failure. There is a DNR order in place. Nan is quite ill.
They do not think the dellerium is as a result of the UTI.a

I've got to pray that nan pulls through. Doctors have said it's 50-50.
 

Charlottelucy

New member
Sep 5, 2022
3
0
Doctors do not know if it is an Infecrion, they said it might be, but they also said it could be bowel cancer. as nan has had this before. they are putting her on strong anti biotics. they sre so strong that it could cause heart failure. There is a DNR order in place. Nan is quite ill.
They do not think the dellerium is as a result of the UTI.a

I've got to pray that nan pulls through. Doctors have said it's 50-50.
Sorry to hear that, my thoughts are with you and hope she pulls through!
 

tomp9

Registered User
Aug 27, 2022
26
0
Thank you all.

Dr's now reckon Nan has a lung infection and not cancer, and is going on standard anti biotics and fluids. Still not eating and drinking much and keeps taking out the canula. There is a slight improvement on the blood work.
Nan is still weak and confused so we are not out of the woods yet. But its certainly better news than 24 hours ago.

?
 

goose64

Registered User
Aug 2, 2022
40
0
My mother-in-law has an uti. She became very confused and aggressive, wouldn't eat or drink and became so weak she collapsed. She ended up in hospital where she went further downhill rapidly. They gave her a single dose antibiotic and although not back to her previous self she's not as bad. We regularly get asked where her mum and dad are, getting incredibly possessive about HER house or accusing us of moving her into a strange house. Unfortunately as dementia progresses these things get worse.
 

tomp9

Registered User
Aug 27, 2022
26
0
It's getting near the end now, folks.

Doctors moved Nan out of bed yesterday and this whacked her out. Nan was living in a different era. Was mentioning different things from her childhood and was talking about her mum and dad. Seeing things that were not there (from the past) The confusion is the worst it has ever been Didn't eat much and drank hardly anything. On Wednesday Nan had an excellent day, ate all her meals and had some drink. We thought this was because the infection was starting to clear

Today doctors moved Nan into her chair. This was too much for Nan, had to be slinged back into bed and has been asleep ever since. No food or drink. Nan did say she felt sick, and the colour drained from her face. Skin was clammy, feet cold. This has since returned more to normal but not fully. Mum also noticed Nans breathing was a little altered for a time, and that Nan was starting to sweat in her sleep again, as she often does, and, with the lack of fluid intake, this is worrying!

We bluntly asked a Nurse if they were going to discharge Nan for end of life care. (Dr's are thinking by Monday Nan will be 'medically fit' for discharge. The Nurse said no. The nurse says that based on Nans condition and frailty, Nan has between 2 and 6 months left, but didn't want to be drawn on anything for certain.

However, we know Nan best, it's like her mind wants her to recover, but her body just won't let her and everything is just a struggle, and the lack of food and drink yesterday and today is Nans body starting to shut down.
I know Nan has had 2 falls, angina, UTI and lung infection in the last 3 or so weeks, on top of dellerium and dementia, but it does seem that Nans body has had enough and there is no energy left.


I pray that tomorrow Nan has a better day and at least has something to drink, otherwise the end will be very near indeed.

Right now, it feels like back to where we were last weeken, prior to hospital admission.. :(
 
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canary

Registered User
Feb 25, 2014
25,246
0
South coast
Im so sorry @tomp9 , it does sound as though your mums body is slowly closing down, It can often happen very slowly over several weeks. Even when they stop eating and drinking entirely it can be surprising how long the body can go on. My mum lasted 17 days with no food or fluid at all, but most people do not last this long.

Sometimes, though, they can rally. I was told three times - once after she had pneumonia, once after a stroke and once when it turned out she had oral thrush - that she was at end of life, only to rally and live for several months more. Im afraid that this stage is a horrible roller coaster.

Stay strong
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