Curiouser & curiouser - as they say
Aged Mothers GP doesn't believe Dementia with Lewy Bodies could be the reason to her behaviour issues & wont refer us back to get that assessment.
In the world of tick boxes - Aged Mothers past medical history & the diagnosis of Parkinsonism back in 2014 means we have hit the jackpot ! On top of that diagnosis again in 2018 DLB was discussed by Mental Health Nurse & to get referral if more issues arose.........
So yet again we are self referring as we had to do in 2018!!!! The history doesn't bode well - if you can't have the support of the GP it's just so much harder ....
But the GP tells me that night sitting services have been discussed & was believed to be in place soon?????
News to us.... especially after Care manager said no further care was required & the letter stated the same from PCT???
Fast forward to the next day ......
Receive phone call from Funding authority asking for payment for my Dad ? I point out he died in Dec 2019 - oh ... they didn't know??
? i really am living in the twilight zone ?
Next Aged Mothers new social worker rings - to talk about safeguarding issues.... & tells us that night sitting is in place for tonight & tomorrow ....,,,,,,,, um not that we knew of ?
Apparently it was arranged last week .... so why didn't the care manager tell us ? Social worker horrified we had no idea ?
Looks like Aged Mother will be assessed properly face to face with LPA & advocate present at assessment - the fact that we requested this the SW realised how much we have been kept in the dark despite it was the family who have pushed for assessments / night sitting / extended care package
SW going to make sure we are notified when any PCT/GP called about Aged Mother , copy us in on all paperwork, help us get assistive technology & security technology. Previously we have paid for everything- key safes etc .
I was honest & very open - as always . Oversharing is my default! I'm hoping that this SW will be the key to help unlocking the multi agency help Aged Mother so desperately needs..... before facing the inevitable fact of a nursing home - but at least i will have exhausted every option & hopefully by that time Aged Mother will not be aware .........
I'm sure this isn't the end of the battle to get the definitive diagnosis that would be the magic key to accessing funding for the final stages of Aged Mothers dementia
?
Aged Mothers GP doesn't believe Dementia with Lewy Bodies could be the reason to her behaviour issues & wont refer us back to get that assessment.
In the world of tick boxes - Aged Mothers past medical history & the diagnosis of Parkinsonism back in 2014 means we have hit the jackpot ! On top of that diagnosis again in 2018 DLB was discussed by Mental Health Nurse & to get referral if more issues arose.........
So yet again we are self referring as we had to do in 2018!!!! The history doesn't bode well - if you can't have the support of the GP it's just so much harder ....
But the GP tells me that night sitting services have been discussed & was believed to be in place soon?????
News to us.... especially after Care manager said no further care was required & the letter stated the same from PCT???
Fast forward to the next day ......
Receive phone call from Funding authority asking for payment for my Dad ? I point out he died in Dec 2019 - oh ... they didn't know??
? i really am living in the twilight zone ?
Next Aged Mothers new social worker rings - to talk about safeguarding issues.... & tells us that night sitting is in place for tonight & tomorrow ....,,,,,,,, um not that we knew of ?
Apparently it was arranged last week .... so why didn't the care manager tell us ? Social worker horrified we had no idea ?
Looks like Aged Mother will be assessed properly face to face with LPA & advocate present at assessment - the fact that we requested this the SW realised how much we have been kept in the dark despite it was the family who have pushed for assessments / night sitting / extended care package
SW going to make sure we are notified when any PCT/GP called about Aged Mother , copy us in on all paperwork, help us get assistive technology & security technology. Previously we have paid for everything- key safes etc .
I was honest & very open - as always . Oversharing is my default! I'm hoping that this SW will be the key to help unlocking the multi agency help Aged Mother so desperately needs..... before facing the inevitable fact of a nursing home - but at least i will have exhausted every option & hopefully by that time Aged Mother will not be aware .........
I'm sure this isn't the end of the battle to get the definitive diagnosis that would be the magic key to accessing funding for the final stages of Aged Mothers dementia
?